Home

Eczema- the medical route

 
Post new topic   Reply to topic    Forum -> Children's Health


View latest: 24h 48h 72h

amother




OP
 

Post Sat, Jul 30 2022, 10:18 pm
I got a little worked up reading the post about kid suffering from eczema.
The op wrote we should please not post anything about creams, so I respected her and didn't write it there.
So I opened my own thread to voice my opinion.
I am not responding here to that op, she should do what works for her. I'm just writing my experience.

In my experience:

-Doctors have years of research and they know what they are talking about
]If one doctor didn't work for you, find another one. Hashem sent us great messengers to help us-many great specialists.
-Not all use of steroids are bad
-Not all creams are bad
-Yes, you can use steroid creams and not have side effects and come off it and still be healed.
-Kids don't need to suffer, they don't need to have raw open skin

this is my experience and opinion. I feel like I can never voice it on other threads because people don't want to hear it there. People should do what works for them, I'm not talking to anyone in particular. I just have this sitting in my chest and needed to get it off.

Thanks for listening.
Back to top

Not_in_my_town




 
 
 
 

Post Sat, Jul 30 2022, 10:24 pm
I think the issue is that steroids are vastly misunderstood.

Yes, they are powerful hormones that can cause horrific rashes -- much worse than the rashes they were used to treat. But they can also be a helpful tool when used in a careful and safe manner.

The issue is that they are extremely overused and many doctors have become too comfortable with using them and not only allow but encourage people to use them long term, over sensitive areas of the body or with occlusion, on infants, or at high potency -- all of which can have horrible effects.

Many doctors also fail to understand the nature of steroid addiction and damage. This leads to fear on the part of the patient, and then many patients run to the so-called "natural" world where they use dubious concoctions that are actually full of the very ingredients they were trying to avoid.

Polarization is never healthy. Accurate info is.

Steroids are a hormone. Hormones need to be carefully controlled; when they are not, they can cause untold damage. When they are, they can be helpful.
Back to top

Rubies




 
 
 
 

Post Sat, Jul 30 2022, 10:26 pm
You'd be surprised at the arrogance and ignorance when it comes to doctors, steroids, and eczema.

Shocking.
Back to top

Not_in_my_town




 
 
 
 

Post Sat, Jul 30 2022, 10:30 pm
Rubies wrote:
You'd be surprised at the arrogance and ignorance when it comes to doctors, steroids, and eczema.

Shocking.


Agreed. The fear that patients have IS justified; far too many doctors hand out lifelong RXes without even doing correct research on the drugs. Many MDs need a retraining. Sad, but true.
Back to top

amother




OP
 

Post Sat, Jul 30 2022, 10:33 pm
When used right it can be a major yeshuah.
Maybe doctors overuse it. I bh found a great doctor that was our shliach and tailor made a plan for child and we say great results.

It got such a bad name, I had to excuse myself to people why I use it.

People looked at me like I'm just a bad, lazy mother who smothers my child with steroid creams. Instead I'm supposed to take them off all food ( which can cause child to develop allergy ) and make homemade food and do everything the hardest way...
Back to top

amother




Vanilla
 

Post Sat, Jul 30 2022, 11:30 pm
Op I can so relate. I have a 8 month old with eczema and we got 2.5% hydrocortisone and that’s the only thing that works. I’m nursing so I tried to go off foods that she tested positive for but it didn’t help. People are looking at me like I’m a witch for poisoning my baby but what am I supposed to do? My baby should scratch herself to death? As it is she itches incessantly. I feel horrible. Instead I’m told to go to quacks and go off of even more foods but I’m underweight as it is and I’m always starving. Are you comfortable sharing more info? I feel like you understand me
Back to top

amother




Anemone
 

Post Sat, Jul 30 2022, 11:40 pm
I wasn't OP there but I could see myself writing a post like that. We do have steroids in the house and I occasionally use them with success, but they only work as long as I use them twice a day, with the ezcema coming back as soon as I stop. Long term steroids are clearly not a solution, so I might post looking for another one, addressing the underlying cause with the note that I don't need to hear about steroids.
In fact, sure, I'll take any advice anyone has so we can attempt to get off the steroids she's on...
Back to top

amother




Crystal
 

Post Sun, Jul 31 2022, 1:47 am
amother [ OP ] wrote:
I got a little worked up reading the post about kid suffering from eczema.
The op wrote we should please not post anything about creams, so I respected her and didn't write it there.
So I opened my own thread to voice my opinion.
I am not responding here to that op, she should do what works for her. I'm just writing my experience.

