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Forum -> Children's Health
Syndactyly



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Pandabeer




 
 
    
 

Post Tue, Oct 12 2010, 1:30 am
My son was born with complete syndactyly on one hand - all fingers are fused toghether and webbing between thumb and pointer
He was operated already 4 times. the last one 6 years
he's now 12 years and it still is very small compared to the other one
anybody has experienced? how to continue? which docter is good? (other operations was in eurpoe where I used to live?
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Inspired




 
 
    
 

Post Tue, Oct 12 2010, 4:35 am
Panda, I doubt you'll find many imamother's whose kids have this rare condition. I suggest you google to find support forums online.
I found two:
http://www.facebook.com/group......=wall

http://dougal.gunters.org/forums/

The blog post that sparked the forum:
http://dougal.gunters.org/blog.....reaks
http://dougal.gunters.org/blog.....orums

Bhatzlacha!!
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Liba




 
 
    
 

Post Tue, Oct 12 2010, 4:40 am
My niece had two fingers effected with synadactally, not just the webbing but the bone as well to the bottom joint. B"H surgery went well but she still doesn't have quite normal function and she can move them now in ways that most people can't move their fingers.

What country are you located in? My SIL was very happy with my nieces surgeon.
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shanequa




 
 
    
 

Post Tue, Oct 12 2010, 8:41 am
my son was born with syndactly of two of his three fingers on his hand I have been to three diffrent hand surgoens in the usa if u want more info just pm me
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