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Help me help my daughter
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amother
Nemesia


 

Post Tue, Dec 07 2021, 9:31 pm
imorethanamother wrote:
Craniosacral therapy is complete nonsense. There is not one scientific paper or data on it being effective at all.

https://www.painscience.com/ar.....y.php

Absolutely false. There are links to many journal articles here
https://www.upledger.com/thera.....s.php

https://pubmed.ncbi.nlm.nih.gov/31892357/
https://pubmed.ncbi.nlm.nih.gov/28614671/

2 I found in a quick search... Im sure there are more that would be more pertinent but to say there isn't one paper saying its not effective is false.

That said, an evaluation by a neuropsych and knowledgeable MD should also be done.
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#BestBubby




 
 
    
 

Post Tue, Dec 07 2021, 10:00 pm
Anybody with stomach issues should take probiotics.

Also eating UNPASTERIZED fermented food like yogurt, kefir, sour kraut, kimchi, sour pickles.

GAPS diet is very good for people with stomach problems.
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amother
Gray


 

Post Tue, Dec 07 2021, 10:24 pm
Please call Relief. They should be able to refer you to someone who takes your insurance. An neuro-psych evaluation sounds like a very good step. They are confidential and gave me a great referral in the past.
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imorethanamother




 
 
    
 

Post Tue, Dec 07 2021, 10:56 pm
amother [ Nemesia ] wrote:
Absolutely false. There are links to many journal articles here
https://www.upledger.com/thera.....s.php

https://pubmed.ncbi.nlm.nih.gov/31892357/
https://pubmed.ncbi.nlm.nih.gov/28614671/

2 I found in a quick search... Im sure there are more that would be more pertinent but to say there isn't one paper saying its not effective is false.

That said, an evaluation by a neuropsych and knowledgeable MD should also be done.


Your first link is not a scientific article. It's a website that promotes this stuff, and as such, refuses to post all the negative articles. Most of the "links" are in random websites or random publications, with no peer review.

Your second link is about chronic pain.
Your third link is about breastfeeding.

If someone says my child has a learning disability and also has gastrointestinal issues, would I advise her to take eye drops?

Look, if you want to throw money at something, you can give some to me and I'll wave a magic wand over her head for you. Otherwise, I think we should be responsible and give the OP some scientific, data-driven leads. People have limited funds, and I think it's criminal to tell people to spend it on foolishness.
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honeymoon




 
 
    
 

Post Tue, Dec 07 2021, 10:59 pm
imorethanamother wrote:
Your first link is not a scientific article. It's a website that promotes this stuff, and as such, refuses to post all the negative articles. Most of the "links" are in random websites or random publications, with no peer review.

Your second link is about chronic pain.
Your third link is about breastfeeding.

If someone says my child has a learning disability and also has gastrointestinal issues, would I advise her to take eye drops?

Look, if you want to throw money at something, you can give some to me and I'll wave a magic wand over her head for you. Otherwise, I think we should be responsible and give the OP some scientific, data-driven leads. People have limited funds, and I think it's criminal to tell people to spend it on foolishness.


I don't have personal experience with cst but I know people who have seen huge success with it and calling it foolishness won't undo that. Medicine and surgery are not the only thing that work.
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amother
Nemesia


 

Post Tue, Dec 07 2021, 11:11 pm
imorethanamother wrote:
Your first link is not a scientific article. It's a website that promotes this stuff, and as such, refuses to post all the negative articles. Most of the "links" are in random websites or random publications, with no peer review.

Your second link is about chronic pain.
Your third link is about breastfeeding.

If someone says my child has a learning disability and also has gastrointestinal issues, would I advise her to take eye drops?

Look, if you want to throw money at something, you can give some to me and I'll wave a magic wand over her head for you. Otherwise, I think we should be responsible and give the OP some scientific, data-driven leads. People have limited funds, and I think it's criminal to tell people to spend it on foolishness.

There were several links in the first post. Some are journal articles. I can spend time searching for ones relating to learning disability, but I assume I would be wasting my time as you have made up your mind.

