Home

I'm a PANS/Neuroinflammation mom of 2. AMA!
Previous  1, 2, 3, 4, 5
 
Post new topic   Reply to topic    Forum -> Parenting our children -> Our Challenging Children (gifted, ADHD, sensitive, defiant)


View latest: 24h 48h 72h


amother




Junglegreen
 

Post Wed, Jul 14 2021, 7:25 am
There are so many ideas and suggestions around and when people are desperate they are willing to try and do anything. Are there any ideas out there that any moms can say really worked! Please share those!
Back to top

amother




Powderblue
 

Post Wed, Jul 14 2021, 8:31 am
amother [ Junglegreen ] wrote:
There are so many ideas and suggestions around and when people are desperate they are willing to try and do anything. Are there any ideas out there that any moms can say really worked! Please share those!

Yes. Plasma pheresis and ivig. As well as antibiotics and some vitamins
Back to top

amother




Hyssop
 

Post Wed, Jul 14 2021, 9:22 am
amother [ Nemesia ] wrote:
yes, I'm on that group. I was on other pandas/pans groups and kept seeing RN suggested and when I saw so many were talking about positive results I had to give it a try. I hope it works for us both!
Same! Now I’m curious to know who you are.
Back to top

amother




Hyssop
 

Post Wed, Jul 14 2021, 9:22 am
amother [ Junglegreen ] wrote:
There are so many ideas and suggestions around and when people are desperate they are willing to try and do anything. Are there any ideas out there that any moms can say really worked! Please share those!
Antibiotics work really really well for us. So long as we’re on them.
Back to top

amother




DarkKhaki
 

Post Wed, Jul 14 2021, 9:39 am
amother [ Hyssop ] wrote:
Antibiotics work really really well for us. So long as we’re on them.

Why don't you stay on them then?
Back to top

amother




Hyssop
 

Post Wed, Jul 14 2021, 9:40 am
amother [ DarkKhaki ] wrote:
Why don't you stay on them then?
Our pediatrician doesn’t want to prescribe them for us anymore Mad
Back to top

amother




Nemesia
 

Post Thu, Jul 15 2021, 12:38 am
amother [ Hyssop ] wrote:
Same! Now I’m curious to know who you are.
I'm not really active on it. I'm just a lurker Smile
Back to top

amother




Hyssop
 

Post Thu, Sep 23 2021, 1:10 pm
amother [ Nemesia ] wrote:
I'm not really active on it. I'm just a lurker Smile
Just felt like updating, we had some very measurable gains with our third remedy, I cut my pandas fingernails before yt for the first time in about 4 years. She is a compulsive nail biter since she’s 2 and the last time I cut them was when she first went on antibiotics for pandas about a year after her onset when we finally realized what was going on. After that time, she reverted and nothing we tried since then made a dent in the nail biting until now. Aside for that, she was also much much more agreeable in general, but of course that’s harder to measure and quantify. How’s it going with you?
Back to top
Previous  1, 2, 3, 4, 5 Recent Topics

Page 5 of 5 View latest: 24h 48h 72h


Post new topic   Reply to topic    Forum -> Parenting our children -> Our Challenging Children (gifted, ADHD, sensitive, defiant)

Related Topics Replies Last Post
I love shopping on aliexpress. AMA
by helpful
781 Today at 2:52 pm View last post
Fraud Mom
by amother
20 Yesterday at 9:51 pm View last post
I took Ivermectin. AMA 169 Sun, Jan 16 2022, 12:51 pm View last post
Creative mom's - ideas needed
by amother
24 Fri, Jan 14 2022, 3:08 am View last post
I'm a writer (not officially but I call myself one) AMA
by amother
15 Thu, Jan 13 2022, 1:26 pm View last post