My Baby is screaming for 3 days she is falling -

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amother

Sun, Sep 09 2012, 10:27 am

Since my baby is little she won’t go in shopping carts or she doesn’t like her stroller because she claims it’s scary. About 4 months ago we flew out of town with her for an overnight trip - it was disaster. The min the plane took off she was hysterical. There was nothing we could do to calm her. She screamed she is falling she must get off the plane and she lay on the floor in the isle shouting the entire way. When we got back I called my dr. he said to try a balance center. They told me they can’t help me (they didn’t think it was a problem with the crystals in her middle ear like the dr said) at all and they don’t know who I need.
Things calmed down and only every once in while in the car she would start screaming the street is falling over....
Thursday night she did a tumble sauce in her crib and she started screaming and yelling that she is falling and it’s so scary- ....this went on for hours on end. She wouldn’t go into most of the rooms in my house because she felt like the furniture was falling on her and she wouldn’t let me stay in them either. When she gets like this the screaming is uncontrolled - she is so scared it’s terrible, you can’t even talk to her. This went on till 11pm when she finally fell asleep from tiredness. In the morning she was ok. I called chop, DuPont in Delaware, jersey shore and coastal balance and everyone told me they can’t help me. Finally a pediatric neurologist said he will see me and it sound like BPV. It’s like migraines in adults but this is how it manifests in children - something like vertigo. Ok but he won’t see me till Oct 22.
Friday afternoon it started again but this time she was ok outside - so we spent the night outside till she fin fell asleep at 830. At 430 she was up again till 7...basically this is how our weekend went.
The dr told me to make an apt for mri of her brain and ear canal, this cant be done until Monday and who knows when I will get an apt for.. and he doesn’t have anything for me to stop this. I need to wait it out
Does anyone have any experience with this?? Do u know anything about such thing?
I’m desperate for help ( and sleep) im so stressed out and going nuts that my baby is so miserable for so long. – Thank god my baby is so verbal and can tell me whats wrong.
Thanks for listening, hope someone can help

lovemywig

Sun, Sep 09 2012, 10:38 am

Maybe take her into the ER n have them take n MRI.
Good luck!

Classicookie

Sun, Sep 09 2012, 10:45 am

did you try asking to be put on the cancellation list for the neurologist to get in quicker or have your pedi call them I once had a dr want to get me into the specialist faster so the dr called the office and I got an app quicker or you can try getting a list of diff neurologist and call them to see if anyone can fit you in so your baby wont have to suffer like that

mammala120

Sun, Sep 09 2012, 2:10 pm

come on

I am very sorry to hear this however it is obvious she got traumatized due to flight. from what I understand she did not have head injury right????? you don't need mri , you don't need to put her throught more stress or you will really cause damage to her. MRI is very very scary for child and she is scared already, you don't want hospital to put her in psych wart ch''sh. ONLY if she did not get head injury you don't need mri.

what you need is good therapist and homeopathy. please please call SARA CHANA SILVERSTINE. she has web site SARACHANA.com which has her phone number on it. she knows her stuff. she deals with herbs and homeopathy and will know exactly how to approach this child.

hazlacha and please update us as necessary as we all do care and will be thinking and hoping for good news.

mammala120

Sun, Sep 09 2012, 2:14 pm

also try giving her chamomil tea.. it works on nerve level to calm person down. I use it in my house instead of black tea as regular tea. it is most safest tea as long as you not allergic to it. start slow .....like one ounce and then increase it as you see her response.

ally

Sun, Sep 09 2012, 2:20 pm

mammala120 wrote:

Do you have any type of medical expertise aside from Dr Google? MRIs are not only for head injuries. And I don't think hospitals put babies in psych wards.
Your advice is incredibly uneducated and irresponsible.

OP - can you try the neurologist again? Ask for any suggestions of what to do in the meantime?
Or ask your pediatrician to network for you?
I think as a last resort you can go to the ER - the plus is that they must see you and they have all sorts of specialists on call. The minus is that its luck of the draw.

Last edited by ally on Sun, Sep 09 2012, 2:23 pm; edited 1 time in total

Fabulous

Sun, Sep 09 2012, 2:21 pm

mammela, YOU KNOW this about her daughter? That she doesn't have a medical condition ch'v? From one short description? Without seeing her? Do you have a medical degree?

I don't understand how you can diagnose and tell a parent exactly what her kid is suffering from unless you met her and have a specialized medical degree.

