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Child with hearing loss



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Libbywiess




 
 
    
 

Post Tue, Jun 04 2019, 10:36 am
Hi everybody I will be very thankful if someone can help me with my 11 year old child who where suffering from moderate hearing loss and needs hearing aids but don't want to wear it and he's very uncomfortable with it and he is shamed about it and he's asking me all the time for how long he will need it and it's very sad even for my husband so please if you have any experience with this I will be very thankful thanks
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amother
Peach


 

Post Tue, Jun 04 2019, 10:49 am
I am a speech therapist and I specialize with hearing impaired kids.
All the kids I work with either have hearing aids or cochlear implants.
Explain that it's like glasses. Some kids need some extra help seeing, so they wear glasses. Other kids need extra help hearing, so they have hearing aids.
You can get hom the type that fits inside his ear and is not visible.
Or you can skip the hearing aids altogether, and start with sign language (NOT RECOMMENDED).
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Libbywiess




 
 
    
 

Post Tue, Jun 04 2019, 10:06 pm
Thanks for your time but I already tried to explain to him that but he didn't want to recognize it and keep saying that the kids are looking at him all the time when he wears it and the doctor told me already that it's much harder for an older child to get used to it then small kids and what you are saying about sign language he's not deaf so it's not an option and why we took the one behind the ear is because the doctor recommended this that it's more helpful then the invisible in the ear
Anyways thanks
And if someone can help me with any experience it will be a big help also I wane change audiologist so if someone knows about a good audiologist in the monsey area
Thanks
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ra_mom




 
 
    
 

Post Tue, Jun 04 2019, 10:13 pm
I understand that the outer aid is more recommended for his age, but if he can't handle it and won't wear it, it's time for the inner option.
Do you need support of people who have BTDT? I have a relative who has. I think there are also organizations.
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amother
Goldenrod


 

Post Wed, Jun 05 2019, 12:28 am
I'm sorry you have to go through this with your son. My child is 9 and has worn hearing aids since age 2 and implants more recently. I know it's not the same as an older kid at all because he grew up with it but just wanted to say I at least understand part of it.
Being different is hard.
Does he recognize a difference in the hearing with the aids on? Maybe someone can talk to the class about it when he's not present?
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amother
Purple


 

Post Wed, Jun 05 2019, 12:34 am
Don't know if this is helpful, but my child has also had hearing aids since birth, and more recently implants. Maybe because we were thrust in completely, right off the bat, we've all come go accept it--dh and I cried, denied, grieved, and accepted it. We decided that dc would never feel shame resonating from us. And BH dc is doing well.

Perhaps because your childs hearing loss is less extreme, you've kind of wavered in between acceptance and grief. In my very humble, sympathetic, opinion, the biggest gift you can give your child is normalizing and accepting his situation. It is what it is, and all the wishing and yearning in the world wont make it go away. There's no shame or blame, just a minor inconvenience.
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amother
Teal


 

Post Wed, Jun 05 2019, 12:40 am
I have a child with hearing loss, he is wearing hearing aids since he was a baby and he’s now 8. When he was a baby I had a very hard time with it, and a wise mechanech told me the smartest thing - he will feel what you feel. If you are ashamed and uncomfortable he will feel that way, but if you are confident and treat him like everyone else he will be confident without having to say a word. And that’s exactly what happened. I worked very hard on myself and Bh my son is the most happy, confident, we’ll-adjusted child you’ll meet. It’s obviously a lot harder with an eleven-year old, but I think this applies to children and situations of all ages, specifically your husband because you say that he’s taking it hard. Good luck!
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FranticFrummie




 
 
    
 

Post Wed, Jun 05 2019, 12:46 am
I have been very hard of hearing since I was 3 (due to a viral illness). I so wish I had hearing aids from that age! My grades really suffered, because a lot of the time the teacher had her back to the class while she was talking, or I couldn't hear my name being called for a question. I got labeled as a "daydreamer" for many years, when I genuinely didn't know what was going on.

I had to teach myself how to lip read, and to this day it's not easy. I'm actually looking forward to getting hearing aids now, because I finally have the insurance to cover it. I've been wanting them for years, but couldn't afford them.

Tell your son how lucky he is to have them, and that some kids don't hear well, and their parents can't get them help. Please tell him it's just like glasses, and point out everyone you see who has aids, so he knows he's not alone.

Believe me, it's far more embarrassing to be saying "What?" all the time, than it is to wear a small bit of plastic.
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amother
Saddlebrown


 

Post Wed, Jun 05 2019, 12:53 am
Posting anonymously because I don't want anyone to figure out my screen name based on my information. I got my first hearing aid when I was 8 and now it's a few decades later. Best advice is for you to model acceptance and openness and he will eventually be matter of fact about it as well. It's the healthiest attitude, to learn how to navigate life with curious people. Why not have take it off when someone looks and show him how it works, how cool it is? There's different cool behind the ear colors too. Think it's cool and give him that message too.
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dvoras




 
 
    
 

Post Wed, Jun 05 2019, 1:40 am
Go to dr. Lawrence lustig (world renowned hearing loss specialist), at Columbia he is the best for this discussion, his team of audiologists are top notch
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