In my experience:

-Doctors have years of research and they know what they are talking about
]If one doctor didn't work for you, find another one. Hashem sent us great messengers to help us-many great specialists.
-Not all use of steroids are bad
-Not all creams are bad
-Yes, you can use steroid creams and not have side effects and come off it and still be healed.
-Kids don't need to suffer, they don't need to have raw open skin

this is my experience and opinion. I feel like I can never voice it on other threads because people don't want to hear it there. People should do what works for them, I'm not talking to anyone in particular. I just have this sitting in my chest and needed to get it off.

Thanks for listening.


I just have to say, not all eczema cases are created equal. Cases range from mild to severe and what works for one, doesn't work for another. Seriously. I've seen and heard of enough cases and what helps for one child is actually bad for another child. There is no clear cut answer.

No mother should ever be labeled as bad or lazy. Dealing with an eczema child is so so so so hard. Speaking from my own experience. I do however want to say that alternative medicine is awesome! If traditional medicine worked for your child, consider yourself lucky. I tried everything under the sun for 2 years... several doctors and allergists, with little or no relief. Alternative healers are not quacks. I was skeptical too until I landed by one out of desperation. Results: beyond amazing!

I also used a little steroids for a short amount of time. It didn't help much. The more I used it, the more I needed to put the next day. It wasn't healing my child. It was a temporary relief when the child's eczema was really bad. No judgement if anyone chooses to do that consistently for a longer time and it works for them, and no judgement for those that take another route.
Back to top

amother




OP
 

Post Sun, Jul 31 2022, 6:04 am
amother [ Crystal ] wrote:
I just have to say, not all eczema cases are created equal. Cases range from mild to severe and what works for one, doesn't work for another. Seriously. I've seen and heard of enough cases and what helps for one child is actually bad for another child. There is no clear cut answer.

No mother should ever be labeled as bad or lazy. Dealing with an eczema child is so so so so hard. Speaking from my own experience. I do however want to say that alternative medicine is awesome! If traditional medicine worked for your child, consider yourself lucky. I tried everything under the sun for 2 years... several doctors and allergists, with little or no relief. Alternative healers are not quacks. I was skeptical too until I landed by one out of desperation. Results: beyond amazing!

I also used a little steroids for a short amount of time. It didn't help much. The more I used it, the more I needed to put the next day. It wasn't healing my child. It was a temporary relief when the child's eczema was really bad. No judgement if anyone chooses to do that consistently for a longer time and it works for them, and no judgement for those that take another route.


I appreciate the balance you bring! Thank you!

I do consider myself lucky that we bh found the right path that works and I understand that it doesn't work for everyone.

Again, just in my limited experience, it wasn't only the steroid cream that works. It was that plus the way the doctor planned childs regiment. I couldn't have just gotten the cream and used it and be healed. It takes a good doctor to plan it out so you strike the right balance of not overusing steroids, but finding the sweet spot what works.
Back to top

amother




Navyblue
 

Post Sun, Jul 31 2022, 6:13 am
To me the biggest issue isn’t even necessarily the risks and side effects. It’s that using steroids is a bandaid and not addressing the root causes. Bandaids are ok in a pinch, but shouldn’t be an idealized way of life.

Drs spent years in college studying medicine, that is true. But the western medicine model is based on matching drugs to symptoms. And they are very very good at saving lives in life threatening situations. The downside to this model is that the treatments come with risks.

What they are not so good at is non life threatening health concerns, chronic health conditions, and treating causes instead of symptoms.