You said there NO journals. Its not true. I easily found 2. Many do get CST for pain or nursing issues. Those are very common reasons as well. Im not sure what you have against a therapy that many have seen success from. Maybe you had a bad experience with a practitioner or can't afford private therapies or something else entirely, but I in no way feel I wasted my money. Many medical treatments don't work either. I dont discredit them for everyone. Everyone has to find what works for them.

ETA.. ok I searched Craniosacral and ADHD. I still doubt you will be convinced but the information is out there...
https://www.researchgate.net/p.....dents'_symptoms_of_attention_deficit_hyperactivity_disorder

https://journals.sagepub.com/d.....83023
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amother
Lily


 

Post Tue, Dec 07 2021, 11:36 pm
imorethanamother wrote:
Craniosacral therapy is complete nonsense. There is not one scientific paper or data on it being effective at all.

https://www.painscience.com/ar.....y.php


Eh...I shared my personal experience with cst. You can take it or leave it.


Can you share your personal experience with it?
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amother
Gladiolus


 

Post Wed, Dec 08 2021, 12:00 am
With a medical and/ or emotional diagnosis, you can get her into a children's waiver program for respite and family services
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mha3484




 
 
    
 

Post Wed, Dec 08 2021, 10:54 am
amother [ Oldlace ] wrote:
Can you explain how you used the Explosive Child methods with an anxious child? I read the book and I think my child is anxious.


Sorry this is kind of a smattering of ideas.

When I internalized the ideas of kids do well when they can and not when they want to and when a kid is giving me a hard time, he is having an even harder time it changed the whole vibe of my house. The cycle of he gets triggered and reacts aggressively and then I react to that improved a lot. It reduced a lot of tension. I also was able to take a more calm approach to watch what sets him off.

I also think using a collaborative model of solving problems gives him back the feeling of control which helps him a lot to reduce feelings of helplessness. Asking him to contribute his own ideas to how to make a situation in his life is super empowering. What I like about the method is that the parent and child have to come to a mutually agreeable situation. If I or my husband say no then we have to keep working at it. Its not permissive let the kid make all the choices.
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amother
OP


 

Post Wed, Dec 08 2021, 11:18 am
amother [ Gladiolus ] wrote:
With a medical and/ or emotional diagnosis, you can get her into a children's waiver program for respite and family services


Why would I want to do this?
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amother
Diamond


 

Post Wed, Dec 08 2021, 11:26 am
Check out familial dysautonomia.
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amother
OP


 

Post Wed, Dec 08 2021, 11:34 am
amother [ Diamond ] wrote:
Check out familial dysautonomia.


not even close, not sure why you would throw out a diagnoses like that.
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amother
OP


 

Post Thu, Dec 09 2021, 11:14 am
amother [ Nemesia ] wrote:
Look into reflex integration. She sounds like she is very unintegrated. The galant reflex specifically is related to bladder control. Bodywork like CST may also be beneficial. And I agree with the posters who said to test for strep, lyme, mycoplasma, CMV etc.


I'm looking into retained reflexes and it actually sounds very much like this.

Who tests for this and treats this?
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amother
Nemesia


 

Post Wed, Dec 15 2021, 10:15 am
amother [ OP ] wrote:
I'm looking into retained reflexes and it actually sounds very much like this.

Who tests for this and treats this?

Generally done by OTs. I know Miriam Peykar has an office in Brooklyn where some of the staff does it and they take insurance There is also someone Fraidel Fleishman but I think she is more pricey. Im sure there are many others. Maybe other imas can chime in.
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amother
OP


 

Post Wed, Dec 15 2021, 4:10 pm
amother [ Nemesia ] wrote:
Generally done by OTs. I know Miriam Peykar has an office in Brooklyn where some of the staff does it and they take insurance There is also someone Fraidel Fleishman but I think she is more pricey. Im sure there are many others. Maybe other imas can chime in.


Thank You for your reply.

Is it better to do to an agency like pathways or private like to these people?
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