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Encopresis
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amother
Babypink


 

Post Tue, Feb 16 2016, 4:44 pm
Can someone tell me what they have done to see longterm results?I am seeing a top pediatric gi. and the stuff she told us to do isnt working. at first it did.

At this point I am being told to see a psychologist and they will work with my child. my dc isnt really motivated bec of the setback.

has anyone had success with the psychologist in combination to the medication and the rest of the stuff I do?

If this psychologist isnt able to get through to my child this child will need surgery. which I dont know at all what the chances of success is.

If you have any experience please post the childs age as that would help me.

I am also looking for chizuk. I am so down now.I am literally crying.

I know that hashem wants me to have extra love to this child. but its so so hard. this child has it for over 2 years! and nothing worked!. I feel like throwing in the towel. I just dont know what to do anymore.


PLEASE PLEASE only answer if you had this issue and know that what you have done worked. thats what I really need now. Anyone that doenst know any of this please dont post. Thanks. sorry I just need chizuk now.
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amother
Ruby


 

Post Tue, Feb 16 2016, 4:59 pm
we went through this for a few years with our DS. I feel your pain, it just feels like it's never going to end but really there is going to be an end in sight iyH soon. and those dirty underwears and smell ahhhhhhh I couldn't deal !! oh and he always wanted to sit on my lap of course!
My Ds went to a child psychologist and it was a great help. We worked out a plan that he must sit on the toilet three times a day after meals and even if he didn't need to use it, he would sit and it would relax him and open him up inside. I think that helped a lot. of course we continue to encourage him to make. We were on miralax for a few years and after 2 years or so it suddenly started clearing up. he was making more and not dirtying his underwear. it was such a miracle, but remember in just one day everything can be over.
of course the one time we saw a clean underwear we encouraged him and he felt amazing about himself. and remember they are really suffering and feel bad about themself.
Also another point I remember is that he had to become responsible for cleaning up his mess. he would have to take his underwear to a bucket of water and detergent we had set up and put it in there etc...
remember u need to be positive and encouraging and calm down. they feel when your angry and tense at them. I know how hard it but really you need to keep on saying to them, it's your body, and show them they have to be in control of their own bodies and that you are not taking them to heard. it's also a control issue so put the issue on them eventhough you continue to be encourage.
Good luck, I know how it feels to feel you have reached rock bottom and you cannot handle it, but remember it will get better. and as all the doctors told us, don't worry at their wedding they won't have this. lol like that gives me hope!
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amother
Ruby


 

Post Tue, Feb 16 2016, 5:00 pm
oh and it started at age 3....
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nyer1




 
 
    
 

Post Tue, Feb 16 2016, 5:13 pm
have you heard of Dr. Daum? people have had a lot of success with him.

please feel free to pm me
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almost




 
 
    
 

Post Tue, Feb 16 2016, 7:40 pm
I have experience with this, unfortunately. I know how difficult it is. You can PM me and I can give you more information. But my son is an advanced case. How long has your son had this problem?
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amother
Babypink


 

Post Tue, Feb 16 2016, 8:48 pm
Why are people assuming this child is a boy? lol it just gave me a laugh.

Yes I saw Dr. daum. I really cant comment on him-he was a disaster. he made it worse.

To the poster that talked about her child having this since 3. My child is way over that.

And a normal child.

Yes my child is sitting 3xs a day. I did realize dc isnt eating enough fiber and not drinking enough water.

At first when I started miralax and exlax things were so so good. Then all of sudden out of the blue dc regressed. And keeps on getting worse and worse even though nothing changed.

I will do what the psychologist tells me to although dh isnt positive it will work with dc.

This child is seeing someone for this issue. ok not licensed but someone in the know. But I dont see them accomplishing anything.

I will monitor the water intake and fiber intake and see if anything improves.

Thanks for mentioning all the poopy underwear. like its all full blown. as if dc is wearing a diaper.