Eczema and steroids are just 1 example of this divide.
Back to top

amother




Clematis
 

Post Sun, Jul 31 2022, 6:34 am
Would daily moisturizing be one way to address the cause. I was told by my dermatologist that I needed to moisturize full body daily to help avoid my eczema
Back to top

amother




OP
 

Post Sun, Jul 31 2022, 6:49 am
amother [ Clematis ] wrote:
Would daily moisturizing be one way to address the cause. I was told by my dermatologist that I needed to moisturize full body daily to help avoid my eczema


You can try.
My doctor said to use Vaseline right after shower or bath. When your wet you just give yourself a quick pat off and while your still a little wet you put vaseline. Pores are most open then and it gets absorbed best.

There are many moisturizers. Maybe others will have suggestions for you, but non of it worked for us besides vaseline.
Back to top

amother




Cyclamen
 

Post Sun, Jul 31 2022, 6:52 am
Not all doctors prescribe steroids responsibly. My infant had terrible eczema and my pediatrician claimed I couldn't do allergy testing so young (major mistake #1). He then prescribed a steroid and gave me NO instructions whatsoever (major mistake #2). I had no idea what the risks were. I was just endlessly rubbing this steroid cream all over his face and body with no real plan. BH something made me question it and I finally insisted on seeing an allergist. Who BH was the right shaliach, figured out exactly what my baby was allergic to (a whole list that I could have never eliminated on my own) and instructed me to discontinue the steroid. Bam, there was my medical route, no risk whatsoever, and eczema disappeared forever. Btw my first pediatrician was in a very well known and respected group. NOT EVERY DOCTOR CAN BE TRUSTED.
Back to top

amother




Pansy
 

Post Sun, Sep 11 2022, 5:20 pm
Hi,

Not OP but would love to hear more about what alternative medicine route you took?


amother Crystal wrote:
I just have to say, not all eczema cases are created equal. Cases range from mild to severe and what works for one, doesn't work for another. Seriously. I've seen and heard of enough cases and what helps for one child is actually bad for another child. There is no clear cut answer.

No mother should ever be labeled as bad or lazy. Dealing with an eczema child is so so so so hard. Speaking from my own experience. I do however want to say that alternative medicine is awesome! If traditional medicine worked for your child, consider yourself lucky. I tried everything under the sun for 2 years... several doctors and allergists, with little or no relief. Alternative healers are not quacks. I was skeptical too until I landed by one out of desperation. Results: beyond amazing!

I also used a little steroids for a short amount of time. It didn't help much. The more I used it, the more I needed to put the next day. It wasn't healing my child. It was a temporary relief when the child's eczema was really bad. No judgement if anyone chooses to do that consistently for a longer time and it works for them, and no judgement for those that take another route.
Back to top

amother




Azure
 

Post Sun, Sep 11 2022, 5:28 pm
I didn't see the other thread so I hope it's ok to post here. My son had terrible eczema. Both his pediatrician and allergist said it's definitely not allergy related and suggested some heavy steriods. Upon advice from a friend, I cut out all eggs and within 3 weeks his eczema (or "eggs"ema as we called it) completely cleared and my son had beautiful skin.
Unfortunately, it all reappeared when we moved states and confirmed that he was allergic to almost every type of tree and grass in the region.
However, we have seen so many allergists over the years and I have developed a severe distrust for those in the field so almost all do not recognize the link between eczema and allergies.
Back to top

amother




Crystal
 

Post Mon, Sep 12 2022, 12:39 am
amother Pansy wrote:
Hi,

Not OP but would love to hear more about what alternative medicine route you took?



I used Dr Anteby, Kiniesologist in Flatbush. He figured out all allergens through muscle testing and did different treatments to heal and strengthen my child. Is there something specific you'd like to know?
Back to top
Page 1 of 1 Recent Topics

View latest: 24h 48h 72h


Post new topic   Reply to topic    Forum -> Children's Health

Related Topics Replies Last Post
Eczema cream for baby
by m987
2 Sun, Nov 20 2022, 12:09 pm View last post
Dr Mccollum Pediatric Surgeon- Monmouth Medical Center
by amother
1 Wed, Nov 09 2022, 6:38 pm View last post
Eczema relief... try it!!
by amother
1 Tue, Nov 08 2022, 12:19 pm View last post
Eczema /allergies Barely any sleep/ any have any advice
by amother
24 Mon, Oct 24 2022, 12:07 pm View last post
Medical Pedicure
by amother
4 Fri, Oct 14 2022, 1:27 pm View last post