Home
Log in / Sign Up
    Private Messages   Advanced Search   Rules   New User Guide   FAQ   Advertise   Contact Us  
Forum -> Children's Health -> Allergies
Eczema /allergies Barely any sleep/ any have any advice
1  2  Next



Post new topic   Reply to topic View latest: 24h 48h 72h

amother
OP


 

Post Thu, Oct 20 2022, 2:32 am
My baby is over a year, most people have sleep trained their child months ago and are having normal night sleeps. My baby has been sick so many times and often when not sick just seems unwell. The eczema causes her to scratch all night , when she falls asleep and I slowly put her down in her crib, she either wakes herself by scratching her face like crazy, or she jumps up crying till I hold her. I nurse still bec she barely takes any neocate and eats small amounts. I must nurse 10 -15 times a night from when I start putting her to bed and then throughout the night, in order for her to sleep. She wakes probably every half hour sometimes more frequently. I keep her next to me in the bed bec transferring her makes her wake up again and then nurse again. She often sucks and sucks , as if she is actually hungry. Even nights I feed her a big meal , she still wakes up the same. Some nights she’s up so uncomfortable so I walk the halls to calm her and then hold her and lay with her in my arm. I’m so torn. I see other moms who are the wonderful moms. They sleep trained their child at 4 months , the baby sleeps from 7 to 7. They have a night they can go out, clean, eat, take a shower…. I literally run in the shower and get called out bec the baby is up screaming and of course no one else can calm her. I don’t feel like I can let her scream bec I do believe she’s not as well as a child without this eczema. But I don’t know what to do. I really go on minimal sleep. Trying to get a few minutes in between each time she wakes and nurses. Anyone have ever had a child like this and has any tips how to help them sleep longer periods .
Sorry for such a long post, as u see it’s 2:30am, I use my phone to keep me up while I’m up with my baby:
Back to top

taketwo




 
 
    
 

Post Thu, Oct 20 2022, 2:42 am
Reading your post brought my right back to that stage with my eczema child. It is so difficult.

Your goal should be to heal the eczema so she can get some sleep, her immunity will improve and you'll get some sleep. Look into the Dr Aron regimen. It worked wonders for us. We used eczema specialist . Com. Sent photos of the eczema and then he prescribed a mixture of a moisturizer, steroid and antibiotic cream. We used a compounding pharmacy to make the cream but you can mix it yourself. We then followed his directions for how many applications and had follow up appointments (photos sent) to determine how to wean off the creams. It's not a cure because you still have to spot treat whenever it flares but it keeps it under control.

Hatzlocha
Back to top

amother
Chartreuse


 

Post Thu, Oct 20 2022, 4:21 am
Does she take bottles? Can you get a night nurse to give her bottles so you can get some decent sleep. Any other adults that can help out with her during the night? It's so so hard. Sending hugs.
Back to top

amother
Chartreuse


 

Post Thu, Oct 20 2022, 4:26 am
Also if you are down to try a complete diet change my sister cleared her eczema after 3 to 4 weeks of being on a certain diet. If you want the number of the person that guided her I can give it.
Back to top

amother
Pewter


 

Post Thu, Oct 20 2022, 4:44 am
My husband had terrible eczema as a child. Tried everything, steroids, creams, etc. The only thing that worked was Dove bar soap. No other soaps, creams, or lotions. It's never come back.
It's all I use on my kids' skin, and even their hair, for the first year. They have clear, smooth skin.
(Also for myself, though I never struggled with eczema)
Back to top

Lydia




 
 
    
 

Post Thu, Oct 20 2022, 5:48 am
Seconding what taketwo said: There comes a point when, even if you really don't want to use steroids, it can be a way to get everything else back on track (everyone's sleep, your own nutrition, attention to other kids). Even if you just use the steroids for a while so you can both get some relief.