Its so humiliating for me. I realize its not comfortable for them. But for some reason dc doesnt seem to mind too much. I dont see any emotion of sadness just fear of what mom will react like. Its weird

Normally when a child has an accident they react this child doesnt. It doesnt seem to be a problem.

One time this child didnt wnat to go to school bec didnt want the classmates to see it happen.

I was jumping for joy, cause that told me that this child actually has some care here. dont get me wrong I did feeel sorry.

Problem is this didnt help to get dc to change habits. like doing something about this.

In the begining of the program dc was motivated to do something but it wore off. got sick and tired of going to the bathroom 3xs a day, and for 7 min each time.

And eating fiber and drinking water. It was overwhelming and then dc just like didnt show interest anymore.
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amother
Babypink


 

Post Tue, Feb 16 2016, 8:56 pm
to ruby amother I really really appreciate your experience.

It gives me some hope.

Did you find that the psychologist helped break through?

Did you get help for yourself from psychologist?

I feel like a wreck, I am angry at dc most of the time. I lash out at dc all the time. I am feeling depressed about it. I cry about it a lot.

Dc cant have friends over or go to any. It makes me cry when I have to take that priveledge away.

How can I bring people or send to others with this problem. I mean dc is pooping large amounts in underwear! its gross and unbelievable!. I cant even believe there is such a problem out there. Ok I understand how it happens but still.....I am in shock.

Did you give miralax and exlax? did you need to give large amounts of fiber? and large amounts of water?
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amother
Babypink


 

Post Tue, Feb 16 2016, 8:58 pm
To almost amother.

Dc has it for about 2-3 yrs.
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amother
Babypink


 

Post Tue, Feb 16 2016, 8:58 pm
I have to stay anonymous to protect my child.
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amother
Babypink


 

Post Tue, Feb 16 2016, 10:14 pm
bumping this
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almost




 
 
    
 

Post Wed, Feb 17 2016, 10:20 am
Has your child ever done a cleanout? That is usually necessary just to clean out the system and make sure there is no stool that is causing a blockage. Any blockage will cause the rest of the stool to seep around it and will make it more difficult for your child to stay clean.

Have you tried enemas? Those can also be helpful in cleaning out the lower portion of the colon.

Encopresis is more than a psychological problem. However, it is a very good idea for your child to speak to a social worker/psychologist to deal with the fallout of this condition. It is difficult for a child who may be teased in school, cannot play at friends' houses, and is criticized at home too.

The child very likely doesn't know when (s)he smells bad. As much as it's frustrating, try to keep that in mind. Your child is likely frustrated too.

What type of surgery are you thinking might be necessary? Has the doctor actually suggested it?
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amother
Ruby


 

Post Wed, Feb 17 2016, 4:59 pm
amother wrote:
to ruby amother I really really appreciate your experience.

It gives me some hope.

Did you find that the psychologist helped break through?

Did you get help for yourself from psychologist?

I feel like a wreck, I am angry at dc most of the time. I lash out at dc all the time. I am feeling depressed about it. I cry about it a lot.

Dc cant have friends over or go to any. It makes me cry when I have to take that priveledge away.

How can I bring people or send to others with this problem. I mean dc is pooping large amounts in underwear! its gross and unbelievable!. I cant even believe there is such a problem out there. Ok I understand how it happens but still.....I am in shock.

Did you give miralax and exlax? did you need to give large amounts of fiber? and large amounts of water?


we did try a couple psychologists. one of them was so horrible that my child was stepping all over them. We did speak to the psychologist on our own a few times and that really helped.
I don't mean to make you feel bad, but the breakthrough of stopping to dirty himself is when we totally let go, were not angry, showed them were calm and that it is their issue. I understand your feelings, I had my really angry times, but really you need to calm down and let go, it will affect it so much. and my Ds was the same, he made that he did not care about it at all , but really he was suffering and the one time his underwear was clean he was so relieved and never saw him so happy. remember they are really suffering even if they put on the macho face. Also find out, if you should give the child a few enemas to jump start the system..I recall giving them a few over time. and remember they do regress..awhile after we thought everything was over, he dirtied his underwear 2 days in a row, I totally freaked. but we gave an enema and tons of fiber and it passed. but oh that was so scary.
Sending you hugs and iYH it will pass so soon and your pain will be forgotten forever!
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amother
Linen


 

Post Wed, Feb 17 2016, 5:51 pm
I have many years of experience, unfortunately. My son isn't cured though but his condition is controlled.

