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Okay, now what??
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Kiwi13




 
 
    
 

Post Mon, Jun 28 2021, 11:01 am
Responsible disclaimer: I'm not saying any of this is for sure connected. I have no idea. Problem is, neither to my doctors.

Okay, so I got the first dose of the Pfizer vaccine last Monday afternoon (June 21st). The first day, my arm was sore, but that was the only thing I'm 100% sure was connected. No big deal. I also felt a little more tired than usual, but nothing out of the ordinary.

Two days later (Wednesday) one of my toes was itching like crazy, but I couldn't scratch the itch. It felt like the bone itself was itching. Weird, but I shrugged it off as maybe being a bug bite from walking barefoot outside earlier in the day.

Thursday morning I woke up after several hours of awful pain in that toe that made it into my dreams and actually woke me up a few times during the night. By Thursday morning the toe was red and swollen and hurt REALLY BAD. I called my doctor, still thinking it was a bug bite and possibly infected.

Doctor took one look at it and sent me for immediate x-rays and lab work. He said it's not a bug bite because it's something deeper inside. The skin is completely normal. He suspected it was either broken or it could be gout or rheumatoid arthritis (a disproportionate amount of people with anti-HPA-1a antibodies wind up with RA in their 30s). I was starting to worry at that point that maybe the vaccine started to set off one of the dreaded immune responses after all. B"H the tests for gout and RA and all other autoimmune stuff he tested for came back negative.

The x-ray showed no broken bones, but there were abnormalities noted. Nothing serious, but he referred me for an urgent appointment with an orthopedist to evaluate for hairline fracture or badly healing old injury. I insisted again and again that I did not injure that toe. Not last week, not ever. I WOKE UP LIKE THAT, and I also insisted on the strangeness of the bone-itchiness the day before it happened.

I had the orthopedics appointment today. By now, the first joint of the toe is fused in place, still swollen, and hurts like crazy if I try to bend it. Otherwise, I can walk on it basically okay. If I stand or walk, blood seemingly gets trapped in the toe, turning it bright red and it feels strange. But, not the whole toe turns red. Part of it stays noticeably white, the same part every time. And that's almost MORE alarming to me. Something is definitely not right in there. A blockage of some kind, maybe?

The orthopedist looked at the x-rays and examined my foot and asked some questions. Then she told me with total certainty that it's not an orthopedic problem. She confirmed there are no fractures, no tendon problems, nothing that falls within her specialty. She said to call my primary back and request a referral to hematology, because this looks like a circulation issue. Maybe some kind of clot in the smaller veins, she isn't sure, but it should be looked at by someone who knows blood and circulatory system stuff.

Now, I get it that a toe is an extremely unlikely place for a blood clot, but I'm sitting here thinking, seriously?! The timing is suspicious, I'll tell you that! I never had anything like this happen before. I'm due for the second vaccine dose on July 12, and I've already made it clear I need a referral to happen before then. I have no clue if it's vaccine related or not. I don't want to jump to conclusions, but if this IS a mini-clot from the vaccine, it's obviously better to know before the second dose, and of all places to get one, my toe (not even a big toe - just one random toe!) is probably a good warning place.

Uggghh. So that's my vent. Hopefully it's nothing. Hopefully it's not related to the vaccine. Hopefully I'll wake up tomorrow and the oddball problem will have gone from whence it came. Medical amothers with any potential insights are welcome to chime in.
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rae




 
 
    
 

Post Mon, Jun 28 2021, 11:18 am
No answers, but wishing you a refuah shelaima! I hope it disappears as quick as it came. Only thing I can say is make sure redness is not traveling upwards and please don’t wait to get answers.
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Kiwi13




 
 
    
 

Post Mon, Jun 28 2021, 11:22 am
rae wrote:
No answers, but wishing you a refuah shelaima! I hope it disappears as quick as it came. Only thing I can say is make sure redness is not traveling upwards and please don’t wait to get answers.


Amen. It doesn't seem to be spreading or getting any worse at this point. Just holding the rotten old course. (I'm kind of bummed about this...) I'm continuing to pester my primary over MyChart for a referral. Only way anything gets done. So sad.
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Kiwi13




 
 
    
 

Post Mon, Jun 28 2021, 11:23 am
And that concludes my pity party, lol.
If anyone has practical advice on this, please share.
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amother
Catmint


 

Post Mon, Jun 28 2021, 1:35 pm
There are lots of weird odd ball symptoms out of the blue happening for many post vax. Its impossible to prove it is vax related but on the whole there are loads of weird symptoms circulating, vax or covid, or even been near freshly vaxxed.

