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Promise me it gets better!
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amother
OP


 

Post Sat, Oct 26 2019, 8:41 pm
My poor, poor, eczema covered baby keeps waking up in hysterical tears and is scratching non-stop, even while sleeping.
BTDT moms, how do you deal with watching your child being in constant pain and not being able to do anything about it? And can somebody out there tell me that there is an end to the suffering?
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anonymrs




 
 
    
 

Post Sat, Oct 26 2019, 8:48 pm
There is definitely what to do to make baby more comfortable. BTDT. What is your baby eating and what are you using on baby's skin-detergent,soap/shampoo, and cream?
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amother
Crimson


 

Post Sat, Oct 26 2019, 8:49 pm
Do you know what causes the eczema yet? Food or environmental?
Have you seen a specialist? Have they suggested wet pack or other methods to calm the flareup?

I'm sorry your baby is going through this!
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amother
Amber


 

Post Sat, Oct 26 2019, 8:54 pm
So sorry btdt it’s horrible to watch. My ds had sever eczema he had open wounds that kept getting infected and my doctor kept telling me it has nothing to do with food or what I eat since I was only breastfeeding. Turns out when dc was about 8 months I gave him a little pudding on a spoon and he had a severe allergic reaction. Had him tested after that for all foods and the results was that he was allergic to egg nuts and milk. Once I kept him off these food and stopped breastfeeding it cleared completely Bh. I also started to give him formula I think it was called neonate.
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amother
OP


 

Post Sat, Oct 26 2019, 8:56 pm
There are definitely food allergies that we know about and probably some more food and environmental allergies that we are unaware of since we didn't complete testing yet. We're trying to stay away from all common allergens meanwhile. Using special shampoo and detergent.
We've seen an allergist (and have more appointments scheduled. ) Still looking for a decent dermatologist. One doctor did suggest the wet wraps/packing but is there any way to do that on the face?
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shanarishona




 
 
    
 

Post Sat, Oct 26 2019, 8:59 pm
Zyrtec daily?
Creams?
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amother
Crimson


 

Post Sat, Oct 26 2019, 9:03 pm
You can try using an eczema suit to prevent scratching at least...
https://www.adrescuewear.com/eczema-suit/
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amother
Vermilion


 

Post Sat, Oct 26 2019, 9:09 pm
Scratch sleeves! They have a website. Size down. They are life savers. People probably will know who I am although Anon just from the recommendation. I swaddled my baby when it got so bad, I bought an arm swaddle on Amazon, only for the arms. It was a life saver! Allergies to the Moon but keeping off them cleared it eventually by 16m with occasional flare ups. Only Cotton clothes, linen, blankets. Gentle detergent, we use all free and clear, clothes that cover feet = less scratching. Nothing to cover face. Just moisturize after bath. Use gentle soaps. Honest, unscented is decent. No steroid cream!! Especially on the face. Focus on keeping baby happy = less scratching during the day. Takes a ton of energy Bec also requires more holding etc.good luck
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amother
OP


 

Post Sat, Oct 26 2019, 9:15 pm
amother [ Vermilion ] wrote:
Scratch sleeves! They have a website. Size down. They are life savers. People probably will know who I am although Anon just from the recommendation. I swaddled my baby when it got so bad, I bought an arm swaddle on Amazon, only for the arms. It was a life saver! Allergies to the Moon but keeping off them cleared it eventually by 16m with occasional flare ups. Only Cotton clothes, linen, blankets. Gentle detergent, we use all free and clear, clothes that cover feet = less scratching. Nothing to cover face. Just moisturize after bath. Use gentle soaps. Honest, unscented is decent. No steroid cream!! Especially on the face. Focus on keeping baby happy = less scratching during the day. Takes a ton of energy Bec also requires more holding etc.good luck


We already keep hands covered at night and by day during really bad outbreaks. Baby has reacted negatively to most of the moisturizers we've tried and the other ones don't seem to help. I did just get a new brand of shampoo (supposedly hypoallergenic, was actually recommended on one of the recent threads here.) But I guess I'll go back to the old brand just in case.
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amother
OP


 

Post Sat, Oct 26 2019, 9:16 pm
amother [ Crimson ] wrote:
You can try using an eczema suit to prevent scratching at least...
https://www.adrescuewear.com/eczema-suit/


Did you try these?
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amother
Vermilion


 

Post Sat, Oct 26 2019, 9:22 pm
amother [ OP ] wrote:
There are definitely food allergies that we know about and probably some more food and environmental allergies that we are unaware of since we didn't complete testing yet. We're trying to stay away from all common allergens meanwhile. Using special shampoo and detergent.
We've seen an allergist (and have more appointments scheduled. ) Still looking for a decent dermatologist. One doctor did suggest the wet wraps/packing but is there any way to do that on the face?


Please don't do the wet wraps, Especially on the face. The steroids, Although might be minimal are not worth it.
Tubby Todd cream is one we like. Creams are not a cure so just have that In mind. You seem to be doing a good job staying off the common allergies. Testing is great but not accurate at so young. We did it anyways. Dairy, gluten, soy are good starters. Other common Allergies are nuts, fish, eggs are another few. I think there are few more but I cant remember off hand at this hour.

I went crzy with the eczema and it was so hard to watch. Another thing that helped us is homeopathy. Many things you might find trigger the Eczema and Dr might say it's not an allergy. Trust your gut and follow it. I've found many big triggers that way.

