Home

Has anyone out there have a child with NF1?

 
Post new topic   Reply to topic    Forum -> Children's Health


View latest: 24h 48h 72h


amother




OP
 

Post  Sun, Jan 05 2020, 8:13 am
Hi, I'm looking for some support. I don't know of any other yidden with this condition. My son is 7. He was diagnosed a few years ago. I could do with hearing some positive stories please if anyone has? Thanks
Back to top

happyone




 
 
 
 

Post  Sun, Jan 05 2020, 9:27 am
please call Chai Lifeline . If you are referring to neurofibromatosis type 1, I know of two clients they have that I met years back at a shabbaton, but dont have contact info. They would be able to provide support and networking opportunities.
Back to top

amother




OP
 

Post  Sun, Jan 05 2020, 9:46 am
Thank you so much
Back to top

slmom




 
 
 
 

Post  Tue, Jun 02 2020, 10:33 pm
Hi,
I have not visited this site in a while.
We do have a support group for Mothers of children with NF1. If you are interested or would like more information, please email me at
skindparent@gmail.com
Back to top

amother




OP
 

Post  Wed, Jun 03 2020, 12:36 am
Hi, thank you so much slmom!

I emailed you Smile
Back to top
Recent Topics

Page 1 of 1 View latest: 24h 48h 72h


Post new topic   Reply to topic    Forum -> Children's Health

Related Topics Replies Last Post
Did anyone get Torah Temima box delivered today?
by amother
81 Today at 3:21 pm View last post
by bsy
Anyone have info about the lunch pick-ups?
by amother
925 Today at 2:51 pm View last post
Does anyone have more info about what happened in Baltimore? 14 Today at 12:37 am View last post
by M.C.
Anyone else have this? Memory blip
by amother
22 Yesterday at 3:51 pm View last post
Does anyone know when NJ is sending P-EBT payments
by amother
22 Yesterday at 1:47 pm View last post

Jump to: