So many pandas threads but is there a doc that actually

amother

Lilac

Fri, Dec 17 2021, 11:45 am

amother [ Mint ] wrote:

Well I skipped the abx route for pandas and went straight to paying 800 for homeopathy. To pay that for abx is crazy, yes.

Are you seeing success with homeopathy? Can you share who you're using? Thx

amother

Mint

Fri, Dec 17 2021, 12:58 pm

Resilience naturopath in CA. Telehealth.
I started with them bc that's what people hVe said - they did abx then functional then homeopathy. Bh lots of improvements and almost back to normal.

amother

Cherry

Fri, Dec 17 2021, 12:59 pm

amother [ OP ] wrote:

Wow. Is there anywhere I could first have my child diagnosed before shelling out that kind of money? I don’t even know if it’s pandas. Why is such a common thing on imamother so complicated to get helped and diagnosed irl?

Good question.

amother

Cherry

Fri, Dec 17 2021, 1:03 pm

amother [ Oldlace ] wrote:

Except this is 800$ for allopathic treatment of receiving antibiotics. No healing. No immune support. No inflammation lowering or closing the BBB...

If pandas is truly untreated strep then antibiotics make sense.

It is strange that pandas is so prevalent on imamother but basically unheard of everywhere else.

amother

Crimson

Fri, Dec 17 2021, 1:14 pm

amother [ Mint ] wrote:

Resilience naturopath in CA. Telehealth.
I started with them bc that's what people hVe said - they did abx then functional then homeopathy. Bh lots of improvements and almost back to normal.

Did you get a diagnosis before you started working with them?

amother

Mint

Fri, Dec 17 2021, 1:35 pm

amother [ Crimson ] wrote:

Did you get a diagnosis before you started working with them?

Yes from my pediatrician. It was classic textbook symptoms. And I did bloodwork too.

amother

Brickred

Fri, Dec 17 2021, 2:46 pm

amother [ Mint ] wrote:

Only one who takes insurance is Dr visconti in Staten Island. Anywhere else you're paying.

Yes, using him now and bh seeing some improvement.

amother

Crimson

Fri, Dec 17 2021, 2:58 pm

amother [ Mint ] wrote:

Yes from my pediatrician. It was classic textbook symptoms. And I did bloodwork too.

My daughters diagnosis is adhd not pandas. Only reason I’m even looking at pandas is because of this site. I guess doing the bloodwork can’t hurt.

amother

Dahlia

Fri, Dec 17 2021, 4:14 pm

amother [ OP ] wrote:

Audrey can definitely do the diagnostic tests. She did it for my child while working at Dr Schulman. She's at Ezra at the 38 st location.

amother

Yolk

Sun, Dec 19 2021, 9:19 am

amother [ Dahlia ] wrote:

Audrey can definitely do the diagnostic tests. She did it for my child while working at Dr Schulman. She's at Ezra at the 38 st location.

OP keep in mind that there are actually no diagnostic tests that definitively rule pandas in or out. At the end of the day for various complicated reasons and until there’s a reliable biomarkers it remains a clinical diagnosis. Bloodwork is great, can be very helpful, provide a lot of clues and direction for treatment, but if any doctor tells you they ran bloods and it came back negative for pandas, they unfortunately aren’t as informed as they should be. We went to a top pandas specialist who diagnosed us at our first visit based on clinical presentation, videos, oral history. Labs came after.

amother

Sun, Dec 19 2021, 10:33 am

amother [ Yolk ] wrote:

Can you share who the dr was (if its in ny/nj)?

amother

Sun, Dec 19 2021, 10:33 am

amother [ Mint ] wrote:

Only one who takes insurance is Dr visconti in Staten Island. Anywhere else you're paying.

Anyone have good experience here?

amother

Yolk

Sun, Dec 19 2021, 10:34 am

amother [ OP ] wrote:

Can you share who the dr was (if its in ny/nj)?

He was extremely expensive and if you’re going to spend the money I would recommend going elsewhere. Happy to share recommendations in the area.

amother

Cerise

Sun, Jan 02 2022, 10:27 am

amother [ Yolk ] wrote:

He was extremely expensive and if you’re going to spend the money I would recommend going elsewhere. Happy to share recommendations in the area.

Please share recommendations.

amother

Yolk

Sun, Jan 02 2022, 10:29 am

amother [ Cerise ] wrote:

Please share recommendations.

Dr. Michael Elice, dr. Kenneth Bock, dr Nancy ohara, dr Elena Frid

amother

Plum

Sun, Jan 02 2022, 10:45 am

amother [ OP ] wrote:

Try making an appt with Dr Mass in Medrite you can get a 15 minute slot appt with him he’s out of the box and he’s helped many people

amother

Cerise

Sun, Jan 02 2022, 10:45 am

amother [ Lavender ] wrote:

Dr Wagner in Monsey treated my son.

Is she a regular ped?

Did she do anything different than just zithro?

amother

Lavender

Sun, Jan 02 2022, 10:51 am

amother [ Cerise ] wrote:

Is she a regular ped?

Did she do anything different than just zithro?

She’s a regular incredible pediatrician. It was a long time ago, she treated him with antibiotics. 2 or 3 rounds.