(We had particular relief from mometasone. One thin application got my baby relief for an entire week without other treatment except lotion. And his eczema was extremely nasty. It's strong, but it helped us survive. In then end, we only used it for a couple of months until his body just stopped needing it.)

Also, keep on reminding yourself that it will get better as the baby gets older, even if all the things you try don't seem to help. It's really hard to remember that when he's screaming and miserable and you're miserable too. But it will get better. Put that in the front of your mind.
Back to top

amother
OP


 

Post Thu, Oct 20 2022, 6:07 am
Thank you everyone for your reply’s. Maybe I will try mometasone again it had helped in the past give some relief and I haven’t used it in a while. About getting a baby nurse it’s not an option, she won’t go to anyone, my family try’s at night so I can even get a short amount of sleep…. She just wants me or she screams. I gotta try the dove soap . It means a lot that everyone reply’s . It feels like I’m the only one dealing with this but when you respond it makes me not feel as bad as to why she’s not sleeping
Back to top

teachkids




 
 
    
 

Post Thu, Oct 20 2022, 6:41 am
We had to do a severe elimination diet to heal her skin
Back to top

cuties' mom




 
 
    
 

Post Thu, Oct 20 2022, 7:23 am
I had to eliminate everything ds was allergic to from my diet, zantac twice a day, atarax nightly, cetaphil cleanser in bath, cutivate on bad areas, aquaphor every where, and sleeping in wet cotton pajamas with dry cotton pajamas on top.
Back to top

amother
Marigold


 

Post Thu, Oct 20 2022, 8:23 am
oy! people don't realize that having a child with eczema means taking care of a sick baby. It's so so difficult.
I imagine you will get many responses how to treat the eczema. That alone can drive you nuts. All I can do is sympathize and tell you what worked for us.

I went to Dr. Subhandra Seigel, an allergist, even though we weren't bh dealing with allergies. She was the right shuliach to help us. She is so kind and gentle and explains everything so well. Also very easy to follow up with her on zoom and sending prescriptions...

Till the plan actually kicked in and worked she suggested I give him Benadryl at night so the itching calm down and the baby is more sleepy. It starts the cycle of healing if they don't itch and they get a good rest.

Hatzlacha in your journey.

ETA please don't cut out food groups without talking to a good doctor. It's important for kids to get proper nutrients to grow. Also if you cut out a food group without knowing for sure if it makes the eczema worse than the child can develop an allergy over time to it...
Back to top

hodeez




 
 
    
 

Post Thu, Oct 20 2022, 8:35 am
It's seems like she's almost certainly reacting to something in your milk, since that's her primary source of nourishment. I had this with 3 boys, it's horrible. My first boy literally had every allergy expect sweet potato, he was literally orangetoned at his first bday
Back to top

amother
Seablue


 

Post Thu, Oct 20 2022, 9:37 am
Sounds rough. BH not my kids but my husband had bad eczema and we solved it by switching laundry detergent. No idea if it would help you but wanted to share... we washed all clothing and sheets in vinegar and then only used a specific white detergent (All Free and Clear, not Tide, not any scent, no fabric softener, no dryer sheet). It is totally gone.

I hope you find some relief soon!! And some sleep.
Back to top

amother
Azure


 

Post Thu, Oct 20 2022, 9:42 am
Are you in Lkwd? Shloime Berger can help with excema, figuring out foods to try to eliminate, then he has creams, also homeopathic sprays
Back to top

amother
Tan


 

Post Thu, Oct 20 2022, 10:33 am
I totally feel you. My dd didn't sleep more than 40 minutes at a time at least until her first birthday.

