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Baby was born with her feel a little curled in
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purpleonion




 
 
    
 

Post Thu, May 03 2018, 4:30 pm
Definitely go for a second opinion
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amother
Cerise


 

Post Thu, May 03 2018, 5:46 pm
Definitely go for a second opinion. As someone said it makes a big difference if the foot is flexible or not. Ds was born with his feet in. Dr said with stretching exercises and time it would resolve on its own and bh it did. Took till he was over 2
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amother
Pumpkin


 

Post Thu, May 03 2018, 6:57 pm
amother wrote:
My son was born with club foot (what you are describing) if you don't take care of it there will be issues. You need to take your baby to a pediatric orthopedist ASAP!! My baby was cast within 24 hours of birth. He wore corrective shoes with a bar turning his feet out for a year and slept in them for 4 years. And now has NO additional surgeries. I sit in the office with parents who either didn't follow through and use the corrective shoes or decided it would "correct it self" they hate themselves. I have seen mothers sobbing because they are now operating on their 4 year old when they could have taken care of this at birth. Get a TOP 2nd opinion on this one!! Don't regret it later.

MY dd was born with a clubfoot too. This ^^^ is exactly what I did for the first few years of her life. She was casted within 24 hours of birth too..barely weighing 4 lbs..was it a hassle yes..it had to be changed constantly, she had the bar, she had night braces..and now she is a preteen who can skate and run races and hike and except for having feet that are slightly different sizes you cant tell that she had any issues..take her to a specialist you wont regret it.
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out-of-towner




 
 
    
 

Post Thu, May 03 2018, 9:26 pm
I haven't really read all of the responses, but did the doctor say that it is club foot? If it isn't club foot then no, they generally don't brace anymore for these types of things. My DD was also born with a severely bowed leg and I had my family down my back as to why she wasn't braced right away. The short answer is that it's complicated. For my daughter it was a progression. I didn't think based on what I saw that she would be able to crawl or walk, but BH she did everything within the normal time range, although she did need the help of PT. But progression is the key term here, and continues to be. By 6 months the Dynamics of the legs had changed, there was a severe discrepancy with a similar bowing. The orthopedist told us to wait it out. We see him every 3-6 months, or when we have seen a change. About a year ago at 3.5 years old, the orthopedist determined that it was time to do surgery which BH was successful. Her discrepency is now about 2.5 centimeters when at one point it had been 2.5 inches.

If you are in the NYC area, I would be happy to recommend our pediatric orthopedist, who is beyond amazing.

Sorry if my thoughts appear scattered. My brain isn't up to writing a Megilla, but anyone is welcome to PM me for more info. I'm happy to help.
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hannabanana




 
 
    
 

Post Fri, May 04 2018, 12:55 am
amother wrote:
Please do some research and go for a second opinion. It is so much easier to treat when they are newborn. I have two children with clubfoot. We went thru the casting for six weeks and shoes for 4 yrs. It was worth all the hassle bec they walk perfectly now bh. Noone even knows that they had clubfoot as babies. Good Luck!!


Oak please pm me.
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amother
Puce


 

Post Fri, May 04 2018, 1:13 am
out-of-towner wrote:
I haven't really read all of the responses, but did the doctor say that it is club foot? If it isn't club foot then no, they generally don't brace anymore for these types of things. My DD was also born with a severely bowed leg and I had my family down my back as to why she wasn't braced right away. The short answer is that it's complicated. For my daughter it was a progression. I didn't think based on what I saw that she would be able to crawl or walk, but BH she did everything within the normal time range, although she did need the help of PT. But progression is the key term here, and continues to be. By 6 months the Dynamics of the legs had changed, there was a severe discrepancy with a similar bowing. The orthopedist told us to wait it out. We see him every 3-6 months, or when we have seen a change. About a year ago at 3.5 years old, the orthopedist determined that it was time to do surgery which BH was successful. Her discrepency is now about 2.5 centimeters when at one point it had been 2.5 inches.

If you are in the NYC area, I would be happy to recommend our pediatric orthopedist, who is beyond amazing.

Sorry if my thoughts appear scattered. My brain isn't up to writing a Megilla, but anyone is welcome to PM me for more info. I'm happy to help.


Hi I’m not OP but do you mind sharing which orthopedist you use? Been to three with DC
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out-of-towner




 
 
    
 

Post Fri, May 04 2018, 1:27 am
Sure. Dr. Jon Paul Dimouro in LIJ.
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amother
Puce


 

Post Fri, May 04 2018, 1:37 am
out-of-towner wrote:
Sure. Dr. Jon Paul Dimouro in LIJ.