So long it stays and nothing new pops up, hopefully it will be nothing and clear itself up. If you develop any more weird symptoms seek treatment and don't delay even if its weird and you are doubting yourself.

Refuah Shleima!
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amother
Daisy


 

Post Mon, Jun 28 2021, 1:46 pm
Did you go to a foot DR.?
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amother
Birch


 

Post Mon, Jun 28 2021, 1:47 pm
I have a very similar story, only with my knee and I'm months past my first dose. Didn't get the second. All doctors agree it is an immune response from the vaccine. Now dealing with multiple autoimmune diagnoses.

Wish I had something helpful to tell you. Refuah shelayma!
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Elfrida




 
 
    
 

Post Mon, Jun 28 2021, 2:29 pm
One of the doctors at my clinic had a similar story except it was his big toe. He was also concerned about gout for a while. I know he had the vaccine, but I don't remember when it started in relation to the vaccine. He already had Corona, so he only got one dose.

It started in his toe, but for a while the entire lower leg was swollen, then it gradually resumed normal proportions. The foot is still slightly swollen, but only noticable when you look at it.

He did all kinds of tests with no conclusive outcomes, took antibiotics in case there was some infection, and then switched to anti-inflammatories, and then he added steroids for a brief period. Nothing seemed to make much difference. I haven't asked him about it lately, but he is back to wearing normal shoes, which he couldn't for a while. He hasn't mentioned any other symptoms to me. Waiting it out was the only thing which helped him.

I don't know if that was helpful or depressing!
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amother
Emerald


 

Post Mon, Jun 28 2021, 2:41 pm
I'm sorry you are going through this and good for you for trying to get to the bottom of it. I understand why people would get the vaccine but it's really scary how there are so many unknowns. You should have a refuah shelaima.
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rae




 
 
    
 

Post Wed, Jun 30 2021, 6:16 am
Good morning. Hoping you are feeling better. Did you get any answers?
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SuperWify




 
 
    
 

Post Wed, Jun 30 2021, 8:00 am
Oh my so scary! Did you ever get blood clots before this?

A blood clot right after your first dose.. I’m not one to believe conspiracies but this seems too obvious. I believe it’s one of the side effects even the cdc admit to.
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southernbubby




 
 
    
 

Post Wed, Jun 30 2021, 10:40 am
SuperWify wrote:
Oh my so scary! Did you ever get blood clots before this?

A blood clot right after your first dose.. I’m not one to believe conspiracies but this seems too obvious. I believe it’s one of the side effects even the cdc admit to.


I agree. She should go to a hematologist, rheumatologist, or wound specialist.
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trixx




 
 
    
 

Post Wed, Jun 30 2021, 10:57 am
I'd consider it a blood clot (go down that diagnostic route) and cancel second dose.
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amother
Rose


 

Post Wed, Jun 30 2021, 11:03 am
One of the side effects being reported are blood clots.
Refuah Shelaima!
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Laiya




 
 
    
 

Post Wed, Jun 30 2021, 11:10 am
trixx wrote:
I'd consider it a blood clot (go down that diagnostic route) and cancel second dose.


I think this is the most logical decision at this point. Refuah shleima.
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amother
Amber


 

Post Wed, Jun 30 2021, 11:44 am
My father got the vaccine and had something similar with his toe. He thought it was gout. Took advil and after a few days it was better.
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Kiwi13




 
 
    
 

Post Wed, Jun 30 2021, 2:51 pm
The doctors took me seriously about the possibility of a clot. I had more tests run and they confirmed it’s NOT a clot (normal D-dimer and other blood tests). I’ll admit I’m suspicious of the final diagnosis but I guess stranger things have happened. They said the mass is some kind of ossified thing and looks like an avulsion injury, which sounds like the sort of thing that would hurt like heck, and that’s why it seems odd that I woke up like that and no memory of ever hurting my toe. My doctor said it’s possible it’s an old injury and that my recent workouts on the trampoline irritated it or something.

I had some other coinciding circulatory issues that complicated things the past 2 days, and again BH I was taken seriously. Every doctor I saw made note of the recent COVID vaccine dose. I must say, I was pleasantly surprised to not have to argue about that!! In the end, it seems like the toe thing and the circulation thing are separate.

Toe seems to be a re-injured avulsion thing (broken joint with a piece of bone that ripped off and then healed somewhat deformed and then got re-injured by repetitive movements during recent workouts). Circulation issue seems to be a medication side effect from something I started taking recently. Dose might need adjustment, but nothing serious as far as anyone can tell. I was in horrible pain from it last night though, chest pain and arm pain that went on for hours and eventually called 911 and went to the hospital. I’m home now and feeling better for having skipped today’s dose. My arm still hurts like something is squeezing it from the inside, but it’s getting better by the hour.

