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DiGeorge syndrome

 
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amother




Pumpkin
 

Post  Fri, Nov 25 2016, 9:14 am
Just found out my son who is 14 months old has a genetic disorder called Digeorge syndrome. Does anyone have experience or know someone who had a child with this syndrome-
And how did the child do....
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amother




Royalblue
 

Post  Fri, Nov 25 2016, 11:19 am
Big hugs!! So sorry Sad

Does he also have TOF?


Last edited by amother on Wed, Feb 12 2020, 3:35 pm; edited 1 time in total
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sped




 
 
 
 

Post  Sat, Nov 26 2016, 3:15 pm
A few years ago, I worked with two children who have the syndrome. They were quite young - 2-4 years old. They were really great kids, fun personality, responded really well being worked with, and progressed really nicely. Do you have any specific questions? The children aged out of the program I worked in.
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amother




Brown
 

Post  Wed, Feb 12 2020, 3:30 pm
Anybody can tell me if they know anybody with this issue and how the child is doing?
My daughter very likely has this.
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amother




Wheat
 

Post  Wed, Feb 12 2020, 4:29 pm
I worked with a kid last year who has DiGeorges. (I'm a speech pathologist)
Cognitively, he's fine. Very smart, very social, great sense of humor.
He has speech difficulties, specifically with articulation and prosody.
He also gets PT and OT.
He goes to the resource room for math.
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amother




Brown
 

Post  Wed, Feb 12 2020, 8:23 pm
Thanks so much!
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Kiwi13




 
 
 
 

Post  Wed, Feb 12 2020, 8:33 pm
You can PM me if you’d like.
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amother




Ruby
 

Post  Fri, Feb 14 2020, 6:42 am
Hi I can put you in touch with someone that I know who has a child with Degeorge. Pm for details.
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