Help my kid has a lot of tics

amother

Broom

Mon, Jan 03 2022, 11:40 am

amother [ Sapphire ] wrote:

I dont think it is trauma in my son's case. I'm leaning towards Pandas.. I insisted on bloodwork two years ago, dr. didnt really want. I pushed for it, and result came back strep in blood.. After ggiving antibiotics, they never wanted to recheck if it went away completely. Now that his tics have never left, and he keeps getting strep, it makes sense that it's still in his system.
I need to see a specialist.

How does cognitive therapy work?
I dont think a book will help me, if it's a medical issue.

The book says it helps for pandas

amother

Hosta

Mon, Jan 03 2022, 12:15 pm

amother [ Sapphire ] wrote:

I meant to write trauma/anxiety.
It can definitely be anxiety related, too.
The root cause can be anxiety as well...

If they didn't want to retest then yes it can be pandas.

CBT is a modality of psychotherapy.

amother

Natural

Mon, Jan 03 2022, 12:28 pm

amother [ Hosta ] wrote:

Anxiety doesn’t cause tics. It may exacerbate them. Tics and anxiety are caused by a common third factor, namely, neuroinflammation.

adinalow

Mon, Jan 03 2022, 12:30 pm

Just want to say as someone who has had tics as a kid and still get occasionally when stressed. Pls pls don’t ask your kid to stop! They are very aware they are doing it. It’s like an itch they might be able to resist for a minute or two but have to scratch it eventually. Bringing it to my attention only made me feel worse and more self conscious and increased the tics. And never ever make fun or imitate them for their tics. Hatzlacha to all of you. Btw mine are just an external manifestation of internal stress.

amother

Natural

Mon, Jan 03 2022, 12:31 pm

amother [ Sapphire ] wrote:

Is it costly? How much

Its about 600 for the initial intake which lasts over 3 hours , and then 175 for monthly follow ups. The remedies themselves are about 10-20 dollars , including shipping. I understand that these numbers seem insane to people that are used to insurance covering everything, but we’ve been down the insurance route, and many other routes as well, and if you inhabit this unfortunate club, these prices are fairly reasonable.

amother

Broom

Mon, Jan 03 2022, 12:32 pm

amother [ Natural ] wrote:

But does it help?

I keep seeing on these threads about this california Homepathy

also about the pandas doctors like Frid, boch.....

But I have yes to see a significant amount of people say the helped them.

amother

Natural

Mon, Jan 03 2022, 12:37 pm

amother [ Broom ] wrote:

You aren’t looking in the right places, imamother has a tiny sample of pandas parents and most aren’t at a place where they’re seeing these big name doctors. FB groups have thousands of parents, and for each doctors dozens that have used them and can give you extensive reviews.

We use RN in California. We also use many other modalities. It’s not magic, but we’ve seen some small improvements . One very measurable symptom that didn’t go away with years of antibiotics, diet and supplements literally disappeared overnight with homeopathy. Similar to a tic.

There are also other homeopaths that treat pandas that are way way cheaper.

amother

Broom

Mon, Jan 03 2022, 12:43 pm

amother [ Natural ] wrote:

I hear. These big groups give me anxiety.

amother

Sapphire

Mon, Jan 03 2022, 12:49 pm

amother [ Natural ] wrote:

I did a zoom meeting with neuro dr. He said CBT is very costly, time consuming, and only improves it a bit.

If pandas is a medical ussue, how will spending my energy on cbt help?

How is PANDAS treated?

Btw, my older son had tics for that he eventually did outgrew. Not as severe though as my current one.

amother

Natural

Mon, Jan 03 2022, 12:54 pm

amother [ Sapphire ] wrote:

Im not the poster recommending cbt . Did you mean to quote me or someone else?

First line of treatment for pandas is typically antibiotics, motrin and antihistamines. More advanced treatment for resistant cases involves ivig, Rituxan, plasmapheresis. Many people also use supplements. You can also choose to go the alternative root.

amother

Sapphire

Mon, Jan 03 2022, 1:10 pm

amother [ Natural ] wrote:

Sorry if I confused you with another posters reply. The more info I get, the better..

Do u know what type of antibiotics? My pediatrician claimed why do I need to know if he has Pandas, if he was anyway getting amoxicillin for his strep?

Id love to take route where he needs the least drugs and side effects. If that will work..

What happens if Pandas stays untreated? Say if my older son had it and it wasnt treated. Can it resolve on its own?

amother

Natural

Mon, Jan 03 2022, 1:35 pm

amother [ Sapphire ] wrote:

Hate to say this but your pediatrician is wrong. First of all, amox is generally not strong enough for pandas, augmentin or azithrmycin typically work best, second of all, pandas needs a much, much longer course than a regular acute strep infection. Sometimes if you catch it early, 30 days of 6 weeks can nip it in the bud, but if it’s going on for a while, I would say at minimum a year, possibly longer. Being that your kid keeps getting strep, you might also want to look into tonsillectomy, some kids wit pandas see huge improvements that way.

I don’t know what the deal is with your older kid, but pandas doesn’t typically self resolve. In fat, it usually gets worse and worse. Even if the tics went away, are you sure they aren’t dealing with other less obvious manifestations such as moodiness, hyperactivity, anxiety, ocd, rage, aggression, defiance, meltdowns? Are they a completely easygoing neurotypical child?