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Growth Hormone Treatment - pease share
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amother




Watermelon
 

Post Mon, Jun 27 2022, 7:18 pm
Hi! I'm Bumping this up because I'm dealing with this now.

I was wondering if the mother that filed a successful external appeal would be willing to pm me or anyone else that was successful getting insurance to cover for ISS
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amother




Khaki
 

Post Mon, Jun 27 2022, 7:26 pm
amother [ Watermelon ] wrote:
Hi! I'm Bumping this up because I'm dealing with this now.

I was wondering if the mother that filed a successful external appeal would be willing to pm me or anyone else that was successful getting insurance to cover for ISS


I’m not sure if that was me but we did have to file an external appeal for my oldest son with ISS. The doctor’s office works with you and are usually successful. They should be guiding you, you shouldn’t have to do it on your own.
We use Dr Romero in Mount Sinai and are very happy.

It was over ten years ago, he is already done (and is 5’6”) so I don’t remember details.
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amother




Watermelon
 

Post Mon, Jun 27 2022, 7:40 pm
Thank you for your reply!
I was under the impression that Drs offices will not help with the external review process
Thank you for clarifying that!
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amother




Scarlet
 

Post Mon, Jun 27 2022, 8:35 pm
My son is not deficient in growth hormone and all his bloodwork came back normal. The doctor says he wouldn’t benefit from taking growth hormone. Is this true?
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amother




Lavender
 

Post Mon, Jun 27 2022, 8:40 pm
amother [ Scarlet ] wrote:
My son is not deficient in growth hormone and all his bloodwork came back normal. The doctor says he wouldn’t benefit from taking growth hormone. Is this true?


Yes.
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amother




Bellflower
 

Post Mon, Jun 27 2022, 8:48 pm
amother [ Scarlet ] wrote:
My son is not deficient in growth hormone and all his bloodwork came back normal. The doctor says he wouldn’t benefit from taking growth hormone. Is this true?

I was wondering the same thing. All these people that I keep hearing about giving their kids gh all their kids are deficient?! My kids tests and blood work also came back normal so I assumed it means they won't benefit from gh.
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amother




Watermelon
 

Post Mon, Jun 27 2022, 9:09 pm
If your child is not extremely short but is just on the shorter side and there is no gh deficiency most drs won’t recommend it
However in instances where a child is extremely short (I think it’s below the 3rd percentile) it’s recommended and FDA approved
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amother




Scarlet
 

Post Mon, Jun 27 2022, 10:12 pm
amother [ Watermelon ] wrote:
If your child is not extremely short but is just on the shorter side and there is no gh deficiency most drs won’t recommend it
However in instances where a child is extremely short (I think it’s below the 3rd percentile) it’s recommended and FDA approved



My child is extremely short but the doctor won’t recommend it because he says he would only gain maybe an inch and insurance wouldn’t cover it anyway
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imaima




 
 
 
 

Post Tue, Jun 28 2022, 2:57 am
amother [ OP ] wrote:
I might need to work on my inner self, but I’m a bit worried about people, specifically my in laws, knowing about this.

Not about judgement. But they’d be very upset over this, and that’s an understatement. And everything then becomes a whole family drama with everyone ganging up on me with their opposition, and I’m just not wanting that. But I can’t put the burden on my son to keep it a secret.


Why is it anyone‘s businesses? What’s the big deal?
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amother




Tiffanyblue
 

Post Tue, Jun 28 2022, 6:17 am
I took growth hormone as a kid. My parents were super secretive about it and nobody knew not even my closest friends and relatives.

I wouldn’t suggest going that route but honestly didn’t effects too badly. Just when I was dating I never said no to a guy if he was shorter than me cuz I was worried maybe he is my Bashert and I was ‘supposed’ to be shorter lol. I’m happy my parents did it. I’m 5’6 now Smile I grew a lot after they stopped giving me GH I think I was around 5’4 when they stopped.
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