 |
|
 |
 |
|
|
Forum
-> The Social Scene
-> Entertainment
|
amother
OP
|
 Wed, Mar 20 2024, 8:17 pm
Ask away 
| |
|
| Back to top |
 0
 0
|
NechaMom
|
Wed, Mar 20 2024, 8:18 pm
|
What's the last time you did something nice for self care?
| |
|
| Back to top |
0
2
|
|
amother
Watermelon
|
Wed, Mar 20 2024, 8:18 pm
|
How do you deal with the toxic positivity?
| |
|
| Back to top |
0
0
|
|
amother
Bergamot
|
Wed, Mar 20 2024, 8:19 pm
|
If your SN child tantrums a lot, does that affect you?
| |
|
| Back to top |
0
0
|
|
amother
OP
|
Wed, Mar 20 2024, 8:24 pm
| NechaMom wrote: | | What's the last time you did something nice for self care? |
All the time
My daughter is in school a full day.
| |
|
| Back to top |
0
0
|
|
amother
OP
|
Wed, Mar 20 2024, 8:26 pm
I hate it. I don’t go to the SN Melava Malka’s or events etc. I find a lot of wallowing and self pity among the people there and the speakers always grate on me. I come away feeling gross.
I refuse to make being a SN parent my whole personality which I find a lot of people fall into.
| |
|
| Back to top |
0
7
|
|
amother
OP
|
Wed, Mar 20 2024, 8:28 pm
Yes 😢
I am lucky that because of meds and seizures my child is exhausted and in bed for the night at 7pm so I do get a quiet night usually.
| |
|
| Back to top |
5
1
|
|
amother
Camellia
|
Wed, Mar 20 2024, 8:29 pm
|
Do you worry about the future a lot or are you more one day at a time?
| |
|
| Back to top |
0
0
|
|
amother
Tomato
|
Wed, Mar 20 2024, 8:29 pm
How do those 2 statements (in the title ) go together?
How old is your daughter?
| |
|
| Back to top |
0
1
|
|
amother
Cobalt
|
Wed, Mar 20 2024, 8:31 pm
|
As a speech therapist, I’d love to hear what kinds of therapists/modalities you felt were most helpful when working with your child
| |
|
| Back to top |
0
0
|
|
amother
OP
|
Wed, Mar 20 2024, 8:33 pm
| amother Camellia wrote: | | Do you worry about the future a lot or are you more one day at a time? |
One day at a time. I plan to get her into a group home when she’s in her twenties so she will be more set up and not so reliant on my my kids when the time comes. I just hope group homes will be more functional by then.
| |
|
| Back to top |
0
0
|
|
amother
OP
|
Wed, Mar 20 2024, 8:33 pm
| amother Tomato wrote: | How do those 2 statements (in the title ) go together?
How old is your daughter? |
14
| |
|
| Back to top |
0
0
|
|
amother
Tomato
|
Wed, Mar 20 2024, 8:34 pm
|
| Back to top |
0
0
|
|
amother
OP
|
Wed, Mar 20 2024, 8:36 pm
| amother Cobalt wrote: | | As a speech therapist, I’d love to hear what kinds of therapists/modalities you felt were most helpful when working with your child |
Interesting question. She really struggles with her speech and lost a lot of it when her seizures got very severe. We got a lot of it back now.
I’m not an expert but the speech therapists found that teaching her functional phrases helped a lot with her day to day interactions.
They’re also focusing on little words to add to basic sentences that make her requests clearer and sound more “mature”
| |
|
| Back to top |
1
1
|
|
amother
OP
|
Wed, Mar 20 2024, 8:38 pm
Yes but on a bit less than a 2 year old level.
3-4 word sentences…
| |
|
| Back to top |
4
0
|
|
amother
Bellflower
|
Wed, Mar 20 2024, 8:40 pm
Same, I'm bored and a mom of sn child.
I love going to these events though, it makes me feel less alone and I use it to network and make friends.
Just now, I'm sitting outside the bathroom (keeping my younger daughter company while she falls asleep) and I hear my son behind the closed door in the bath talking out loud. "Hashem has answered my tefilos. I will be able to go to school tomorrow at last!" I originally made an appt for him tomorrow but then he was so upset about missing the school masquerade that I switched the appointment to a later time.
Now he's saying the bracha for krias hatorah, messing up most of the words.
Now he's blowing bubbles with the water, laughing and saying "I love gargling"
He's 12 and mostly independent despite his rare disease that causes emotional, physical, and mental disabilities.
| |
|
| Back to top |
6
3
|
|
amother
OP
|
Wed, Mar 20 2024, 8:44 pm
| amother Bellflower wrote: | Same, I'm bored and a mom of sn child.
I love going to these events though, it makes me feel less alone and I use it to network and make friends.
Just now, I'm sitting outside the bathroom (keeping my younger daughter company while she falls asleep) and I hear my son behind the closed door in the bath talking out loud. "Hashem has answered my tefilos. I will be able to go to school tomorrow at last!" I originally made an appt for him tomorrow but then he was so upset about missing the school masquerade that I switched the appointment to a later time.
Now he's saying the bracha for krias hatorah, messing up most of the words.
Now he's blowing bubbles with the water, laughing and saying "I love gargling"
He's 12 and mostly independent despite his rare disease that causes emotional, physical, and mental disabilities. |
So cute 🥰
I always wonder if it’s harder to have a child that’s more on the ball then less..
| |
|
| Back to top |
0
1
|
|
amother
Bergamot
|
Wed, Mar 20 2024, 8:45 pm
|
How does your child and siblings get along?
| |
|
| Back to top |
0
0
|
|
amother
OP
|
Wed, Mar 20 2024, 8:53 pm
So when the siblings are younger it’s pretty bad. She can hurt them if we can’t get to them fast enough or they get really annoyed from her. But I’ve found that once they turn 9 or 10 then they become amazing with her. They are sensitive and loving and it’s heartwarming to watch them interact.
My kids are absolutely amazing with her. The youngest now doesnt really like her but I’ve seen it play out before and within a couple of years I know it will work out…
| |
|
| Back to top |
0
6
|
|
amother
OP
|
Wed, Mar 20 2024, 8:55 pm
|
I have to add that bh I have so much good in my life. I always tell my husband that Hashem gave us a nisayon but helps us with everything else. Life is good
| |
|
| Back to top |
2
6
|
| Related Topics |
Replies |
Last Post |
|
|
Ketamine changed my life for the better AMA
|
46 |
Mon, Apr 22 2024, 8:13 am  |
|
|
Ideas for Gifts for Mom/MIL
|
14 |
Fri, Apr 19 2024, 1:36 pm |
|
|
Which pants for a child with a stomach? Size 12
|
5 |
Thu, Apr 18 2024, 3:17 pm |
|
|
Dilemma, being there for husband or child
|
16 |
Mon, Apr 15 2024, 7:30 am |
|
|
My daughter is practically an only child..
|
23 |
Fri, Apr 12 2024, 9:38 am |
|
|
Imamother may earn commission when you use our links to make a purchase.
© 2024 Imamother.com - All rights reserved
|  |
 |
|
 |
|
|
