Venous malformation

amother

Copper

Wed, Jan 29 2020, 9:45 am

Hope you’re all doing well, I wanted to share about a new treatment we’re doing. I don’t know if any of you still into treatment- if yes I can explain more via pm or anonymous email address.
Lmk if interested and I’ll post with my sn for a few or post an email address

I also have some questions for the adults here with VM, I just don’t like that this forum is open to the public...

amother

Copper

Wed, Jan 29 2020, 9:54 am

amother [ Gold ] wrote:

My daughter has one on her head. We’re just watching it now. I asked if it could be removed and was told that if it gets cut or whatever she will bleed out very quickly. Since it’s in a place where it won’t be bothered we’re leaving it alone and observing. If it bothers her we’ll have to get it removed but it’s risky. I haven’t noticed it her bigger when she’s sick and specialist said it should get absorbed into her head eventually. She gets ultrasounds to monitor it. It’s hard to get an ultrasound of the head - the goo and everything and she’s a little kid who has been through a lot.
Never thought about asking for access to the SN forum - I always said oh this issue isn’t so bad, others have it worse… but maybe I’m in denial.
Edited to ad - she has had (and still has some) other minor issues as well - allergies, other skin issues, etc. not just this.

Is your daughters a vm or AVM?

amother

Brunette

Wed, Jan 29 2020, 12:04 pm

amother [ Copper ] wrote:

Hi! If you post an email address I would definitely want to hear about the new treatment!

amother

Copper

Wed, Jan 29 2020, 12:15 pm

amother [ Brunette ] wrote:

Hi! If you post an email address I would definitely want to hear about the new treatment!

bestaisheschayil@gmail.com