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Forum
-> Children's Health
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amother
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 Sun, Jan 05 2020, 8:13 am
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Hi, I'm looking for some support. I don't know of any other yidden with this condition. My son is 7. He was diagnosed a few years ago. I could do with hearing some positive stories please if anyone has? Thanks
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happyone
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Sun, Jan 05 2020, 9:27 am
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please call Chai Lifeline . If you are referring to neurofibromatosis type 1, I know of two clients they have that I met years back at a shabbaton, but dont have contact info. They would be able to provide support and networking opportunities.
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slmom
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Tue, Jun 02 2020, 10:33 pm
Hi,
I have not visited this site in a while.
We do have a support group for Mothers of children with NF1. If you are interested or would like more information, please email me at
skindparent@gmail.com
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amother
OP
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Wed, Jun 03 2020, 12:36 am
Hi, thank you so much slmom!
I emailed you 
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Rb822
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Mon, May 01 2023, 12:53 am
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I know this is an old post but letting you know we have a whatsapp support chat for parents with nf kids. Email jewishnf1@gmail.com to be added
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