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Forum
-> Parenting our children
-> School age children
amother
OP
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Wed, Jan 06 2021, 8:33 am
My 8 year old has just been diagnosed with Gauchers.. we don’t yet know the extent of how symptomatic she is only that she has splenomegaly she will be undergoing further testing.. anyone have experience with a child with Gauchers and chizuk
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amother
Honeydew
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Wed, Jan 06 2021, 8:48 am
My friend has two kids. One was diagnosed at 18 and then they tested all kids. She underwent some treatment and feels great.
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amother
Papaya
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Wed, Jan 06 2021, 3:51 pm
I know someone who had it actually difficult case as a child. She is b"h well with a large family of her own these days.
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