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Forum
-> Children's Health
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amother
Royalblue
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 Wed, Mar 01 2023, 5:00 am
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My son had a rare condition-1 in 6000
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amother
OP
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Mon, Nov 06 2023, 6:36 am
| amother Seafoam wrote: | | Hi! I have a child with a mitochondrial disorder officially only 300 cases diagnosed but I believe there are many more undiagnosed. |
Hi
My friend is looking to connect with other Mito moms that are dealing with similar as her.
Would you be comfortable connecting somehow?
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amother
OP
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Thu, Feb 29 2024, 8:56 am
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It’s rare disease day today so bumping up!
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amother
Tanzanite
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Thu, Feb 29 2024, 9:00 am
I have a SN child with something so rare that nothing is showing up on the genetics panel eventhough we redo it every 5 years.
Just her epilepsy diagnosis is 1 or 2 per million.
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amother
Canary
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Thu, Feb 29 2024, 9:15 am
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Mitochondrial disease complex 1,2,3, deficiency. What type of Mito does your child have ?
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amother
Bottlebrush
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Thu, Feb 29 2024, 9:37 am
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May we all find strength and rays of sunshine 🫂
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amother
Apple
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Thu, Feb 29 2024, 10:22 am
Dermal sinus tract
ETA - condition not a disease
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amother
Firethorn
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Thu, Feb 29 2024, 10:43 am
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I have abdominal migraines- not a disease but a rare condition
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amother
Amethyst
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Thu, Feb 29 2024, 11:04 am
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My husband was recently diagnosed with NMOSD which is similar to MS.
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amother
Periwinkle
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Thu, Feb 29 2024, 12:01 pm
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My sons issue is so rare this it’s 1 in a million .
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