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Forum
-> Children's Health
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amother
OP
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 Wed, Feb 07 2024, 1:51 pm
Do you know what levels are considered an indication of PANDAS?
My pediatrician said the results are good. I'm looking at them. They show a Anti-DNase B Strep Antibodies number of 101. It should be up to 77. It's flagged as high, but the doctor said it's normal.
Makes sense?
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amother
Yolk
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Wed, Feb 07 2024, 2:03 pm
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My son, who got psoriasis due to untreated strep, at least that's what dr supposed, had srep titers of 1700's
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amother
Daphne
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Wed, Feb 07 2024, 2:32 pm
There is no level at which pandas is diagnosed.
Pandas is diagnosed based on symptoms and medical history. Titers can provide a clue but they are not diagnostic. This is according to the official diagnostic guidelines. Unfortunately many doctors don't know this and will still go based off titers.
Titers to a disease generally means recent past exposure or past illness. Many people have very elevated titers because they were just sick or exposed, but they don't have pandas. That is why doctors will often dismiss elevated titers as normal or insignificant, because it's found in the general population as well. Many kids with pandas have normal or no titers to strep, because they don't mount a proper immune response.
Either way, the strep antibodies that we test for are not the antibodies that cause pandas.
All pandas specialists will diagnose based on medical history, current presentation, and response to treatment.
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amother
OP
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Wed, Feb 07 2024, 2:42 pm
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Thx. I called refuah for a pandas specialist recommendation and they told me they can't imagine it's pandas if the strep levels are low.
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amother
Daphne
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Wed, Feb 07 2024, 2:43 pm
| amother OP wrote: | | Thx. I called refuah for a pandas specialist recommendation and they told me they can't imagine it's pandas if the strep levels are low. | So many misconceptions around pandas 
Where are you located?
What symptoms is your child having?
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amother
OP
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Wed, Feb 07 2024, 2:46 pm
I'm in Brooklyn.
Bad sudden tics.
Also lately acting weird. Telling me randomly he doesn't like me. A minute later hugging me. Just not the usual.
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amother
Daphne
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Wed, Feb 07 2024, 2:49 pm
| amother OP wrote: | I'm in Brooklyn.
Bad sudden tics.
Also lately acting weird. Telling me randomly he doesn't like me. A minute later hugging me. Just not the usual. | Try dr visconti in Staten Island he takes insurance.
Or dr michael gabriel he's integrative but doesn't take insurance.
Did you do an ibuprophen trial?
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amother
OP
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Wed, Feb 07 2024, 2:58 pm
| amother Daphne wrote: | Try dr visconti in Staten Island he takes insurance.
Or dr michael gabriel he's integrative but doesn't take insurance.
Did you do an ibuprophen trial? |
No. I want to try it
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amother
Vermilion
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Wed, Feb 07 2024, 6:27 pm
| amother Yolk wrote: | | My son, who got psoriasis due to untreated strep, at least that's what dr supposed, had srep titers of 1700's |
My daughter had the same. Psoriasis after several strep infections in one year.
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amother
Daphne
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Wed, Feb 07 2024, 6:29 pm
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amother
Valerian
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Wed, Feb 07 2024, 6:54 pm
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My daughter just had a blood test and her strep level was 1370!!
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amother
Viola
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Wed, Feb 07 2024, 7:51 pm
How do I start? Blood at reg ped?
My 4 year old had strep a ton last winter
Nothing this winter bh
Very active child so I dont know if his behavior is crazier. Hes difficult. Had 4 bathroom accidents in last 3 weeks. Perfect for years!
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amother
Daphne
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Wed, Feb 07 2024, 7:56 pm
| amother Valerian wrote: | | My daughter just had a blood test and her strep level was 1370!! | What prompted you to test?
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amother
Valerian
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Wed, Feb 07 2024, 8:01 pm
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I tested because her behavior was insane .. school refusal.. crying non stop … not settled .. she’s 10 years old
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amother
Daphne
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Wed, Feb 07 2024, 8:03 pm
| amother Valerian wrote: | | I tested because her behavior was insane .. school refusal.. crying non stop … not settled .. she’s 10 years old | Sure sounds like pandas. Is the pediatrician being helpful? Have you got her on motrin, benadryl and antibiotics?
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amother
Valerian
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Wed, Feb 07 2024, 8:12 pm
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I wish I knew the Motrin and Benedryl route .. I did antibiotics and she’s going to therapy .. slowly getting her back to school
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