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PANDAS - alternative treatments

 
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amother




OP
 

Post  Tue, Sep 22 2020, 12:16 pm
What can be done in addition to antibiotics (zythromax) to help a child with PANDAS? Any tips or information about things that have helped would be greatly appreciated!
TIA
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amother




Blue
 

Post  Tue, Sep 22 2020, 12:29 pm
Following
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chenvchesed




 
 
 
 

Post  Tue, Sep 22 2020, 12:32 pm
Change the diet. Try scd or gaps. At minimum go gluten and dairy free, and limit sugar.
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amother




OP
 

Post  Tue, Sep 22 2020, 1:12 pm
Thanks for your reply. Anyone know any info about probiotics or vitamins?
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Jewishmom8




 
 
 
 

Post  Tue, Sep 22 2020, 1:28 pm
I was told
omega 3
vitamin D
B vitamins
and probiotic.
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amother




Mustard
 

Post  Wed, Oct 28 2020, 11:13 pm
amother [ OP ] wrote:
Thanks for your reply. Anyone know any info about probiotics or vitamins?
these are the ones we’ve found helpful: magnesium, methylated b vitamins, vit b1 and b2, nac, glutathione, gaba, 5htp, inositol, ltheanine, blisk12, pre and probiotic

What symptoms specifically are you looking to treat?
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amother




Ivory
 

Post  Wed, Oct 28 2020, 11:21 pm
curcumin to help with inflammation in the brain. starting it soon for my son.
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amother




Black
 

Post  Wed, Oct 28 2020, 11:24 pm
3 of my kids were diagnosed with pandas after we noticed interesting behaviors and tics. We are working with a nutritionist who has lots of experience and miracle stories in this field. We are following a vitamin regimen that she recommends and have seen tremendous results bh. One of my kids numbers are back to normal bh after 4 months on this.
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amother




Mustard
 

Post  Wed, Oct 28 2020, 11:29 pm
amother [ Black ] wrote:
3 of my kids were diagnosed with pandas after we noticed interesting behaviors and tics. We are working with a nutritionist who has lots of experience and miracle stories in this field. We are following a vitamin regimen that she recommends and have seen tremendous results bh. One of my kids numbers are back to normal bh after 4 months on this.
can you share your protocol?
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amother




Brunette
 

Post  Wed, Oct 28 2020, 11:29 pm
amother [ Black ] wrote:
3 of my kids were diagnosed with pandas after we noticed interesting behaviors and tics. We are working with a nutritionist who has lots of experience and miracle stories in this field. We are following a vitamin regimen that she recommends and have seen tremendous results bh. One of my kids numbers are back to normal bh after 4 months on this.


Hi! Do you mind sharing who this nutritionist is and where she is located? I would really appreciate it.
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amother




Black
 

Post  Wed, Oct 28 2020, 11:42 pm
Mrs. Green shes available every Wednesday and Thursday in the supreme store in monsey. She spends as much time as you need reviews bloodwork ect....
PS: I never believed in alternative until I did this protocol and got to see it first hand. I have a neighbor that 2 of her kids were also diagnosed and doing same protocol she's seeing amazing Results. Mothers out there, if you see any kind of interesting behaviors or tics in your kids follow your heart, a mother knows best.
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amother




Mustard
 

Post  Wed, Oct 28 2020, 11:52 pm
amother [ Black ] wrote:
Mrs. Green shes available every Wednesday and Thursday in the supreme store in monsey. She spends as much time as you need reviews bloodwork ect....
PS: I never believed in alternative until I did this protocol and got to see it first hand. I have a neighbor that 2 of her kids were also diagnosed and doing same protocol she's seeing amazing Results. Mothers out there, if you see any kind of interesting behaviors or tics in your kids follow your heart, a mother knows best.
whats the protocol?
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amother




Jade
 

Post  Wed, Oct 28 2020, 11:59 pm
Following.
Who did the blood work? Does she ask for follow up blood work or do you work in tandem with your pediatrician?
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amother




Black
 

Post  Yesterday at 12:11 am
My pediatrician isn't backing me on this even after taking a few tests and claimed numbers not "high". I knew something was very wrong with my child and had tests done by a doc that tests specifically for lyme and pandas. He gave a whole list of antibiotics we chose to do alternative.
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