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NF 1



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amother


 

Post Sat, Jan 31 2015, 9:59 pm
Any one has a child with nf1? I have 2 children diagnosed with it I need support. what side effects does the child have? any info or feedback on this topic would be appreciated! Mad
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amother


 

Post Sat, Jan 31 2015, 10:13 pm
It's important to see a geneticist who has experience with NF1. Some centers have a NF1 clinic which is helpful.
If you have 2 kids with it, it's likely (but not guaranteed) that you or their dad have it too.
Many people with nf1 aren't very affected by it.
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shanly




 
 
    
 

Post Tue, Feb 17 2015, 7:50 pm
I have a son with NF1. I am part of on on-line support group for mothers of kids with Nf. Please PM me to get more information.
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