My next kid who had eczema at a month, I don't know what possessed me as it's really not my style, but I took him to a chiropractor at 6 weeks old. It was the best thing I did for him. I took him a few times and bh he responded so well. He was a much much happier baby.
Back to top

amother
OP


 

Post Thu, Oct 20 2022, 9:48 pm
I’ve been off of foods been to many doctors and trying alternate medicine route . I guess I’m looking for chizzuk from someone who did it and helped their child
Back to top

hodeez




 
 
    
 

Post Thu, Oct 20 2022, 9:53 pm
Yes, my 11 month old had horrible horrible eczema as a baby, in the cold and in the heat. He was always itching, couldn't sleep, had a leaking cradle cap that wouldn't go away. Turns out he was allergic to some dairy formulas, soy, and even neocate. We put him on kendamil and I stopped nursing him (also bc I didn't have a substantial supply) and bh he improved drastically, to the point that I even put him in short sleeves this summer!! But now that he is eating glutenous foods I am seeing a return in his itching, so it seems like I will have to cut that out for now.

ETA my first son was horribly allergic to basically everything, and had a weakened immune system with asthma. We were in the ER so often, especially in the winter. He was hospitalized twice with multiple viruses and allergic reactions to steroid medications given to him. When he has a reaction it takes 3 shots of epi, benadryl, inhaled steroids, and some other shot I don't remember just to bring down his body's intense reaction to it.
I say all this to tell you that bh he is almost 5 years old now, no eczema, and only allergic to dairy and peanuts. He is a smart lovely sweet boy who is active and has not been in the hospital for the past 3 winters bh. I know it seems like it will never end but it absolutely will!
Gam zeh yaavor. Hashem should give you the strength and fortitude to stay on your journey to alleviate your son's pain.
Back to top

amother
Bisque


 

Post Thu, Oct 20 2022, 9:58 pm
Please, please speak to your doctor about dupixent. It's a once monthly shot that really makes a huge difference for most kids with severe eczema. I was scared to give it to my child, but it's been life-changing for him. It was recently approved for younger children but it's been on the market for older children for a long time.
Back to top

amother
Marigold


 

Post Thu, Oct 20 2022, 10:23 pm
amother OP wrote:
I’ve been off of foods been to many doctors and trying alternate medicine route . I guess I’m looking for chizzuk from someone who did it and helped their child


Alternative medicine route almost made me lose my mind.
Not sure what chizzuk you want, just sharing that with minimum amount of cortisone use I got a yummy, healthy, happy baby bh. The key was that she gave it with very specific instructions that were so helpful for healing it. My kid is now over 3 and bh no side effects from cortisone and we didn't have to keep upping the dose (like some people say).
Back to top

amother
Seagreen


 

Post Thu, Oct 20 2022, 10:57 pm
Cried reading this post!!! Bought back such haunting memories...what helped for me is using 100% cotton linen and underwear. Also natural soaps for my son. Fermented foods, and reflexology...good luck and a warm hug!
Back to top

amother
Steel


 

Post Thu, Oct 20 2022, 11:19 pm
amother Bisque wrote:
Please, please speak to your doctor about dupixent. It's a once monthly shot that really makes a huge difference for most kids with severe eczema. I was scared to give it to my child, but it's been life-changing for him. It was recently approved for younger children but it's been on the market for older children for a long time.

Let’s just say I’m board certified in the field. Dupixent is absolutely the way to go it targets 2 pathways responsible for causing inflammation of eczema. It’s not a cure but it’s a great treatment option very little to no side effects. Achieves clearance in about 70% of patients and it is not a steroid.
Back to top
Page 1 of 2 1  2  Next Recent Topics




Post new topic   Reply to topic    Forum -> Children's Health -> Allergies

Related Topics Replies Last Post
My baby cries himself to sleep
by amother
11 Wed, Mar 27 2024, 3:13 pm View last post
How did you sleep train?
by amother
91 Wed, Mar 27 2024, 2:38 pm View last post
Mishloach manos for your husband...advice from recent widow
by amother
27 Sun, Mar 24 2024, 3:04 pm View last post
My 4 yo daughter is difficult to parent, any advice please?
by amother
15 Thu, Mar 21 2024, 9:13 pm View last post
Advice for talking to son in mesivta OOT
by amother
11 Tue, Mar 19 2024, 8:29 pm View last post