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Pandas, where to go next
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amother




Bisque
 

Post Mon, May 03 2021, 7:42 pm
amother [ Yellow ] wrote:
Can someone explain how their child was diagnosed with pandas and what are some common symptoms aside from obvious tics? I have 2 kids who are constantly getting strep and their behavior is very overwhelming and erratic.( hyperactivity, extreme mood swings, obsessions) I am currently using Precious Health of Lakewood and I'm wondering which( if any) doctor will try to help me with this issue.


dr zyskind is great with treating PANDAS
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amother




Copper
 

Post Mon, May 03 2021, 8:05 pm
amother [ Gold ] wrote:
I'm interested in supplements if they can make a difference. Diet changes will never work with way he is now. He has his limited foods that he eats and will not eat anything else.

which infections should I test for the ones you stated above? Are they treated differently?
Yes the ones I listed above. Different bacterial infections respond to different antibiotics or even combos. And viruses obviously won’t respond to antibiotics. Lyme and coinfections need very specialized testing, they generally don’t show up on standard labcorp/quest labs. If you’re in NY dr. Visconti on SI is great for this. We have seen significant change with certain supplements but it’s a full time job, you need to be fully invested and consistent for it to make a difference.
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amother




Babyblue
 

Post Mon, May 03 2021, 8:24 pm
amother [ Copper ] wrote:
When we were in Bklyn Dr. Feldman from Dr. Bulmash’s practice was helpful. But I had to tell him exactly what I wanted. Which labs, which antibiotics. I did my own research. We’ve paid lots of money for specialists too. But at the end of the day, it’s me and my own never ending research, self treating, advocating for my children that have helped the most.


Can you tell me which bloodwork you asked dt Feldman to test for?
Which labs etc?
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amother




Babyblue
 

Post Mon, May 03 2021, 8:26 pm
amother [ Copper ] wrote:
Bloodwork isn’t diagnostic for pandas. It doesn’t really matter what the numbers were. If I were you I’d be testing for other infections. Are you interested in supplements that can really make a difference? What about diet changes?


I'm interested in supplements please!
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amother




Copper
 

Post Mon, May 03 2021, 9:07 pm
amother [ Babyblue ] wrote:
Can you tell me which bloodwork you asked dt Feldman to test for?
Which labs etc?
Mthfr cheek swab, methylmalonic acid and homocysteine, full thyroid panel, rheumatic fever panel, igg and igm for the following infections: mycoplasma, Lyme, bartonella, hhv6, coxsackie a and b, ebv, cmv, h1n1. ASO and antidnase b, red blood cell magnesium. We did a stool test too, organic acids test. Lead levels. Immunology panel, food and environmental allergies, CBC and cmp. I wouldn’t advise just coming to him with a list, you need to request in a way that’s respectful and not offensive.
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amother




Copper
 

Post Mon, May 03 2021, 9:10 pm
amother [ Babyblue ] wrote:
I'm interested in supplements please!
Every kid is different and responds differently but we saw improvements with magnesium (3 different forms), methylated b vitamins with extra b1 and b2 on top, NAC, Gaba, ltheanine, 5htp, olive leaf extract. Epsom salt and magnesium chloride footsoaks. We also did some Chinese herbs.
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