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Forum -> Children's Health
Congenital heart disease
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amother


 

Post Mon, Sep 21 2009, 9:37 pm
I would like to start an anonymous forum on congenital heart disease
for adults and children.

anyone interested and how do you go about doing it?
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chaylizi




 
 
    
 

Post Mon, Sep 21 2009, 9:47 pm
pm yael and ask
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amother


 

Post Mon, Sep 21 2009, 10:01 pm
I have a 11 year old with congenital heart desease and I need some chizuk
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amother


 

Post Mon, Sep 21 2009, 10:02 pm
I would be very intrerested also in joining. There are quite a few of us on here.
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amother


 

Post Mon, Sep 21 2009, 10:04 pm
op here. why don't we just post anonymously on this thread and give each other
chizuk?
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amother


 

Post Mon, Sep 21 2009, 10:09 pm
did anybody get the yemeitz libechu newsletter????
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amother


 

Post Mon, Sep 21 2009, 10:13 pm
But this is open to public and anyone who is not a member could see it.
Is there a new newsletter? Will look out for it.
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downsyndrome




 
 
    
 

Post Mon, Sep 21 2009, 10:18 pm
I got their newsletter; it is nice 'n fat 'n juicy with lotsa' interesting stuff.
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amother


 

Post Mon, Sep 21 2009, 10:19 pm
op here. I don't mind that this is open to the public. we are all communicating
anonymously.

you should have gotten the newsletter before rosh hashana
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amother


 

Post Mon, Sep 21 2009, 10:23 pm
My 5 year old also has congenital heart disease. I never heard of the newsletter you are talking about. Can you please pass along the info. BTW he has Tetrology of Fallot.
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amother


 

Post Mon, Sep 21 2009, 10:28 pm
I pm yael so we can start a support group.

if I can have more info. I'll ask someone to mail you a starter kit.

if you want to post an address. it is all very confidential. the envelope
has a return address without a name so that neighbors don't see what it
is that you are getting.
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amother


 

Post Mon, Sep 21 2009, 10:29 pm
my child also has tof. when was your child repaired.
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amother


 

Post Mon, Sep 21 2009, 10:31 pm
He had his repair when he was 21 months.
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amother


 

Post Mon, Sep 21 2009, 10:34 pm
did dr. q. do the surgery?
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amother


 

Post Mon, Sep 21 2009, 10:35 pm
down syndrome. I'm glad you enjoyed the newsletter as I personally know the graphics designer.
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amother


 

Post Mon, Sep 21 2009, 10:36 pm
No, although everyone I know uses him. My DS had his done at Mt. Sinai b.c our insurance fully paid for it. We were very happy with the care. Also the cardiologist who oversees his care is connected to Mount Sinai so the interns and residents where the same at the hospital and her office.
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amother


 

Post Mon, Sep 21 2009, 10:38 pm
I hear mt. sinai is also very good with chd. may you have much nachas
from him.
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amother


 

Post Mon, Sep 21 2009, 10:40 pm
Thanks!
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amother


 

Post Mon, Sep 21 2009, 10:41 pm
Anyone here have a child with AVSD?
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ShakleeMom




 
 
    
 

Post Mon, Sep 21 2009, 10:42 pm
this should be a sub forum in the special needs forum.
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