Thanks. Never heard of him before
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out-of-towner




 
 
    
 

Post Fri, May 04 2018, 6:09 am
amother wrote:
Thanks. Never heard of him before


He's young, so his name isn't well known yet. But he is excellent, very hands off in terms of surgery. He won't operate unless he truly feels that it's the right thing to do. I know from both my daughters experience, and from a friend who has a kid with a similar issue that all other doctors were saying surgery, major, now and he felt that it wasn't as urgent and didn't have to be such a major surgery. He also happens to have an amazing bedside manner, super sweet super caring and super sensitive!
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amother
Puce


 

Post Fri, May 04 2018, 7:49 am
out-of-towner wrote:
He's young, so his name isn't well known yet. But he is excellent, very hands off in terms of surgery. He won't operate unless he truly feels that it's the right thing to do. I know from both my daughters experience, and from a friend who has a kid with a similar issue that all other doctors were saying surgery, major, now and he felt that it wasn't as urgent and didn't have to be such a major surgery. He also happens to have an amazing bedside manner, super sweet super caring and super sensitive!

He sounds great!
We had a truly amazing experience with Dr. David Feldman.
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amother
Lime


 

Post Fri, May 04 2018, 9:16 am
amother wrote:
My son was born with club foot (what you are describing) if you don't take care of it there will be issues. You need to take your baby to a pediatric orthopedist ASAP!! My baby was cast within 24 hours of birth. He wore corrective shoes with a bar turning his feet out for a year and slept in them for 4 years. And now has NO additional surgeries. I sit in the office with parents who either didn't follow through and use the corrective shoes or decided it would "correct it self" they hate themselves. I have seen mothers sobbing because they are now operating on their 4 year old when they could have taken care of this at birth. Get a TOP 2nd opinion on this one!! Don't regret it later.


This, had the same situation, and did the exact same thing, joint disease has a top Notch clubbed foot center, please take care of it while it’s still easy, the cast thing has to be started immediately or you might miss the window where their bones are still soft
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hannabanana




 
 
    
 

Post Fri, May 04 2018, 9:25 am
Dr herzenberg in mount Sinai is great we traveled from ny to Baltimore very week for 8 weeks. These drs are top; Dr Herzenberg, dc David Feldman, or dr shcer.
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amother
Mauve


 

Post Fri, May 04 2018, 9:33 am
OP here. thanks for all your responses. The opinion I got was from a pediatric orthopedist btw and he did that that it's flexible which is why I am asking. Can anyone recommend another specialist in this field?
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amother
Puce


 

Post Fri, May 04 2018, 10:54 am
amother wrote:
OP here. thanks for all your responses. The opinion I got was from a pediatric orthopedist btw and he did that that it's flexible which is why I am asking. Can anyone recommend another specialist in this field?


Dr. Feldman is top! Took my DC to pediatric orthopedist n she didn’t realize feet weren’t 100% flexible. Dr. Feldman was only doc to realize it
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out-of-towner




 
 
    
 

Post Fri, May 04 2018, 6:48 pm
Dr. Dimouro is amazing. We just saw him today again for a follow-up, and he is so caring, and so professional and just really knows his stuff and considers all factors before offering an opinion, and is happy to discuss conflicting views and take them into consideration. But again, I want to throw it out there that it may not be club foot. In my DDs case it was a severely bowed tibia and the treatment is drastically different. I had family down my back questioning why something wasn't done immidiatly, and the answer was that it was much less straightforward than it seemed. Her condition is a progression and it changes.

FTR it is being treated as Blount's disease. And again I would welcome any specific questions.

Gut Shabbos!
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ValleyMom




 
 
    
 

Post Sun, May 06 2018, 4:16 am
Its called Clubbed Feet.
You MUST see a doctor that deals specifically with Clubbed Feet.
My son way born 17 years ago and I spent several months seeing Dr. Ponseti- he was a world famous specialist that deals specifically with this condition.

There is a Posenseti Pavilion at a hospital in NYC that deals specifically with this condition.
Unfortunately Dr Ponseti passed away a few years ago- his obituary was several pages long in the NY Times. He was an amazing doctor and made remarkable differences in mnay childrens lives. If you need more help PM me.
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ValleyMom




 
 
    
 

Post Sun, May 06 2018, 4:19 am
SORRY- I am NOT a doctor.
What I meant to see in my haste was IF IT IF clubbed feet....
I urge you to see a doctor that specializes in the Ponseti technique to find out what your child has going on.
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amother
Taupe


 

Post Sun, May 06 2018, 10:18 am
My daughter is a young adult now. She walks with her feet toed in. I wish I would have gone for a second opinion to see what could be done for her to walk straight. It effects her walking and her back hurts her. She needs to do physical therapy to correct it now ( surgery not an option ) I wish I could have been a smarter young mom and know to look for a solution then.
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amother
Yellow


 

Post Sun, May 06 2018, 1:20 pm
out-of-towner wrote:
Sure. Dr. Jon Paul Dimouro in LIJ.


We just saw dr. lior shabtai of LIJ for a completely different issue, I believe he is a partner. He was also excellent. We had started with a top orthopedist who actually sent us to him bec. of his pediatric specialty.
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