Eczema is usually linked to gut issues. A regular Dr likely cannot help with that but there are people out there if the hollistic route interests you. Regular pre / probiotics did not work for us but we are now going to work with someone to help build up baby's system. Eczema is 99.9% gone but dealing with other related issues.
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amother
Vermilion


 

Post Sat, Oct 26 2019, 10:00 pm
Scratch Sleeves

So these are the scratch sleeves. I dont recommend the Pjs, they are HUGE.
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amother
Babyblue


 

Post Sat, Oct 26 2019, 10:11 pm
A little bleach in the bath helps my baby, followed by a full coat of an emollient such as A & D ointment, with extra care to coat underarm, in between chub, etc. Do the full 100 item scratch test or blood test because often very random allergies are further aggravating the skin.
The studies are emerging that where they used to think allergies caused eczema, it's really a chicken and egg situation. The eczema skin is missing a moisture layer that keeps food and environmental particles out, so these particles get past the skin and cause immune responses, leading to allergies. The sooner the eczema is treated, the better, but not with cortisones unless absolutely necessary and even then for the shortest amount of time possible. NIH has a treatment protocol with creams, moisturizing and bleach that really works many times.
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Teomima




 
 
    
 

Post Sat, Oct 26 2019, 10:12 pm
My daughter had horrible eczema and I tried all the special soaps and creams recommended. The one thing that finally helped was to stop bathing her. No matter what I used, turns out even the water was too drying and exacerbating the situation. When I stopped bathing her regularly things started improving drastically.

(Obviously I was still bathing her occasionally, but no more than twice a week max.)
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shanarishona




 
 
    
 

Post Sat, Oct 26 2019, 10:29 pm
I recently found a Manuka honey cream on amazon that doesn’t burn my eczema boy BH. Most creams burn.,
Not sure re safe for baby
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Lydia




 
 
    
 

Post Sat, Oct 26 2019, 10:37 pm
No extra advice, here, OP. Just a word of encouragement....

Most babies start to improve as they get older, just because their bodies get more mature. You'll also do testing and try different remedies, and start to understand what works for your kid. It will get better.

It's a desperate feeling not being able to ever sleep because the baby is kvetching and scratching all night. It's really terrible. Even if you're not keen on the idea of using steroids (I'm not myself), it's worth it if the baby and you can get some relief, even if it's just every few days. You have to sleep sometimes so you can be a good parent. And baby not sleeping actually can make the eczema worse.

Hang in there.
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amother
Vermilion


 

Post Sat, Oct 26 2019, 10:41 pm
amother [ OP ] wrote:
We already keep hands covered at night and by day during really bad outbreaks. Baby has reacted negatively to most of the moisturizers we've tried and the other ones don't seem to help. I did just get a new brand of shampoo (supposedly hypoallergenic, was actually recommended on one of the recent threads here.) But I guess I'll go back to the old brand just in case.


Hi,

I keep checking in on your thread and I missed this response! Sorry. Which coverings do you use on the hands? How old is baby?
I like the scratch sleeves because they are cotton inside and silk on outside. So its comfortable for baby to wear but they dont injure themselves by scratching. I found that all cotton gloves and pjs hand covers were too rough and they were able to scratch quite well despite being covered.
Regarding shampoos, what are the two kinds that you have trialed? Can you please share the name or a link? I like the Puracy one, no sulfates and very clean ingredients. Honest also works. Key is also frangrance free.
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amother
Vermilion


 

Post Sat, Oct 26 2019, 10:45 pm
Teomima wrote:
My daughter had horrible eczema and I tried all the special soaps and creams recommended. The one thing that finally helped was to stop bathing her. No matter what I used, turns out even the water was too drying and exacerbating the situation. When I stopped bathing her regularly things started improving drastically.

(Obviously I was still bathing her occasionally, but no more than twice a week max.)


Yes, this is another thing that we have been sticking to. Baths are usually 2x a week. We really try to limit it. if your baby is really little and not getting dirty outside etc, definitely worth looking into the no soap method + moisturize right after bath without fully drying. It helps to lock in moisture.

For face, I know sometimes it gets gross from fabric particles and all the scabbing. In those cases, I would take a warm washcloth and pat clean, sometimes would squeeze a bit of moisture, but not a full bath.
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amother
Vermilion


 

Post Sat, Oct 26 2019, 10:47 pm
Lydia wrote:
No extra advice, here, OP. Just a word of encouragement....

Most babies start to improve as they get older, just because their bodies get more mature. You'll also do testing and try different remedies, and start to understand what works for your kid. It will get better.

It's a desperate feeling not being able to ever sleep because the baby is kvetching and scratching all night. It's really terrible. Even if you're not keen on the idea of using steroids (I'm not myself), it's worth it if the baby and you can get some relief, even if it's just every few days. You have to sleep sometimes so you can be a good parent. And baby not sleeping actually can make the eczema worse.

Hang in there.


Steroids very often make eczema worse. itll look good for a day or two and then come back worse than before. Its also not recommended for the face! A big no no. Also, by using steroids, lets say it does cosmetically keep it away, there is no way to see what is causing reactions or really helping/not helping since symptoms are constantly being masked. Eczema is not a skin issue, its an internal issue = inflammation from the inside caused by something. Need to remove the triggers and heal the source.
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amother
Slategray


 

Post Sat, Oct 26 2019, 10:56 pm
We were recommended omega 3 and vit D, which seemed to help. We didn't have such a severe case though. Wishing your baby a speedy path to complete 'eczema free' zone.
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