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-> Children's Health
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amother
OP
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 Tue, Jun 06 2023, 9:43 am
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My child was just diagnosed with Pandas. Doctor prescribed 14 days of antibiotics. What can I expect? Does it normally get better right away?
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amother
Glitter
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Tue, Jun 06 2023, 9:45 am
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14 days? I know pandas kids that were prescribed 3-6 months.
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amother
Black
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Tue, Jun 06 2023, 9:47 am
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It really depends on the case. I'm surprised he said two weeks. Do you mean your dc needs to be seen again in two weeks and you will re-evaluate? Each case severity is different. One kid of mine was on abx for six months and his sudden onset OCD disappeared. My other DC was on for a full year until the ticks went away. But every time dd gets sick she ticks a few days after fever but then it goes away (instead of sticking around and getting worse and worse and worse)
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amother
Razzmatazz
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Tue, Jun 06 2023, 10:28 am
There is a difference between a chil who's illness symptoms are behavioral and just needs a regular does of antibiotics v. One who has a full blown case of pandas/pans.
A regular illness but presented with behavioral symptoms will be fine treating with the standard treatment dosage. A full blown cade of pandas following proper protocol (dr Shulman, Dr T, etc.) Can take approximately one yr including slowly weaning off antibiotics.
Most local pediatricians or PA's who 'believe' in pandas will treat with 30days of treatment. They are not aware of full long term protocol and need for motrin, vitamin d, omega 3etc.
Many people unfortunately who treat with 30 day treatment keep relapsing and never fully get rid of the illness.
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amother
Trillium
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Tue, Jun 06 2023, 10:31 am
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Is it one antibiotic for 6 months/a year or do you keep changing? Doesn't the child become immune to it over time?
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amother
Purple
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Tue, Jun 06 2023, 10:36 am
I can take years of monitoring.
Initial antibiotics should be prescribed 30 days then appt to come back and see how it's going and continue antibiotics.
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amother
NeonBlue
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Tue, Jun 06 2023, 12:21 pm
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You have to go to a dr who specializes in treating pandas.
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amother
Daylily
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Tue, Jun 06 2023, 12:40 pm
| amother NeonBlue wrote: | | You have to go to a dr who specializes in treating pandas. |
And what does the treatment protocol typically include?
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amother
Thistle
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Tue, Jun 06 2023, 12:57 pm
My kids have been on several long term courses of abx for pandas. The absolute shortest I ever did was 30 days, and then we continued with herbal antibiotics for *at least* another 2 or 3 months.
This is always in conjunction with other supportive treatments.
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amother
Daylily
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Tue, Jun 06 2023, 1:09 pm
| amother Thistle wrote: | My kids have been on several long term courses of abx for pandas. The absolute shortest I ever did was 30 days, and then we continued with herbal antibiotics for *at least* another 2 or 3 months.
This is always in conjunction with other supportive treatments. |
What type of other supportive treatments?
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amother
Thistle
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Tue, Jun 06 2023, 1:18 pm
Herbs
Supplements
Diet changes
Detox support
Homeopathy
Anti inflammatories
histamine blockers
Let me know if you want more specifics
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amother
Daylily
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Tue, Jun 06 2023, 1:25 pm
| amother Thistle wrote: | Herbs
Supplements
Diet changes
Detox support
Homeopathy
Anti inflammatories
histamine blockers
Let me know if you want more specifics |
Yes please.
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amother
NeonBlue
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Tue, Jun 06 2023, 1:27 pm
| amother Daylily wrote: | | And what does the treatment protocol typically include? |
Supplements
anti inflammatories to reduce brain inflamation
anti histamines
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amother
Thistle
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Tue, Jun 06 2023, 1:35 pm
Herbs — broad spectrum herbal antibiotics like oil of oregano and olive leaf extract, and also more specific herbal protocols to target specific infections and viruses.
One herbal protocol that’s specific for pandas and covers strep plus brain inflammation/cytokine cascade is cryptolepis+Chinese skullcap+kudzu
Supplements: we do a lot of different forms of magnesium, trace minerals, electrolytes. Also lots of b vitamins, usually a complex plus extra b1 and b2.
Supplements to help with anxiety and ocd such as NAC, inositol, Gaba, l theanine, 5htp
Detox support: glutathione, epsom salt footbaths, activated charcoal
Diet: as close to gluten, dairy and soy free as possible, limited sugar, dyes and msg (it’s not lost on me at all how close to impossible this is to pull off with kids in our culture)
Motrin, Benadryl and robitussin for bad flares to take down brain inflammation
Digestive enzymes, probiotics, parasite cleanse, yeast cleanse for gut health
Constitutional homeopathy with resilience naturopathic
Air filters and water filters
We are also addressing mouth and airway issues that we suspect are contributing.
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amother
Daylily
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Tue, Jun 06 2023, 1:38 pm
| amother Thistle wrote: | Herbs — broad spectrum herbal antibiotics like oil of oregano and olive leaf extract, and also more specific herbal protocols to target specific infections and viruses.
One herbal protocol that’s specific for pandas and covers strep plus brain inflammation/cytokine cascade is cryptolepis+Chinese skullcap+kudzu
Supplements: we do a lot of different forms of magnesium, trace minerals, electrolytes. Also lots of b vitamins, usually a complex plus extra b1 and b2.
Supplements to help with anxiety and ocd such as NAC, inositol, Gaba, l theanine, 5htp
Detox support: glutathione, epsom salt footbaths, activated charcoal
Diet: as close to gluten, dairy and soy free as possible, limited sugar, dyes and msg (it’s not lost on me at all how close to impossible this is to pull off with kids in our culture)
Motrin, Benadryl and robitussin for bad flares to take down brain inflammation
Digestive enzymes, probiotics, parasite cleanse, yeast cleanse for gut health
Constitutional homeopathy with resilience naturopathic
Air filters and water filters
We are also addressing mouth and airway issues that we suspect are contributing. |
Thank you for detailing all of this-I really appreciate it.
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amother
OP
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Tue, Jun 06 2023, 3:44 pm
I'm really freaking out now... My DC started displaying symptoms about 3 months ago. I got her tested last week. Her numbers were just above 300 (normal is up to 100). Doctor said it's not very severe. Prescribed abx 14 days.
Should I go to another specialist? Were all of you who did these long treatments have kids with much higher numbers?
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amother
Thistle
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Tue, Jun 06 2023, 3:50 pm
| amother OP wrote: | I'm really freaking out now... My DC started displaying symptoms about 3 months ago. I got her tested last week. Her numbers were just above 300 (normal is up to 100). Doctor said it's not very severe. Prescribed abx 14 days.
Should I go to another specialist? Were all of you who did these long treatments have kids with much higher numbers? | The numbers really don't really matter that much. It's more about the severity of the symptoms and how long they persist. How is your child doing now?
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amother
OP
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Tue, Jun 06 2023, 7:04 pm
| amother Thistle wrote: | | The numbers really don't really matter that much. It's more about the severity of the symptoms and how long they persist. How is your child doing now? |
It's going on for about 3 months now. She just started abx.
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amother
Thistle
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Tue, Jun 06 2023, 7:05 pm
| amother OP wrote: | | It's going on for about 3 months now. She just started abx. | See if you can get your dr to rx a longer course. And/or when you run out switch to herbal antibiotics.
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amother
OP
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Mon, Oct 23 2023, 10:42 pm
BUMP: Did 10 days in June. got better. Relapsed shortly after
Doing 60 days now. (we're up to 40ish now). She's definitely getting better.
What's do we need to do next? I want to knock out the Pandas completely, but I'm so lost...
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