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Forum
-> Children's Health
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amother
OP
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 Sun, Apr 16 2023, 1:33 pm
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Looking for support. My child is profoundly deaf. Bh, got cochlear implants. No one around us is dealing with this.
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amother
Whitesmoke
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Sun, Apr 16 2023, 1:41 pm
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Hi, where are you located? I have four children with hearing loss ranging from mild to moderately severe. None of them require implants, but 2 wear hearing aids. We're in Brooklyn, and they went to strivright for preschool, which was so helpful.
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amother
Midnight
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Sun, Apr 16 2023, 1:53 pm
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I have 2 siblings with cochlear implants and some other family members with hearing aids
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amother
Ebony
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Sun, Apr 16 2023, 2:14 pm
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My daughter is deaf and implanted. BH she's doing beautifully. What are you struggling with, maybe we can help?
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amother
OP
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Sun, Apr 16 2023, 5:32 pm
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I guess I am struggling with the practical aspects of keeping the magnets on. I haven't found that perfect solution between magnet strength and retention options... and I am just struggling with it emotionally as well. No one around us in the community that we know is dealing with this issue, so I am feeling isolated and I am constantly feeling anxious about my child. Worried if the processors have fallen off, am I stimulating her enough, etc. I just really feel exhausted.
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advocate
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Sun, Apr 16 2023, 6:31 pm
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Could you tell us what area you live in?
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watergirl
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Sun, Apr 16 2023, 6:42 pm
| advocate wrote: | | Could you tell us what area you live in? |
I’m so glad you saw this thread!! I was about to pm the link to you! This is when tagging people would come in handy 
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amother
Taupe
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Sun, Apr 16 2023, 6:46 pm
Facebook might a good group for parents of kids with cochlear implants
Also if you’re on Instagram you can connect with a lot of parents
A great account is Beth and coop
She just came out with a children’s book , not just about her son but many real life children with special needs
It’s super sweet
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amother
DarkYellow
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Sun, Apr 16 2023, 8:13 pm
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Location would help a lot. We have a wonderful group for mothers of the hearing impaired in the Lakewood area, I’m sure this exists in other areas as well.
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amother
Ebony
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Sun, Apr 16 2023, 9:29 pm
When my daughter was little we ordered pilot caps/hearing aid caps from Etsy to keep her implants on. I find it hilarious that now frum stores sell those exact caps with their newborn layette.
How old is your child? And which implant do they use? Maybe we can brainstorm
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amother
Periwinkle
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Sun, Apr 16 2023, 9:53 pm
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Ask your MD office if they can connect you with other moms.
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mha3484
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Sun, Apr 16 2023, 10:14 pm
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I am in in chicago my friends son has cochlear implants. If you want to PM me I can connect you with her.
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amother
OP
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Sun, Apr 16 2023, 10:30 pm
| mha3484 wrote: | | I am in in chicago my friends son has cochlear implants. If you want to PM me I can connect you with her. |
Sent you a pm
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CPenzias
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Sun, Apr 16 2023, 10:39 pm
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I'm just sending you hugs. You sound like a great mom ❤️
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amother
NeonPink
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Sun, Apr 16 2023, 11:05 pm
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contact Elisheva (Elizabeth) Rosenzweig — she’s a frum auditory verbal therapist who will connect you with resources auditoryverbaltherapy.net
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amother
Violet
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Wed, Dec 27 2023, 2:41 pm
Hi how can I found about Lakewood support group for hearing impaired?
Ty
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amother
Crocus
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Sat, Dec 30 2023, 6:50 pm
| amother Taupe wrote: | Facebook might a good group for parents of kids with cochlear implants
Also if you’re on Instagram you can connect with a lot of parents
A great account is Beth and coop
She just came out with a children’s book , not just about her son but many real life children with special needs
It’s super sweet |
What’s the name of the book? (Don’t have Instagram access)
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