Op, refuah shelama!! No advice but keep doing what you are doing to help you child. Bihatzlacha!

myself

Sun, Sep 09 2012, 2:49 pm

I don't know how old OP's child is (if it's in your post I'm sorry, I didn't read it word for word) but I happen to know first hand that very young kids are put under for their MRI. Not exactly exciting but not traumatising.
Good Luck OP!

granolamom

Sun, Sep 09 2012, 3:22 pm

maybe try calling ECHO. sometimes they have connections and can get you earlier appointments.
I hope whatever it is, is easily and quickly resolved. I had a very brief spell of vertigo (three days) and it was extremely upsetting to say the least. I feel for your child, and for you.
I guess the MRI is to rule out anything big bad or ugly, I'm not sure if they can diagnose vertigo with an mri. also not sure about what medical treatments there are, but my mother also had vertigo (much worse than mine) and did very well with therapy, similar to PT but a specialist who treats vertigo with exercises (mostly eye and head movements). I hope you can find the right people to help.
hatzlocho and refuah shelaima!

Hashemlovesme

Sun, Sep 09 2012, 3:37 pm

does she get vertigo? That's what came to mind from your post. I know a few ppl who suffer from episodes of vertigo.

amother

Sun, Sep 09 2012, 4:14 pm

Check your baby's cortisol levels. Low cortisol can do that t'you. Also, low aldosterone. Aldosterone is a pituitary hormone, and cortisol is an adrenal hormone.
In the meantime, keep your baby off sugar and fruits and let him/her get lots and lots of sleep, if possible. A calm and restful environment can help keep these spells under control at least til you figure out the underlying deficiency.

amother

Sun, Sep 09 2012, 4:35 pm

hi OP here. Thank you everyone. My dr doesnt recommend me taking her to er. ( my baby will only suffer from panic - due to the fact that she can hardly handle being indoors cuz everything is falling on her) he wants me to wait till tom and make an apt and he will call and push it up. But the mri is to rule out any growth or something like that.
My dr wants me to make 3 apts one for nuroligist one for mri and one to find someone who does a dixhallpike manuver - he doesnt know anyone who does it...but he thinks he might have heard that someone in chop does it. - Its a test to see if the crystals in the middle ear are out of place. If anyone knows or heard of such a thing please let me know.
keeping her calm is really really hard- only way is to keep her outdoors and even then she is only happy if the entire family is outside because she thinks the house is falling on them. She wont go into her crib because that is were the attack started and she is so scared of her crib. So I have a tired 2 yr old baby who I am spending the entire day outside with and holding her in my arms or taking her for a walk untill she falls asleep and I can carry inside to her crib. and then she wakes up again a few hours later screaming.
My dr says even if it would be vertigo - we need to know the cause of it- he says its a symptom for something.
does anyone know what helps vertigo be more bearable?

Thanks again

jflower

Sun, Sep 09 2012, 6:21 pm

I took 25mg meclizine for vertigo - very helpful. Ask your dr. if you can give this to a child.

I haven't had vertigo for a while, but remember that the last 2 times it came right after a stomach upset. IIRC I remember reading that there is a link between GI problems & vertigo.

amother

Sun, Sep 09 2012, 7:02 pm

http://www.webmd.com/brain/dix.....15884

Peanut2

Sun, Sep 09 2012, 7:08 pm

it could be an ear thing. just be a pushy mommy and make sure to take her to all appointments and docs. Don't be afraid to get a 2nd opinion if needed.

try to be as calm as you can for your child. they sense when you are stressed. don't be. keep the stress for later. just try to be as calm as you can, and please Gd all will be well.

Did you ask your doc what you should do to alleviate symptoms? Call your doc and ask.

chaylizi

Sun, Sep 09 2012, 7:08 pm

Boston- http://childrenshospital.org/c......html

amother

Sun, Sep 09 2012, 7:56 pm

I am reading a book about Sensory processing called Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World by Sharon Helle, recommended on this thread.

From the little I've read so far, I would be calling OT's who specialize in sensory defensiveness and balance. But I would also be calling my homeopath/chiropractor, because they can have very helpful tools to use.

Even those who think OP must take her daughter for an MRI, I'm not saying not, but if she has to wait for an appointment & can get to a chiropractor tomorrow, the whole family might get some relief!

freidasima

Sun, Sep 09 2012, 8:21 pm

Google epley maneuver, learn it and do it on her several times.
If it is the ear crystals it will usually help or even cure it. Explain it,to her and have her cooperate and participate. I had this,and dh had this and it worked.
Hatzlocho!

amother

Sun, Sep 09 2012, 8:26 pm

Will the epley maneuver hurt her in any way if it is not a problem with the crystals in the ear?

mammala120

Sun, Sep 09 2012, 8:38 pm

ally wrote:

mammala120 wrote:

you can take your criticism some where else dr dulido. for your information I do have medical expertise in regards to babies being put in psych warts. I have been to one as a medical staff and and first hand experienced seeing small children as young as one years of age in psych wart screaming behind metal cribs that looked like prison (yes they do get medicated often). and if you are sooooo smart then why don't you tell us what they might find in the brain after doing an MRI due to a mental / emotional trauma.

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