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Forum
-> Children's Health
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amother
Apricot
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 Fri, May 05 2017, 1:00 am
My baby has it.
We need to do surgery.
I'd like to hear if anyone dealt with this. Where'd you do surgery. Which dr....
Thank you so much!!!!!
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amother
Apricot
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Sun, May 07 2017, 10:43 am
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amother
Cyan
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Sun, May 07 2017, 12:00 pm
Hi!
Mazel tov on your new baby!
I am a speech-language pathologist and have worked with many children who have various craniofacial conditions like craniocynostosis. FACES, the national craniofacial support network, is a great place to start, though I hope some moms will chime in with recommendations for you here.
Where are you located? Are you in touch with your state's early intervention network?
Wishing you much nachas from your baby!
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amother
Maroon
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Sun, May 07 2017, 1:20 pm
Is it on one or both sides? How old is your baby?
Bartlett at CHOP is supposed to be top.
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amother
Apricot
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Mon, May 08 2017, 12:41 am
Thank you so much for your response!
Didn't even think to reach out to early intervention - for what purpose? Development - they say shouldn't be affected - am I not realizing something?
He's 4 month and I'm located in N.J.
Thinking of using Dr Bartlet (met with him) know anyone who actually use him?
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Cmon be nice
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Mon, May 08 2017, 9:35 am
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My 14 year old daughter had it done when she was a baby by a Dr Wysoff from NYU, though he did the surgery at Maimodies. Did a good job, BH
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amother
Natural
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Mon, Jan 29 2018, 1:02 am
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Happy to see this post! Was searching on this forum ... For those who posted recently can u share your experience with the surgery?
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amother
Apricot
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Mon, Jan 29 2018, 1:12 am
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Hi! It was me - and yes we did do surgery. It was necessary for my baby as it was a different form of craniosynostosis. Would rather not post more info as to the doctors we consulted with... Though if more info will be helpful let me know a way we could do that off here.
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