Home
Log in / Sign Up
    Private Messages   Advanced Search   Rules   New User Guide   FAQ   Advertise   Contact Us  
Forum -> Parenting our children -> Teenagers and Older children
Pans doctor for initial diagnosis in tristate area



Post new topic   Reply to topic View latest: 24h 48h 72h

amother
OP


 

Post Sun, Sep 19 2021, 12:22 am
Has anyone used Alain mass, earnest Visconti, or dr frid? Not sure if child has pans but want to get comprehensive testing and opinion with someone with a good bedside manner. Wouldn't hurt if they also did testing for vitamins or minerals or any other functional medicine issues .
Back to top

amother
DarkPurple


 

Post Sun, Sep 19 2021, 12:26 am
Look into Dr Michael Elice, Dr. Kenneth Bock and Dr. Nancy Ohara.

Dr. Visconti treats Lyme and coinfections, I’m not sure about pans. Dr. Frid is excellent but more mainstream. Never heard of Alain Mass.
Back to top

amother
Mustard


 

Post Sun, Sep 19 2021, 12:28 am
Frid is excellent. Well rounded. She does use some alternative medicine. Pans isn’t a diagnosis by the way. It’s AE.
Back to top

amother
OP


 

Post Sun, Sep 19 2021, 12:59 am
Thank you for names! So sorry if I used the wrong term. What does AE mean? My issue is I am thinking sudden tics, anxiety and speech issues may be related to pandas or Lyne to some other medical condition and want to rule that out/ get treatment before I pursue only traditional avenues. Am I using the wrong term?
Back to top

amother
Jade


 

Post Sun, Sep 19 2021, 1:11 am
amother [ OP ] wrote:
Thank you for names! So sorry if I used the wrong term. What does AE mean? My issue is I am thinking sudden tics, anxiety and speech issues may be related to pandas or Lyne to some other medical condition and want to rule that out/ get treatment before I pursue only traditional avenues. Am I using the wrong term?


PANS is a diagnosis, it's just not a diagnosis insurance would cover for or that mainstream doctors accept. AE stands for autoimmune encephalitis - your body makes antibodies against the brain. Honestly, PANS is for sure a subset of AE.

I heard great things about Frid - she's a neurologist but deals with infection indused brain issues.

Don't bother with a traditional Dr. go to someone more integrative/functional. You need lots of indepth tests, will likely cost you $, but your child will have a better chance of healing if address ALL issues. PANS doesnt generally happen because of one thing. Often there's a cascading effect in the immune system. Something like a virus, a tick borne illness etc, could have been the straw that breaks the camel's back, but it's likely you may need to deal with other issues too, not just antibiotics for 1 thing.
Back to top
Page 1 of 1 Recent Topics




Post new topic   Reply to topic    Forum -> Parenting our children -> Teenagers and Older children

Related Topics Replies Last Post
Is there a female general doctor for adults?
by amother
9 Today at 1:01 pm View last post
A hotel in New York area for Shabbos sheva brachos
by amother
29 Yesterday at 5:30 am View last post
Sourdough workshop- NY area
by amother
8 Yesterday at 1:48 am View last post
Yeshiva area babysitter small group willing to pay
by amother
0 Tue, Mar 26 2024, 7:12 pm View last post
Ideas NY/NJ area
by amother
1 Mon, Mar 25 2024, 9:20 am View last post