This will only work though if you've done a thorough clean-out. If you'll mention where you're located I may be able to recommend someone to help with that.

What we've been doing for the last year or so is, early each morning while he's still asleep, my husband, (wearing a latex glove) gives him 3 suppositories. When he wakes up an hour later he needs to go, and then he's clean for the day. This works best if it's done consistently. We came up with this approach after discussions with several dr's and natural-minded specialists. I wanted to help him keep going daily without any medications or laxatives, which may be more addictive over time.

I wish I could say I see improvement otherwise, but no. When we've tried to give him only 2 suppositories, it didn't work. If we skip a day, he leaks. I hate to depress you but this is a very very difficult condition to cure. At this point, since he usually doesn't soil, I try not to focus on it too much on a daily basis.

On a positive note, I'm happy to see that despite his condition he's a happy, confident, sociable kid. Don't think it's bound to destroy his self-esteem and confidence. Just avoid the shaming and on a simple level, let him understand why he's having accidents.

I'd also advise you to not bother washing soiled underpants. Just toss them, Hanes or Fruit of the Loom brands are quite inexpensive. Vinegar helps the smell come out of pants, I keep a spray bottle in my laundry room.
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amother
Brown


 

Post Wed, Feb 17 2016, 9:29 pm
My daughter has it from the age of 6 she is 8 now...she's been on mirilax for a year and we kept on talking how were going to fix the problem tog. Bh she rarely makes accidents but she is wet almost every day and we can't seem to fix it. Her bladder became very loose and she claims by the time she feels she can't always make it to the bathroom (and she does have bad smell when it happens not as bad when she used to do the real messy thingd)...bh she us doing awesome according and I'm hoping it will resolve fully...hugs to you, there are tons of pple suffering from this it's just a muted subject..
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happyone




 
 
    
 

Post Wed, Feb 17 2016, 9:58 pm
In response to brown amother, Are you working with a good urologist and gastro? First rule out any medical conditions that may require intervention .
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amother
Cerulean


 

Post Wed, Feb 17 2016, 10:16 pm
If you've tried everything and had no success, there is a system called a Peristeen. You can ask your doctor to find out about it. It's sort of like an enema but it is much more effective. If used, the patient will not have accidents. It's been used in England and has a very high success rate.
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amother
Brown


 

Post Wed, Feb 17 2016, 10:53 pm
Happy one: were working with her pediatrician..he claims if she's consistent with the excersize it should resolve..the problem is she has to do min 100 a day, by the time she's at 50 she claims her behind hurts..OP I wish you lots of luck! First set your mind to stay as calm as possible and keep talking to him/her about fixing it together..I think that was when my daughter's situation started looking better...
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amother
Linen


 

Post Thu, Feb 18 2016, 12:58 pm
Amother brown: can you be more specific about which exercises your child is doing?
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amother
Babypink


 

Post Thu, Feb 18 2016, 2:09 pm
to almost amother. yes I am going to the doctor to give dc a cleanout.

I am hoping it will jumpstart the backup dc has. I am hoping the psychologist will help. bec if not I am throwing in the towel and I just have no other solutions.

Dh wont do surgury aas of now. I have a very good GI.
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amother
Coral


 

Post Thu, Feb 18 2016, 5:47 pm
We had this with my son, who is also mildly on the spectrum. bh it cleared up when he was about 6 or 7. We didn't do anything special except give him laxatives on the advice of our gp and a specialist.
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