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Pandas and neurologist New York area
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amother




Orange
 

Post Mon, Dec 07 2020, 8:57 pm
amother [ Gray ] wrote:
Dr. Feldman and Bulmash don't believe in PANDAS. I learned the hard way. I don't know why Feldman has a plaque up that says he specializes. I spoke to Feldman directly.
We used to use Feldman and I found that plaque pretty weird too. He was always willing to run any labs and even prescribe abx but refused to give the diagnosis. He is somewhat informed, he follows the research and whatnot, but he doesn’t really get it at all.
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amother




Gray
 

Post Mon, Dec 07 2020, 8:58 pm
amother [ Orange ] wrote:
We used to use Feldman and I found that plaque pretty weird too. He was always willing to run any labs and even prescribe abx but refused to give the diagnosis. He is somewhat informed, he follows the research and whatnot, but he doesn’t really get it at all.

I don't think he'd be willing to give more than 1 round of abx. Worthless.
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amother




Orange
 

Post Mon, Dec 07 2020, 9:01 pm
amother [ Gray ] wrote:
I don't think he'd be willing to give more than 1 round of abx. Worthless.
He gave us a few months worth but always made me feel like the crazy mom and dismissed a lot of wonky bloodwork as insignificant.
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amother




OP
 

Post Mon, Dec 07 2020, 9:06 pm
Any other idea? How bout an immunologist that can help me with my child’s immune system maybe that’s someone that can help?
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amother




Sapphire
 

Post Mon, Dec 07 2020, 9:18 pm
amother [ Aubergine ] wrote:
.
Where's is dr Shulman np located?

Ate there any other peds in bklyn who would even DIAGNOSE it?


Dr. Roth would. When I brought up certain behaviors my child was displaying during an anual well-visit, she sent us to get bloodwork done to rule out PANDAS. I was not even thinking along those lines, and this was coming from her. DC had never even had strep (and bh did not have elevated anibodies that would indicate PANDAS).
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amother




Orange
 

Post Mon, Dec 07 2020, 10:43 pm
amother [ OP ] wrote:
Any other idea? How bout an immunologist that can help me with my child’s immune system maybe that’s someone that can help?
Dr. Jyonouchi is an immunologist in NJ who specializes in autoimmune encephalopathies. Are you interested in pursuing ivig? Mainstream medicine doesn’t have a lot of options when it comes to autoimmunity.
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amother




Aubergine
 

Post Fri, Dec 11 2020, 9:52 am
amother [ Purple ] wrote:
Audrey, dr schulmans np, is now at ezra medical center


I thought her NP was Naomi indich, is that Incorrct?
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