I’m a lot more calm about everything now. Seems like just 2 uncommon, but BH also un-dangerous issues.

After careful consideration by several doctors of different specialties, I was advised to YES get the second Pfizer vaccine dose. I feel okay with that and planning to get it on July 11.

I appreciate everyone checking in. It means a lot to me that you care. Thank you. 💕
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naomi2




 
 
    
 

Post Wed, Jun 30 2021, 4:53 pm
Kiwi13 wrote:
The doctors took me seriously about the possibility of a clot. I had more tests run and they confirmed it’s NOT a clot (normal D-dimer and other blood tests). I’ll admit I’m suspicious of the final diagnosis but I guess stranger things have happened. They said the mass is some kind of ossified thing and looks like an avulsion injury, which sounds like the sort of thing that would hurt like heck, and that’s why it seems odd that I woke up like that and no memory of ever hurting my toe. My doctor said it’s possible it’s an old injury and that my recent workouts on the trampoline irritated it or something.

I had some other coinciding circulatory issues that complicated things the past 2 days, and again BH I was taken seriously. Every doctor I saw made note of the recent COVID vaccine dose. I must say, I was pleasantly surprised to not have to argue about that!! In the end, it seems like the toe thing and the circulation thing are separate.

Toe seems to be a re-injured avulsion thing (broken joint with a piece of bone that ripped off and then healed somewhat deformed and then got re-injured by repetitive movements during recent workouts). Circulation issue seems to be a medication side effect from something I started taking recently. Dose might need adjustment, but nothing serious as far as anyone can tell. I was in horrible pain from it last night though, chest pain and arm pain that went on for hours and eventually called 911 and went to the hospital. I’m home now and feeling better for having skipped today’s dose. My arm still hurts like something is squeezing it from the inside, but it’s getting better by the hour.

I’m a lot more calm about everything now. Seems like just 2 uncommon, but BH also un-dangerous issues.

After careful consideration by several doctors of different specialties, I was advised to YES get the second Pfizer vaccine dose. I feel okay with that and planning to get it on July 11.

I appreciate everyone checking in. It means a lot to me that you care. Thank you. 💕

This was from the new medication or that was the covid arm?

I'm kind nervous to hear that you are going ahead with the second dose. It disconcerting to hear that the drs are not considering that the vaccine could have those effect on you and are finding other things to blame it on. They could be right but they also could be wrong. You felt validated that they wrote about your covid vaccine in your chart but in the end they are dismissing your concern.
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amother
Oleander


 

Post Wed, Jun 30 2021, 4:55 pm
naomi2 wrote:
This was from the new medication or that was the covid arm?

I'm kind nervous to hear that you are going ahead with the second dose. It disconcerting to hear that the drs are not considering that the vaccine could have those effect on you and are finding other things to blame it on. They could be right but they also could be wrong. You felt validated that they wrote about your covid vaccine in your chart but in the end they are dismissing your concern.


I agree. How convenient that they have other things to blame it on.
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Kiwi13




 
 
    
 

Post Wed, Jun 30 2021, 5:11 pm
naomi2 wrote:
This was from the new medication or that was the covid arm?

I'm kind nervous to hear that you are going ahead with the second dose. It disconcerting to hear that the drs are not considering that the vaccine could have those effect on you and are finding other things to blame it on. They could be right but they also could be wrong. You felt validated that they wrote about your covid vaccine in your chart but in the end they are dismissing your concern.


It was not the same arm as the vaccine. Listen, I've had serious doubts in doctors and the whole medical system over the past few years. But I actually really do think the chest and arm pain was from the medication. I skipped it today and things are improving. Without getting into specifics of which medication and why I'm taking it, it's hard to explain the whole story, but it really does make a lot of sense to me. It's known to raise blood pressure and cause rapid pulse, palpitations, etc. in a lot of people who take it.

They didn't dismiss my concern about clots at all. They ran all the tests for clots and they came back normal. D-dimer was .43 and anything below .5 is within the normal range. Troponin was normal. X-ray showed an abnormal density in my toe that wouldn't have shown up if it had been a clot. I actually feel reassured by all of this.

(If you ever read some of my previous threads about medical worries where I DIDN'T believe the doctors' reassurance, you'll know I don't blindly accept the "it's nothing serious," line! ;-))

PS. Fun fact: the X-ray also showed that I have an extra bone in my foot where my arch should be (flat feet for the win!). It's just an incidental finding I thought was amusing. In previous imaging tests and surgeries over the past few years, I learned I also have 2 extra mini-spleens and an extra section of colon. I guess it's like keeping a spare tire in your car, just profoundly less useful lol.
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