Dysphagia | Imamother

amother

Seablue

Tue, Jun 22 2021, 10:55 pm

amother [ OP ] wrote:

Who do I call? I’m already waiting forever…

This. Call Columbia. Just call. Ask about cancellations. Say you can be there in an hour if they call

amother

Green

Tue, Jun 22 2021, 10:55 pm

amother [ OP ] wrote:

Who do I call? I’m already waiting forever…

Not sure
We always had the speech team at rusk schedule it if we needed one when we were outpatient.
Going to check if I have the contact number saved somewhere

amother

DarkViolet

Tue, Jun 22 2021, 10:59 pm

Nyu swallow study 212-263-6033.
but you need your doctor to send in the referral first.

amother

Green

Tue, Jun 22 2021, 10:59 pm

I looked back to a confirmation email for our last study for the contact info.
Elizabeth Phone: (212)263-6033 - Options 2,8 ●

I’m actually scheduled for a virtual visit with rusk speech supervisor tom morn. I can ask her if she knows offhand about any cancellations and how soon you can get it done otherwise. Lmk if you want me to inquire.

amother

Green

Tue, Jun 22 2021, 11:04 pm

With which hospital is the pulm you saw affiliated?

bnm

Wed, Jun 23 2021, 1:27 am

amother [ Bellflower ] wrote:

If you are considering a swallow study, be aware that barium is a metal and is considered toxic to humans. Just something to keep in mind.

because that is helpful info, how?

amother

Tuberose

Wed, Jun 23 2021, 1:27 am

Another SLP here.
If you want to see someone immediately, you can reach out to a colleague of mine.
shes a dysphasia expert. she might be able to help.

valerie Krivelevich
732-589-0147

bnm

Wed, Jun 23 2021, 1:50 am

You need to see an ENT, and a feeding therapist. They will probably order a swallow study. There are feeding therapists that are part of hospital rehab teams and accept insurance. Try Rusk.
Good luck.

amother

Wed, Jun 23 2021, 6:31 am

amother [ Green ] wrote:

that would be great. Is it in Manhattan?

amother

Wed, Jun 23 2021, 6:32 am

amother [ Tuberose ] wrote:

Another SLP here.
If you want to see someone immediately, you can reach out to a colleague of mine.
shes a dysphasia expert. she might be able to help.

valerie Krivelevich
732-589-0147

Where is she located? Does she accept insurance?

anonymrs

Wed, Jun 23 2021, 7:50 am

If I knew my child had a posterior tongue tie, I'd probably address that first and then reevaluate before running for more (invasive) testing.

amother

Wed, Jun 23 2021, 7:56 am

anonymrs wrote:

If I knew my child had a posterior tongue tie, I'd probably address that first and then reevaluate before running for more (invasive) testing.

I am. Even though 4-5 professionals told me it’s not necessary. Will see next week when we have an appointment. But if that was the issue why does he drink nicely when asleep and as a newborn?

amother

Green

Wed, Jun 23 2021, 8:58 am

amother [ OP ] wrote:

that would be great. Is it in Manhattan?

Yes
The swallow studies are done in NYU Tisch

Ok, I’ll try and ask. Can you meanwhile get a hold of the referral?

amother

Green

Wed, Jun 23 2021, 8:59 am

amother [ Green ] wrote:

With which hospital is the pulm you saw affiliated?

Quoting my post-
Unless the pulm you saw is affiliated with a Brooklyn hospital it might be easier to get referral from them for swallow study

amother

Wed, Jun 23 2021, 9:02 am

amother [ Green ] wrote:

Quoting my post-
Unless the pulm you saw is affiliated with a Brooklyn hospital it might be easier to get referral from them for swallow study

also Maimonides but the gi knew it would take time and even suggested I go elsewhere but didn’t tell me where.

amother

Indigo

Wed, Jun 23 2021, 11:00 am

anonymrs wrote:

If I knew my child had a posterior tongue tie, I'd probably address that first and then reevaluate before running for more (invasive) testing.

Same. I’ve seen huge issues resolve with tongue tie revision

amother

Wed, Jun 23 2021, 11:22 am

amother [ Indigo ] wrote:

Same. I’ve seen huge issues resolve with tongue tie revision

I hope!!

anonymrs

Wed, Jun 23 2021, 11:41 am

amother [ OP ] wrote:

I hope!!

For posterior tongue ties, really need someone who specializes in ties. Do you know if this ent specializes in ties?

amother

Wed, Jun 23 2021, 11:43 am

anonymrs wrote:

For posterior tongue ties, really need someone who specializes in ties. Do you know if this ent specializes in ties?

It’s dr ari goldsmith, I know of people who used him for ties.

amother

Seagreen

Wed, Jun 23 2021, 11:48 am

I hope you find answers and get help soon. But also find yourself a new pediatrician, they should have been on top of this giving you referrals and sending you to specialists.