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My children on growth hormones AMA

 
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amother




OP
 

Post  Thu, Nov 07 2019, 9:03 am
Reading the other thread and reading many threads on this topic here. I find that a lot of people have misconceptions about growth hormones. Why they are used and if they are good. After years of going to doctors and questions about my child's health we discovered she was growth hormone deficienct. And the progress she has made on them has been amazing. The research that I have read and people who I have talked to have made me understand a lot more about growth hormones in children and what they do. Seeing some people say I will never do that is very concerning because it's not fair for your child to just say that without understanding what they are really there for. ( Possibly facing long-term side effects from not using) I would never recommend someone to use growth hormones for no reason good reason or because it's cool to be taller. It's very expensive we're always fighting with insurance company. We have to go to the doctor very often for progress they have to do blood regular to make sure everything's okay. And it's a daily shot you have to remember to take it I have to pack it up when you go away has to be refrigerated. So just so you should know 2 children on them now oddly enough for a very different reason one is growth hormone deficienct. And one is labeled ISS .
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amother




Pearl
 

Post  Thu, Nov 07 2019, 9:23 am
What are the reasons why you're giving it? when did you realize you should be doing something about said reasons? how did you do your research? where'd you start?
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amother




OP
 

Post  Thu, Nov 07 2019, 1:41 pm
amother [ Pearl ] wrote:
What are the reasons why you're giving it? when did you realize you should be doing something about said reasons? how did you do your research? where'd you start?

I am going to answer in 2 post one for each child I will start with my growth hormone deficienct child .
It really started before she was born she wasn't growing well in utro. When she was born she seemed fine I didn't think to much into it. she did breastfeed she had issues and did some bottles also. At about 7 months she stopped nursing on her own and thats when it all got really bad.( interesting I read babies can get some hormones from Mommy's mik)
She was constantly sick always at the Dr very delayed. So really a lot of different things going on. At about 9 months her growth curve was flat and by 12 months it was dropping.now being small and not growing are not the same even with short parents. We ran from specialist to specialist doing all different sorts of tests trying to find an answer. At one point they took out her adenoids and tonsils hoping that will help ( and outher reasons) and it didn't do much. At about two and a half we did go to the endocrinologist and the initial blood work didn't seem as though she was not growth hormone deficienct . She went from ages 2-3 with no growth and no weight gain and no answers. Finally the GI put her on an appetite stimulator medication hoping that would help and also we add feeding therapy hoping that would help. And that's when she started gaining weight and we were happy with the progress. At her five-year-old visit the pediatrician noticed her weight was catching but her hight didn't only not play catch-up but was slowing again. So back to the endocrinologist we went and at that point we did the growth hormone stimulation test. Where my endocrinologist thoght that my daughter was more of an ISS Bec of her blood work. Shockingly enough when we got the results back she was super deficient she wasn't making nothing but she was really low. They like to see numbers above 10. 7 to 10 is kind of a gray area she was a little over 3. At that point we were sent for a brain MRI to make sure nothing is growing on the pituitary gland making it not produce enough. Bh there was nothing on it but they did see on MRI what was causing her deficiency. Our insurance approved it without an appeal which is crazy amazing and just shows how badly she needed it. She is also considered SGA which means she needs to take a little bit extra to help. If I can show you a picture of my child who was tiny had a baby face and just did not look her age at almost 6 to what happened once we started was amazing. Starting to grow and change was amazing was also kind of hard emotionally for me seeing my " baby" just start changing so fast . We had to switch endocrinologist my new Dr loves looking at her old chart cuz it's just so amazing. I see her around friends now and she is at a similar hight. a lot of people asks so why don't I just stop now she's growing. And the answer is if I stop the meds her growing stops . Her overall health is better she's not always sick anymore. For now we need to do at until her bones close then to do you another stimulation test. Since adults who don't produce enough growth hormones lack muscle and tend to get very exhausted easily. Also another interesting fact is her bone age is not delayed when you are mature that in your peers you hope your bone age is delayed that usually shows a late bloomer.
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