Non-epileptic seizures: Has your child had them & recovered?

amother

Fri, Jun 02 2023, 6:13 am

My child has epilepsy. It was pretty well-controlled until we all got Omicron. In the early years my child would have breakthroughs connected to viruses/ fevers, but those pretty much disappeared and we only had breakthroughs if there was a sudden growth spurt and the levels got too low. And the breakthroughs would disappear without leaving a trace the moment we changed the dose. BH BH

After Omicron it took six months to get back to a balanced state. Then we had several months with nothing, and then it started again. Possibly due to construction on the way to school, which involves flashing lights on a slow-moving road, meaning extended exposure each day, twice a day. (This is not a reason to switch schools. We live in the land of eternal construction.)

This week my child had a short seizure (they are absence seizures) and then nearly 1.5 hours, on the clock, of what looked like a seizure but was not (clear differences noticeable to trained eyes; I was not there, the staff is familiar with it and described in great detail what took place).

We have ruled out sugar issues (hypoglycemia/ diabetes), by a simple blood test. We ruled out too low a dose of medication, also by blood test.

I have a family member who suffers pseudoseizures for many years already and I am petrified my child will suffer that fate.

The ER release letter said that the incident was caused by a behavioral trigger in response to a social incident. Boatload of cr*p if you ask me, there was nothing unusual that happened that day, just the usual social worries, but nothing at all - even according to the child - that was unusual or out of the ordinary.

Does anyone here have a child or family member who has suffered non-epileptic incidents like this (which we are assuming are pseudeoseizures, until we find out otherwise)? Did they go away? Was it a one-off incident or did it happen a few times? If something helped end these, what was it?

Please no vaccine or detox cr*p. It's not based in science and I have zero patience for such idiocy at the moment. If you don't have anything nice to say scroll on and don't say anything. I will be reporting posts that don't stick to this request.

I am looking for encouragement and *relevant* advice on how to help my child.

Thanks in advance.

amother

White

Fri, Jun 02 2023, 6:54 am

I myself did. I had seizures as a child. While I cant tell you much specifics, sounds quite similar. I once had a seizure on the subway (incidentally, in my way to the Dr for a routine check up). We realized the subway prob triggered it because of the going in/out of the light.

I had them from about age 4 till about 14, at which point I was med free and seizure free for about a year. Bh, its not hereditary (as it wasn't for me), my children are all healthy and doing great. Bh, a million times over.

Iyh your child should grown out of it and live a healthy adult life.