Home
Log in / Sign Up
    Private Messages   Advanced Search   Rules   New User Guide   FAQ   Advertise   Contact Us  
Forum -> Children's Health
New Organization/Support Group
Previous  1  2  3



Post new topic   Reply to topic View latest: 24h 48h 72h

amother
Peach


 

Post Wed, Aug 16 2017, 10:02 pm
One question I have for all of you that can relate, how long does it take to join society again and be interested in recipes and baby carriages? Wink
Back to top

amother
Green


 

Post Wed, Aug 16 2017, 10:13 pm
amother wrote:
One question I have for all of you that can relate, how long does it take to join society again and be interested in recipes and baby carriages? Wink


Hey Smile right now! what carriage do you get to accommodate a baby that wants to go on a stroll with mom but needs to bring along pulse ox, suction machine, O2 tank, feeding pump and lots and lots of medical supplies Smile.

The bugaboo donkey? right? any sponsors!?!?!

And I need recipes too- whats the recipe to be well rested when coming and going from the hospital:)?

(if you can tell, I'm trying to keep my sense of humor. it gets tested on nurses and my (new bff's) fellow NICU neighbors (Filipino and Muslim)
Back to top

siyata dishmaya




 
 
    
 

Post Wed, Aug 16 2017, 10:18 pm
Wow! Amazed at your sense of humor through it all!! Keep it up! Maybe we can meet up in the hospital? May I ask which one you are at?
Back to top

amother
Pearl


 

Post Wed, Aug 16 2017, 10:25 pm
amother wrote:
Hey Smile right now! what carriage do you get to accommodate a baby that wants to go on a stroll with mom but needs to bring along pulse ox, suction machine, O2 tank, feeding pump and lots and lots of medical supplies Smile.

The bugaboo donkey? right? any sponsors!?!?!

And I need recipes too- whats the recipe to be well rested when coming and going from the hospital:)?

(if you can tell, I'm trying to keep my sense of humor. it gets tested on nurses and my (new bff's) fellow NICU neighbors (Filipino and Muslim)

My friend does it with a bugaboo bee, believe it or not. She has those exact same machines/supplies. Kid is older though so that might make a difference.
Back to top

siyata dishmaya




 
 
    
 

Post Thu, Aug 17 2017, 7:05 pm
****UPDATE****
Services will include, by not limited to:
*phone line to call for medical advice and emotional guidance
*a packet when one hears of the initial diagnoses
*doctor referrals as well as help getting appointments and insurance
*support groups sub divided into categories so people can relate to one another.
*and if I dream big, a shiduch network center.

Firstly, we need to work on funding. (please be in touch by emailing PMing me if you can help out in this way)
I hope to get the support group off the ground asap as there is a desperate need...
Back to top

amother
Puce


 

Post Fri, Jan 12 2018, 10:23 am
THE DAY HAS COME!

After much effort and thought, we plan on taking action to start an organization for parents of children with genetic diseases,syndromes,mutations etc.
In affiliation with a well known organization, we are planning a meeting for a few couples that would like chizuck and strength in getting through their challenging times, as well as medical guidance from a brilliant genetic researcher.
At this meeting, there will be a one hour round table talk given by a leading asken affiliated with genetics. After the meeting, each couple will get 15 min to discuss their prepared questions with the genetically knowledgeable volunteer.
The name of the genetic counselor,organization or asken involved can not be disclosed to the public as of yet. If you have specific questions or for more information please email geneticorg613@gmail.com

PLEASE ENCOURAGE ANYONE WITH GENETIC ISSUES TO EMAIL geneticorg613@gmail.com
Back to top

amother
Pearl


 

Post Sat, Jan 13 2018, 10:29 pm
Are you planning to advertise this anywhere other than imamother?
Back to top

amother
Puce


 

Post Sun, Jan 14 2018, 12:36 pm
As of now, we are just trying to get 5-6 couples on board for a meeting. Once we get this kicked off the ground and we see if it’s needed and if it was successful, we will definitely begin advertising and making it more official!

Once again, to reserve a slot or to get your questions answered, please email

geneticorg613@gmail.com

Please encourage anyone who would benefit to get in touch today.

Thank you!
Back to top

amother
Babyblue


 

Post Tue, Dec 28 2021, 6:48 pm
Did this support group ever materialize? If yes, whats the contact info?
Back to top

amother
Sage


 

Post Tue, Dec 28 2021, 7:44 pm
Theres a network for hereditary genetic support . For those not dealing with hereditary there are many organizations dealing with chromosomal defects, heart defects, developmental disabilities etc. If you're not dealing with the ramifications of the hereditary component why the need to start a new organization?
Back to top

amother
Green


 

Post Tue, Dec 28 2021, 7:54 pm
amother [ Sage ] wrote:
Theres a network for hereditary genetic support . For those not dealing with hereditary there are many organizations dealing with chromosomal defects, heart defects, developmental disabilities etc. If you're not dealing with the ramifications of the hereditary component why the need to start a new organization?

Which city/state has all of this?
Name them please
Back to top

amother
Sage


 

Post Tue, Dec 28 2021, 8:01 pm
Monsey, monroe, brooklyn , Lakewood etc
Back to top

amother
Green


 

Post Tue, Dec 28 2021, 8:01 pm
amother [ Sage ] wrote:
Monsey, monroe, brooklyn , Lakewood etc

Who are these support groups org? Asking for a friend...
Back to top

amother
Pearl


 

Post Tue, Dec 28 2021, 8:26 pm
amother [ Sage ] wrote:
Theres a network for hereditary genetic support . For those not dealing with hereditary there are many organizations dealing with chromosomal defects, heart defects, developmental disabilities etc. If you're not dealing with the ramifications of the hereditary component why the need to start a new organization?
Contact info?
Back to top

amother
Sage


 

Post Tue, Dec 28 2021, 8:31 pm
Contact chazak support groups as part of refuah helpline. They will connect you to the right person .
845.782.2000
Back to top

amother
Green


 

Post Tue, Dec 28 2021, 8:32 pm
amother [ Sage ] wrote:
Contact chazak support groups as part of refuah helpline. They will connect you to the right person .
845.782.2000

Are you sure this is still active?
Back to top
Page 3 of 3 Previous  1  2  3 Recent Topics




Post new topic   Reply to topic    Forum -> Children's Health

Related Topics Replies Last Post
Yeshiva area babysitter small group willing to pay
by amother
0 Tue, Mar 26 2024, 7:12 pm View last post
PANDAS Whatsapp Group
by amother
6 Mon, Mar 25 2024, 5:10 pm View last post
Support group?
by amother
4 Fri, Mar 22 2024, 12:03 pm View last post
Do you join in group gifts at work
by amother
7 Tue, Mar 19 2024, 3:32 pm View last post
Sleeve WhatsApp group
by amother
3 Sun, Mar 17 2024, 8:22 am View last post