Anyone have experience with a random unexplained seizure?

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Forum -> Parenting our children -> Teenagers and Older children

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amother

Wed, Mar 01 2023, 10:04 pm

Title says it all.

amother

Dodgerblue

Wed, Mar 01 2023, 10:06 pm

Once an absence seizure in the shower - my son
Never recurred no one knows why

amother

Wed, Mar 01 2023, 10:08 pm

How many years ago was that?

Kiwi13

Wed, Mar 01 2023, 10:30 pm

I have epilepsy. My first seizure hit at around 15 years old. None of us knew what it was, and it was brushed off as a “vertigo attack” (which is not how vertigo works, but hindsight is 20/20). a few years later I ended up accidentally treating epilepsy with lamictal, which I took for bipolar. It wasn’t until last year when I went off lamictal after maaaany years that I started having seizures again and got a proper diagnosis of lateral TLE.

If you suspect a seizure disorder, please take your child for a proper evaluation. Teenagers should not be having random seizures.

amother

Dodgerblue

Wed, Mar 01 2023, 11:11 pm

amother OP wrote:

How many years ago was that?

Five years

amother

Thu, Mar 02 2023, 2:43 pm

Is it common for a tonic-clonic seizure to be a one-time thing?

amother

Daisy

Thu, Mar 02 2023, 3:17 pm

My dd had a random seizure several years ago. They investigated and found no sign of anything so it was dismissed as probably just a symptom of a virus. She never had anything since.

amother

Gardenia

Thu, Mar 02 2023, 3:35 pm

amother OP wrote:

Is it common for a tonic-clonic seizure to be a one-time thing?

it doesn’t have to be epilepsy. I have a relative who suddenly had a seizure in her 30s and it was something called a cavernoma which is a cluster of blood vessels in the brain that caused it. Best to check it out.

amother

Tulip

Thu, Mar 02 2023, 3:47 pm

amother OP wrote:

Is it common for a tonic-clonic seizure to be a one-time thing?

It can happen from high fever. However I urge you to check it out properly. See a neurologist please. Seizures are not something to ignore.

amother

Tulip

Thu, Mar 02 2023, 3:53 pm

amother Dodgerblue wrote:

Once an absence seizure in the shower - my son
Never recurred no one knows why

Absence seizures can go unnoticed many times.
Maybe have him do an EEG once a year just to mk sure it's all clear.

amother

Topaz

Thu, Mar 02 2023, 4:30 pm

I remember when I was school, a classmate of mine had a seizure. It was really frightening. I remember when she came back to school then she told us that apparently it can happen for people to have a one off seizure. She never had it again and is healthy and well

amother

Bisque

Thu, Mar 02 2023, 4:48 pm

Fainting can look like just like a seizure.

If it’s a one time thing it was probably a fainting episode and not actually a seizure.

amother

Thu, Mar 02 2023, 5:17 pm

amother Bisque wrote:

Fainting can look like just like a seizure.

If it’s a one time thing it was probably a fainting episode and not actually a seizure.

Even if it's clonic?

amother

Coral

Thu, Mar 02 2023, 5:22 pm

amother Gardenia wrote:

How is your cousin now? I have a relative with this cluster but was told it's so small so won't lead to anything. Still worried.

amother

Wine

Thu, Mar 02 2023, 11:22 pm

amother Topaz wrote:

Or she went on meds and the family didn’t want anyone to know because they were worried about shidduchim

amother

Latte

Thu, Mar 02 2023, 11:25 pm

supressing chronic issues (skin issues more common from what ive seen) can cause siezures...

TwinsMommy

Thu, Mar 02 2023, 11:52 pm

My son was having daily silent seizures but the first seizure med we tried knocked them out completely. I couldn't believe it. None of my kids' other stuff has been easy/simple. Hatzlacha finding the right treatment.

amother

Magnolia

Fri, Mar 03 2023, 2:22 am

amother OP wrote:

Title says it all.

My daughter had it and the doctor said it probably happened because she had a fever and we should have given her the medicine right away when the fever went up but we weren’t really sure why it happened. She has been ok since then BH.

amother

Seablue

Fri, Mar 03 2023, 2:59 am

Anonymous here because I am a neurologist:

There are primary causes of seizures and secondary causes. Primary causes are basically 'genetic', and they can manifest (look like) a lot of different things, namely absence, tonic-clonic generalised, only part of the body shaking or tingling. They are brief, lasting seconds to minutes, and often look the same from one time to the next.

Secondary causes means that there is an underlying cause that is triggering the seizure (ex after a stroke or bleed in the brain, due to a small malformation in the development in the brain). These can manifest just like I listed above.

Epilepsy is defined by have two or more unprovoked seizures. If someone has one unprovoked seizure, there is a 50% risk of having a second seizure within 12 months. This can be higher if the mri of the brain shows abnormalities.

There are also seizure mimics, such as low blood sugar, drops in blood pressure (fainting can be accompanied by a few jerks of the body --- this should not be confused with epilepsy). A good neurologist can distinguish between epilepsy and other causes most of the time by asking questions, doing the physical exam, and ordering an EEG and an MRI.

I strongly recommend bringing your child to a neurologist for an assessment.

amother

Opal

Fri, Mar 03 2023, 3:07 am

amother Seablue wrote:

Anonymous here because I am a neurologist:

How common is it to have a seizure disorder that is "outgrown"?

I had multiple unprovoked (assuming that includes seizures triggered by strobe lights etc) seizures in childhood and teens. Unmedicated aside for a few months. Only one seizure in adulthood.

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