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Forum
-> Children's Health
alittlebirdie
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 Sun, May 20 2018, 3:53 pm
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does anyone have any experience with nephrotic syndrom? im looking for advice and tips (if any) for a child. does anyone know of any other treatment other than steroids? thank you
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alittlebirdie
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Tue, May 22 2018, 2:51 pm
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amother
Pumpkin
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Tue, May 22 2018, 2:53 pm
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I've heard that a low sodium diet helps.
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amother
Cadetblue
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Sat, Feb 11 2023, 4:57 pm
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I know this is an old thread anyone has dealt with minimal change disease or nephrotic syndrome that can give some insight . How long does it take for swelling to go down any other at to help with it besides steroids and no salt
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amother
Cadetblue
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Sat, Feb 11 2023, 7:05 pm
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Chana Miriam S
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Sat, Feb 11 2023, 7:45 pm
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This is a question for your nephrologist.
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amother
Brunette
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Sat, Feb 11 2023, 8:49 pm
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Cadetblue. As amother with a child (now an adult) who grew up with this condition. (BH doing good now) I can tell you yes there are other treatments available.. Since I am not a medical professional and don't know your exact specific case I don't want to post but my advice for you would be to ask your doctor or see a second opinion/more proffesional doctor as some are more up to date with their research..
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amother
Cadetblue
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Tue, Feb 14 2023, 6:16 am
The last mother that responded , is it possible to give me some idea of either a doctor or other treatments that are the latest research.
And yes I know these questions are for a doctor, but I was looking to hear from mothers who have been through it and can give me some insight of maybe other options.
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amother
Brunette
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Tue, Feb 14 2023, 6:55 am
We didn't get to use the best doctors growing up so I can't speak from experience... From what I heard from others and picked up from this site Dr Perlstein from Cornell and Howard trachtman from NYU are very good. Do you live in NY or in NJ ? (or elsewhere ?)
In terms of medication and other treatments I don't want to post as some people know us irl and might identify me.... I would be happy to email you with more details if you want to create an anonymous email..
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amother
Brunette
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Wed, Mar 08 2023, 6:10 pm
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Cadetblue , I hope it all worked out for you. Please let us know if there is anything else...
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