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Forum -> Children's Health
Elevated titers level PANDAS/PANS



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amother
OP


 

Post Fri, Sep 16 2022, 10:35 am
If your child has PANS/PANDAS, what were there titers levels? My son at 4 years old was just tested his level was 1510.
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amother
DarkPurple


 

Post Fri, Sep 16 2022, 11:03 am
My son had pandas with 150 and recurrent strep. Pandas is clinical diagnosis based on symptoms. Bloodwork is to find the trigger. Either way, if ur child has such high strep titers, even without symptoms, you should treat with antibiotics asap.(like if he came up.positive with a throat culture)
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amother
OP


 

Post Fri, Sep 16 2022, 11:04 am
His behavior is completely nuts. Hes been on and off antibiotics the past year.
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amother
Ginger


 

Post Fri, Sep 16 2022, 11:04 am
My son had 2100.

Good luck OP. Let me know if you find out a good regimen 😭
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amother
OP


 

Post Fri, Sep 16 2022, 11:05 am
amother Ginger wrote:
My son had 2100.

Good luck OP. Let me know if you find out a good regimen 😭


I think we need a support group. How is your son now? My son is only 4.5Sad
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amother
Starflower


 

Post Fri, Sep 16 2022, 11:13 am
My daughters onset was at 4.5. Her titers were in the 800’s. 6 years later, tons of aggressive treatment and she’s doing so much better bh. I don’t check titers anymore, I don’t find them particularly informative, I go off of behavior mostly. You can use this thread as a support group. I’m happy to share any info I have.
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amother
Ginger


 

Post Fri, Sep 16 2022, 11:19 am
My son is 7. He's been on antibiotics for 5 months. He seems to be doing better now BH but then randomly he'll regress...
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amother
Taupe


 

Post Fri, Sep 16 2022, 11:21 am
Starflower, what type of treatments did you do?
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amother
Starflower


 

Post Fri, Sep 16 2022, 11:24 am
amother Taupe wrote:
Starflower, what type of treatments did you do?
Everything lol

Antibiotics
Anti inflammatories
Anti histamines
Herbs
Supplements
Minerals
Diet
Homeopathy
Myofunctional treatment

Next on our list is Craniosacral therapy

Happy to share more details if anyone is interested
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amother
Taupe


 

Post Fri, Sep 16 2022, 11:36 am
My daughter has borderline strep titers. Not sure exact number but doctor doesn't think it's pandas and wants to treat the anxiety and other behaviors itself.

I'm convinced it's pandas, she's had so many positives in the past year and gave me such a hard time with the antibiotics. (Probably half of it was actually swallowed...)
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amother
Starflower


 

Post Fri, Sep 16 2022, 12:44 pm
amother Taupe wrote:
My daughter has borderline strep titers. Not sure exact number but doctor doesn't think it's pandas and wants to treat the anxiety and other behaviors itself.

I'm convinced it's pandas, she's had so many positives in the past year and gave me such a hard time with the antibiotics. (Probably half of it was actually swallowed...)
Titers have no effect on diagnosis. Diagnosis is based just on clinical presentation. Follow your gut and find a dr who will treat.
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GiGichai




 
 
    
 

Post Fri, Sep 16 2022, 1:14 pm
If anyone would like to join wastapp support group for pandas parents u can pm.
Hugs to all. It ain't easy.
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amother
Burgundy


 

Post Sat, Sep 17 2022, 6:26 pm
Check out tonsillectomy for pandas.
The doctors are not into taking out tonsils for recurrent strep anymore but I did three of my kids and they never got strep again.
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amother
OP


 

Post Sat, Sep 17 2022, 6:31 pm
amother Burgundy wrote:
Check out tonsillectomy for pandas.
The doctors are not into taking out tonsils for recurrent strep anymore but I did three of my kids and they never got strep again.
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