Out of control eczema

amother

Rose

Mon, Jun 29 2020, 2:32 pm

Climate and weather affects it, too. (The air at the Dead Sea is supposed to help. Not a possibility now, but I've read good things about Dead Sea mud being soothing for certain itchy conditions. You may want to look online to order.)

All I can say is, telling her not to scratch will only frustrate her. Not to encourage it but recognize in extreme cases it is out of the person's control and admonishing abt it is very invalidating.
Some recent medical research says intense itching can be worse than dealing with pain.

You/she have my sympathies. Truly.

blinks

Tue, Jul 28 2020, 11:23 am

My 2 yr old son also had out of control eczema. I went to dr gindi who helped a lot, but it didnt go away completely. then I heard about a product called biotica infant from co. thrive. sold in health emporium. it did wonders. I would says it is 99% gone! everyone wanted to know what we did.

ces

Tue, Jul 28 2020, 11:44 am

blinks wrote:

Thank you! It's probiotics? Which hechsher does it have, and what probiotics does it include?

amother

Slategray

Tue, Jul 28 2020, 10:09 pm

I know it's not the popular opinion on here but my kids are on the dr aron regimen for a year and a half already and it's been amazing. It's basically steroids mixed with moisturizer and the most important thing antibiotic ointment, you start off applying many times a day and then slowly wean off. The steroid and antibiotic is diluted so you end up using so little of it and by now I only spot treat a few tiny places, a few times a week. My 4 year old and 2 year old are finally able to sleep and wear short sleeve and pants, it is so worth it. Check out eczemaspecialist.com, we had email consultations with the doc there to get it prescribed and then had a compound pharamcy make the cream, which is covered by their insurance. There last tubs have lasted around 9 months so far, that means 1 tube of steroid lasted 9 months, that does not seem like a lot of steroid use if you ask me.

ces

Tue, Jul 28 2020, 11:16 pm

amother [ Slategray ] wrote:

I actually started this at one point but then I got nervous about the steroids and stopped it (and honestly also just worn out of chasing her and begging her to put on cream 3-4x/day, she really hates it). Maybe it's worth trying again once we address this acute flare. Thanks

FranticFrummie

Tue, Jul 28 2020, 11:19 pm

Eliminate ALL grains and dairy, and wait a few months to see if it clears up.

Please don't tell me that the only things your kid will eat are pizza, mac n'cheese, sugary yogurts, and cheese sandwiches. This is incredibly unhealthy for any kid, and will only make underlying conditions much worse.

I have a friend who's kids have terrible eczema. I told her to take them off wheat and dairy, and sure enough, the eczema went away. A couple of months later the eczema was back. I asked her what happened, and she said "They wanted bagels and cream cheese in their lunches." Banging head

amother

Blonde

Tue, Jul 28 2020, 11:26 pm

If it gets really bad, you may need to use steroids just to get it to a manageable state. I've seen truly bad ezcema, the kind that weeps with pus and is bleeding. Just moisturizer alone won't help. You don't want it to get infected.

thatworn

Tue, Jul 28 2020, 11:32 pm

Mix quick oats and warm water in a chux cloth. Squeeze out the liquid through the holes and apply to skin. Good for allergic rashes also.
We covered skin in aquaphor every night and it worked wonders. If it's on her hands, aquaphor with cotton gloves over the top?

ces

Tue, Jul 28 2020, 11:50 pm

amother [ Blonde ] wrote:

Yes, this is where we're at. She's currently on Prednisone and oral abx as well as a topical steroid. Once it's back under control we'll go from there.

amother

Lemon

Wed, Jul 29 2020, 12:15 am

To the posters who said not to use steroid, the dr is saying to use it. Both the allergy specialist and the pediatrician. Please explain why I should go against medical advice.

Please also explain how (in the world) a chiropractor can help!

Asking sincerely because I have a son with eczema.

amother

White

Wed, Jul 29 2020, 12:34 am

Hi! I didn’t read all the responses- but my son just went to a dermatologist- finally- for out of control eczema.
He put him on mometasone, a strong steroid, (and a gentler steroid for more sensitive areas) And an oral antibiotic (keflex) because his skin was so infected, and put us on a major regimen involving daily baths and wet wraps.

Hatzlacha

amother

Slategray

Wed, Jul 29 2020, 12:36 am

amother [ Lemon ] wrote:

The problem is steroid used excessively or the wrong strength can be harmful. Steroids used in balance and slowly weaned off can be beneficial. Benefits must outweigh risks, so very mild eczema with little risks should not be treated with steroid or only a low potency steroid. Severe eczema is a higher risk as it an get infected, can delay growth, lower immunity, so higher potency steroid are beneficial but have to be prescribed carefully, by a doctor very experienced with eczema.

amother

Mistyrose

Wed, Jul 29 2020, 12:58 am

I've been dealing with eczema my entire life. Mid-20s now. Since purim, my fingers and hands have been patchy, bloody/scabby and so itchy that it wakes me up at night. Probably similar to your daughter's.

I try not to use steroids because of the bad rep it gets but I was desperate so I'd try my hydrocortisone that I usually use. It would help and come back 3 days later. (though as a kid I'd slather it on my entire legs twice a day in the summer and didn't have issues with it.)

A few weeks ago, I couldn't take it anymore and went to a dermatologist. She gave me a slightly stronger cream and I used it once! Just once and it went away and stayed away for about 2 weeks. Obviously, something in my environment or diet is causing it to come back but it got so bad that I couldn't get ahead of it. You may need to use a new or different steroid to get it under control and then be aggressive about keeping it under control.

amother

Ecru

Wed, Jul 29 2020, 2:14 am

[quote="amother [ Lemon ]"]To the posters who said not to use steroid, the dr is saying to use it. Both the allergy specialist and the pediatrician. Please explain why I should go against medical advice.

My dr kept prescribing mometesone which is a steroid for my baby until I just stopped using it cuz wasn't helping anymore , it got worse then started reading about Red Skin Syndrome (RSS)
And Tropical Steroid Withdrawal
Please Google it. It's no jokes

amother

Brunette

Wed, Jul 29 2020, 9:39 am

I wouldn't go near steroids with a ten-foot pole. The eczema always gets worse when you stop it, so saying to use steroids until it gets manageable is a catch-22 because once you'll stop (cuz it's manageable), it will flare up again. Especially if your new methods are more natural-oriented which take time to see results.

Good luck!