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Ehlers-Danlos syndromes 



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amother
Tan


 

Post Mon, Feb 04 2019, 3:16 pm
can anyone share with me about this?
I was told my daughter probably has this. I want to understand more whawhat it is, what I can do about it, and how if effects emotion/behavior.
anyone with experience with this..m please share. thank you
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amother
Copper


 

Post Mon, Feb 04 2019, 3:41 pm
I work as an OT and I have had at least one pediatric patient with EDS. She had no emotional/ behavioral involvement, though... As far as other symptoms go, there is a range. Do you have any specific questions I can answer as an OT?
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amother
Scarlet


 

Post Mon, Feb 04 2019, 4:17 pm
My daughter-in-law has this, and probably a few of my grandchildren too. I am not aware of any effect on "emotion/behavior." But there is more than one kind of Ehlers-Danlos, with physical effects ranging from hardly anything to significant.
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