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ISO support group for mothers of FD



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avimom




 
 
    
 

Post Sun, Nov 24 2013, 9:09 pm
Posting for a friend... anyone know if there are support groups around for a mother of a child with FD? Thanks!
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greenfire




 
 
    
 

Post Sun, Nov 24 2013, 9:14 pm
what's FD
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avimom




 
 
    
 

Post Sun, Nov 24 2013, 9:25 pm
famial dysautonomia
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Happy18




 
 
    
 

Post Sun, Nov 24 2013, 9:29 pm
Where is she located?
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avimom




 
 
    
 

Post Sun, Nov 24 2013, 9:31 pm
Brooklyn
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greenfire




 
 
    
 

Post Sun, Nov 24 2013, 9:32 pm
oh sorry
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Mama Bear




 
 
    
 

Post Sun, Nov 24 2013, 9:34 pm
HASC runs support groups for parents of children with multiple disabilities every month.
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egam




 
 
    
 

Post Sun, Nov 24 2013, 9:51 pm
Support groups
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avimom




 
 
    
 

Post Sun, Nov 24 2013, 9:55 pm
Thank you so much.. I think she is looking for a frum support group though.
mama bear- do you have more info about the Hasc ones?
I think she feels that all of the groups are for kids with MR and her son is more health issue related...
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avimom




 
 
    
 

Post Sun, Nov 24 2013, 9:56 pm
Also, that website lists these organization as support groups but there is no mention of support groups on their sites...
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curlgirl




 
 
    
 

Post Mon, Nov 25 2013, 1:59 am
Tell her to contact this blogger:

http://dovislife.blogspot.co.il/
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FranticFrummie




 
 
    
 

Post Mon, Nov 25 2013, 4:09 am
Email the admin at http://www.beineinu.org and tell her about your child's condition. She will search her database, contact other parents, and see what she can do for you.

They found a match for me, and DD's condition is not so common either.

Hug
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