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Forum -> Children's Health
NF1 support group



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greenhorn




 
 
    
 

Post Tue, Sep 24 2013, 10:07 pm
Hi, are there any moms out there with a child with NF 1? My son was diagnosed last November with the condition. His is a spontaneous mutation. No one I know has the condition. I'd love to get in touch with someone who's going through this.
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happy mommy6




 
 
    
 

Post Tue, Sep 24 2013, 11:48 pm
4 of my kids have NF1- we are actually going to the NF clinic in two weeks for a follow up visit. B"H their biggest sympton is the cafe' olay spots, and my dd has learning issues which I think is related. There is a nf foundation which gave me nice info about it. would love to help anyway if I can. [code]
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