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mom234


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Wed, Mar 30 2022, 10:51 am
My daughter has it. They did a sono when she was a newborn in the hospital and made me do a follow up at 3 months. Thankfully it wasn’t tethered. I did read it is a sign of MTHFR gene (many people have it)
Typically if the baby is crawling standing it isn’t tethered.
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accountantmommy


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Thu, May 19 2022, 5:29 pm
My ds 5 weeks old has tethered cord. Hes iyH having the surgery at 3 months
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accountantmommy


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Thu, May 19 2022, 5:35 pm
amother [ OP ] wrote: | Oh wow. Would you be able to tell me more about the surgery. How old was she and any lasting side effects? Thank you so much for your response |
Our neurosurgeon said basically there are side effects if you dont do the surgery, but not major side effects if you do. He said its like getting a tounge tie snipped bit in the spine. My baby will have to lie flat 2 weeks post op
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Hashem_Yaazor


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Thu, May 19 2022, 7:25 pm
Are they implying having a midline defect (which this is) means the baby has MTHFR or that the mother does (which I've heard as a theory for years) and needs methylated folate vs folic acid to help against these? (60% of the population has it so it's very likely both could but I heard it more as a problem during early development in the womb based on the mother's resources)
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