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Forum
-> Children's Health
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amother
OP
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 Thu, May 30 2019, 7:40 pm
A close relative of mine’s child was recently diagnosed with this. She is 7. It’s an auto immune disease of inflammation of the bones. She already has chrones. & getting infusions for that every month.
I feel terrible for her! & her parents. She is in a lot of pain. I thought it would be helpful if anyone here had any ideas of where to go for some resources.
I’ve come onto ima mother myself in the past with super private issues and was helped beyond belief. I felt so alone & I was able to get some great ideas & chizuk for my own situation.
Thought I’d try for her.
Would love any help at all!!!
Thanks so much!
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amother
Papaya
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Thu, May 30 2019, 7:44 pm
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I'm sorry to hear this. Is she seeing an excellent pediatric rheumatologist?
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amother
OP
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Thu, May 30 2019, 7:45 pm
I don’t know how excellent ....
But her parents do say they think care she is receiving is good.
What can you tell me about it?
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dankbar
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Thu, May 30 2019, 7:46 pm
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There is a specific diet to reverse auto immune. Try a health coach
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amother
OP
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Thu, May 30 2019, 7:48 pm
Specific for this disorder?
Or generally any auto immune ?
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dankbar
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Thu, May 30 2019, 10:20 pm
For any automimmune, digestive issues & inflammation.
Usually some fermented foods & then they do an elimination diet to see what bothers person. They also tell you which foods to avoid to prevent inflammation.
They focus on healing gut. Leaky gut causes particles of food to go into blood stream which cause the auto immune diseases.
Many go off gluten dairy sonetimes also legumes or whatever else triggers them.
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amother
Papaya
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Fri, May 31 2019, 9:42 am
This is a serious disease. I would recommend following all medical advice and not playing around with alternative remedies or diets.
The medications used to treat can sound very scary, but unfortunately they are necessary and can be very effective when the right medication is found. As long as the treatment team is good, follow all medical advice
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