BRAIN INFLAMMATION

amother

Thu, Mar 18 2021, 7:38 pm

What is the optimal way of treating brain inflammation in young children that is caused by chronic infections, high strep titers, etc. Does anyone know of a reputable practitioner that can help with this? (I reside in Brooklyn)
One last question. Do ADHD meds (stimulants or non-stimulants interfere) with the process?

amother

Amethyst

Thu, Mar 18 2021, 8:12 pm

Real inflammation or imagined inflammation?

Real inflammation is an emergency. Go to the ER.
For Imagined inflammation you can try vitamins and herbs.

amother

Ivory

Thu, Mar 18 2021, 8:20 pm

are you refering to PANDAS? you mentioned high strep titers...
PANDAS is actually brain inflamation, caused my the high strep antibodies the body keeps producing, attacking the brain. That's why it usually causes neurological symptoms.

amother

Amber

Thu, Mar 18 2021, 8:39 pm

amother [ OP ] wrote:

There is no one optimal way, it's a diagnosis with a long road, unfortunately. What works for one may not work with another.
Do you have a diagnosis or you suspect it?
Dr. Sandra Forem is a pediatric neurologist at NYU who was recommended for this.

amother

Thu, Mar 18 2021, 9:47 pm

I apologize if wasn’t clear in my OP. I’m referring to brain inflammation from high strep titers, mycoplasma, possibly chronic infections.
My child is not on any meds yet. I’m wondering if it will interfere with healing the brain inflammation.

amother

Bisque

Thu, Mar 18 2021, 9:50 pm

amother [ OP ] wrote:

The gold standard is antibiotics and antivirals for the infections and ivig for the autoimmunity. Unfortunately it is not a straightforward diagnosis at all. Psych meds are not optimal, they don’t necessarily interfere with other treatments but are not great from a holistic point of view, though they may be necessary at certain points in treatment to keep a kid functioning or getting them to comply with other treatments.

amother

Bisque

Thu, Mar 18 2021, 9:56 pm

amother [ Amethyst ] wrote:

Real inflammation or imagined inflammation?

Real inflammation is an emergency. Go to the ER.
For Imagined inflammation you can try vitamins and herbs.

This is mean. Brain inflammation is real and doesn’t always require hospitalization. Many vitamins and herbs work in evidence based ways on many different ailments, including brain inflammation.

amother

Denim

Thu, Mar 18 2021, 10:27 pm

amother [ Bisque ] wrote:

This is mean. Brain inflammation is real and doesn’t always require hospitalization. Many vitamins and herbs work in evidence based ways on many different ailments, including brain inflammation.

Brain inflammation usually refers to Encephalitis. Seizures, fever, etc. That needs immediate medical attention.

amother

Bisque

Thu, Mar 18 2021, 10:32 pm

amother [ Denim ] wrote:

Brain inflammation usually refers to Encephalitis. Seizures, fever, etc. That needs immediate medical attention.

There are milder encephalopathies that present as behavioral changes, and psychiatric symptoms etc that don’t necessarily require immediate medical attention. In anti NMDA receptor encephalitis for example, only 50-75% of diagnosed patients experience seizures.

amother

Denim

Thu, Mar 18 2021, 10:43 pm

amother [ Bisque ] wrote:

So does that mean anyone can have brain inflammation and not know about it? That’s interesting and mildly terrifying.

amother

Bisque

Thu, Mar 18 2021, 10:44 pm

amother [ Denim ] wrote:

So does that mean anyone can have brain inflammation and not know about it? That’s interesting and mildly terrifying.

Anyone with neuropsychiatric symptoms. There is a lot of research about all kinds of psychological disorders having inflammatory etiology including anxiety and depression.

amother

Denim

Thu, Mar 18 2021, 10:53 pm

amother [ Bisque ] wrote:

Anyone with neuropsychiatric symptoms. There is a lot of research about all kinds of psychological disorders having inflammatory etiology including anxiety and depression.

Cool. Any books or other resources? I’d love to learn more.

amother

Bisque

Thu, Mar 18 2021, 10:56 pm

amother [ Denim ] wrote:

Cool. Any books or other resources? I’d love to learn more.

https://www.amazon.com/Inflame.....r=8-1
https://www.amazon.com/Autoimm.....r=8-5
https://www.amazon.com/Brain-I.....r=8-2

amother

Denim

Thu, Mar 18 2021, 11:02 pm

amother [ Bisque ] wrote:

https://www.amazon.com/Inflamed-Mind-Radical-Approach-Depression/dp/1250318165/ref=sr_1_1?dchild=1&keywords=Inflamed+mind&qid=1616122482&sr=8-1
https://www.amazon.com/Autoimm.....r=8-5
https://www.amazon.com/Brain-I.....r=8-2

Thanks! I’m going to check those out.

amother

Amber

Thu, Mar 18 2021, 11:20 pm

amother [ Bisque ] wrote:

The author is the second link is in NYC, op can go to him as well, he does IVIG

amother

Bisque

Thu, Mar 18 2021, 11:30 pm

amother [ Amber ] wrote:

The author is the second link is in NYC, op can go to him as well, he does IVIG

The third author is in upstate NY and offers a variety of treatment, both mainstream and alternative.