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Forum
-> Children's Health
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amother
OP
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 Wed, May 13 2020, 3:16 pm
Does anyone have any experience treating pandas, specifically tics, with low dose naltrexone?
Any other ways to reduce the intensity of pandas-related tics?
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anonymrs
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Wed, May 13 2020, 7:29 pm
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I have experience with pandas. LDN is prob a great treatment option but I haven't been able to find a Dr willing to prescribe it. Would love to chat. Can you pm me?
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amother
Firebrick
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Wed, May 13 2020, 9:42 pm
| amother [ OP ] wrote: | Does anyone have any experience treating pandas, specifically tics, with low dose naltrexone?
Any other ways to reduce the intensity of pandas-related tics? | NAC helps with pandas tics over here. Also magnesium, l theanine and gaba.
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ra_mom
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Wed, May 13 2020, 10:36 pm
Do tics make the body feel high? I'd love to understand.
I googled and found that LDN (Low Dose Naltrexone) is in a class of drug known as an opiate antagonists. Its normal use is in treating addiction to opiate drugs such as heroin or morphine.
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amother
Firebrick
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Wed, May 13 2020, 11:28 pm
| ra_mom wrote: | Do tics make the body feel high? I'd love to understand.
I googled and found that LDN (Low Dose Naltrexone) is in a class of drug known as an opiate antagonists. Its normal use is in treating addiction to opiate drugs such as heroin or morphine. | at regular doses it helps with opioid addiction and overdoses. At low doses it’s used off label as an immune modulator for various autoimmune and inflammatory disorders. You can read up more here https://www.amazon.com/LDN-Boo.....r=8-1
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amother
Firebrick
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Thu, May 14 2020, 9:26 pm
| amother [ OP ] wrote: | | Bump | I know 2 drs in ny who would prescribe ldn for pandas but neither take insurance. If you join a pandas support grp on fb you can hear from ppl who have personally tried this with their child. As with everything else pandas, the results will be different for each individual
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amother
OP
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Fri, May 15 2020, 8:48 am
| amother [ Firebrick ] wrote: | | I know 2 drs in ny who would prescribe ldn for pandas but neither take insurance. If you join a pandas support grp on fb you can hear from ppl who have personally tried this with their child. As with everything else pandas, the results will be different for each individual |
My DC's doctor wants to prescribe it. I'm just looking for feedback before I agree. I bought the LDN book and plan to read it.
I'm not on FB.
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amother
OP
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Fri, May 15 2020, 8:49 am
| amother [ Firebrick ] wrote: | | NAC helps with pandas tics over here. Also magnesium, l theanine and gaba. |
Dc takes L-theanine and magnesium. What is NAC?
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amother
Crimson
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Fri, May 15 2020, 9:01 am
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My dc was on zithromax for a good 7-8 months.. Once off the meds shes on turmeric since. We used Dr Schulman in boro park, Brooklyn
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amother
Firebrick
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Fri, May 15 2020, 9:12 am
| amother [ OP ] wrote: | My DC's doctor wants to prescribe it. I'm just looking for feedback before I agree. I bought the LDN book and plan to read it.
I'm not on FB. | I don’t have personal experience but I would jump at it if I had a provider willing to prescribe. Overall, people see good results. It works by modulating the immune system so that it’s not over reactive to strep and in general.
NAC is a supplement, it’s a precursor to glutathione which is a major antioxidant with a lot of activity in the brain. People use it in pandas to combat ocd, anxiety, tics and body focused repetitive behaviors.
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amother
OP
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Mon, Jun 08 2020, 3:55 pm
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The LDN is coming in the mail. I'll try to post back with an update!
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amother
Firebrick
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Mon, Jun 08 2020, 4:31 pm
| amother [ OP ] wrote: | | The LDN is coming in the mail. I'll try to post back with an update! | good luck! Please keep us posted!
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amother
Coffee
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Mon, Jun 08 2020, 10:06 pm
| amother [ Crimson ] wrote: | | My dc was on zithromax for a good 7-8 months.. Once off the meds shes on turmeric since. We used Dr Schulman in boro park, Brooklyn |
How did she diagnose it?
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amother
Forestgreen
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Mon, Jun 08 2020, 10:28 pm
| amother [ Crimson ] wrote: | | My dc was on zithromax for a good 7-8 months.. Once off the meds shes on turmeric since. We used Dr Schulman in boro park, Brooklyn |
What dosage of turmeric?
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amother
Lemon
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Tue, Jun 09 2020, 12:35 am
| amother [ Crimson ] wrote: | | My dc was on zithromax for a good 7-8 months.. Once off the meds shes on turmeric since. We used Dr Schulman in boro park, Brooklyn |
Can you post a link to the turmeric you use and the dosage please?
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amother
Lemon
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Tue, Jun 09 2020, 12:36 am
| amother [ Firebrick ] wrote: | | NAC helps with pandas tics over here. Also magnesium, l theanine and gaba. |
Which NAC do you use and how much?
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amother
Firebrick
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Sun, Jun 14 2020, 4:23 pm
| amother [ Lemon ] wrote: | | Which NAC do you use and how much? | pharmanac is the best, but we use NOW. We do 1200mg 3 times a day for a 75lb child.
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amother
Firebrick
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Sun, Jul 05 2020, 8:00 pm
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OP would you share who your dr is that is prescribing the ldn? And how is it going?
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amother
OP
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Sun, Jul 05 2020, 8:28 pm
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We're on week 3, still titrating up to the full 4.5 dose.
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